Do you have any recurring hallucinations?

Hi . Are you on a treatment plan for your narcolepsy? Have you talked with your doctor about your worsening symptoms? I hope the frequency becomes less over time. Sending the very best of wishes your way. - Lori (Team Member)

Hey , thank you so much for sharing that. It must be so frustrating to feel like your symptoms have worsened over time. Sleep paralysis and hallucinations can be such difficult experiences to endure. Please know you're not alone, and this community is here to support you. Have you been able to discuss these changes with your doctor? They might have new insights or suggestions to help manage things better. Sending you lots of strength and understanding! Best wishes, Iris (Team Member)

What a relief that must be, . Have you been taking sodium oxybate for long? I hope it continues to be effective and that sleep paralysis and hallucinations are a thing of the past for you. Warmly, Lori (Team Member)

I am glad you figured out edibles are a trigger, . Were they helping you sleep at night? If so, have you found an alternative? Wishing you the best. - Lori (Team Member)

Heya thank you for sharing your experience! It’s so inspiring to hear how you’ve identified and avoided triggers like edibles and found techniques like moving your fingers and toes to take control during sleep paralysis. That’s such a great tip for others who might struggle with similar episodes. Your proactive approach is truly empowering! Keep up the amazing work in managing your symptoms. 😊Best wishes, Iris (Team Member)

Since I've been on medication, they have lessened. Before medication, I used to get little girls, men, short cloaked figures, small animals, spiders, antelopes, and a pirate. 😅 During sleep paralysis, I heard someone breaking into the house. They came into my room and stole things and left. I hate sleep paralysis. It is scary. The hallucinations arent so scary anymore. They only happen every few months. The last time I hallucinated, the little girl came and stood next to the bed. She had a friend with her and she actually made a noise. That's the only time they've made any noise. Hallucinations usually happen soon after I lay down and I'm still awake. The little girl is recurring.

How frightening, . I am glad the medication is helping, especially with sleep paralysis, and that you've been able to cope with the hallucinations. I have only experienced sleep paralysis when I've had a fever and tried to nap. Needless to say, I never nap when I am feverish anymore. - Lori (Team Member)