Driving - Travel - How do you manage?
How do you manage daily life regarding driving? My radius is approximately 5 miles, and that is after a nap and with medications. How do people with narcolepsy manage to get places safely?
That’s the thing that drives me crazy it’s getting where I can figure out in the morning when I wake up if I’m going to have a good day or not. So I would like to drive to town to the grocery store, which is only 8 miles from my house, but my family is afraid for me to drive.
The doctor took my license when I was diagnosed cause I finally got tested when I had a head on collision luckily no one got hurt but I live in a rural area also I can get an Uber to pick me up from my house but when I’m done I can’t get anyone to pick me back up so I have to make it a round trip and rush grab a few things at a time so they don’t leave me I have one friend that helps when she can but she has her own family all of my family has passed away so I’m on my own 
I wish you had more support. It sounds so stressful to have an Uber driver always waiting while you shop or have appointments. Rural living can be tough when you can't drive. Do you do a lot of shopping online? Have you ever considered contracting with someone local to be your on-call driver? Many of the Amish where I live do that. They agree upon a hourly rate and pay local retirees to take them where they need to go on an as-needed basis. The retirees earn a bit of money without a huge commitment. Thinking of you. - Lori (Team Member)
I stopped driving 3 years ago after being stopped by the police for swaying to the side. I also live in a rural area with limited public transport. Deep down I knew I shouldn’t be driving at all. It’s completely immaterial where you live. The question is should you be driving full stop. It would be interesting to have a secret poll and ask “do you think you are completely safe to drive. I knew I wasn’t until my license got taken away.
That would be interesting,
. I suspect you are right, that many people know they shouldn't be driving, but feel they have no choice. Do you have support when it comes to transporation? I also live in a rural area, where there are no taxis, Ubers, Lyfts or buses. The only available transportation for those who can't drive is the county dial-a-ride program. I can imagine it must be incredibly difficult for those who have no one they can rely on to help. Thinking of you. - Lori (Team Member)
I have to drive myself everywhere. I drink coffee, take my Sunosi every morning and if I have that strong urge to sleep, even if I'm driving to and from work, I pull over and take a micro nap. I live in the country and 30 minutes from my work. I don't have a choice. I've pulled over to take a micro nap when I was just a few miles from my house before. Sometimes, the urge is just that strong.
Hi
. I hope you are always able to drive with the help of medication, coffee and micro naps. I understand your situation. We also live in the middle of nowhere, where there are no buses or Uber or Lyft drivers, and the nearest taxi would have to come from 45 minutes away. Lots of retirees earn money driving for the Amish though. I love it here, but it is difficult for people who can't drive and don't have family here. Wishing you the best. - Lori (Team Member)
Group-wanted to makes the comment that I’m very
Blessed that I have very caring Adult children who
Took care of me. I didn’t
Know I had it
It’s hard.How awesome that you have such a strong support system,
. That can make all the difference in the world. Warmest of wishes. - Lori (Team Member)
