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Feeling Like a Fraud

Anyone else feel this way sometimes? Like you don't have an actual medical problem, you're actually just lazy and undisciplined? I've been on max-dose stimulants for so long that my...

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Explaining Narcolepsy to Others

How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...

Is Eating After Taking a Xywav Dose Drug Abuse?

I keep getting told every single time I late night snack that I'm abusing Xywav at this point because I'm up snacking. Even if I'm only snacking an hour past...

Narcolepsy Sucks

I don't feel lazy EVER !!! I , NOW, COULD GIVE A FLYING FLICK WHAT PEOPLE THINK(🦍🐒🤡🦧🤯🤯😱) WHAT THEY EXPECT MY "FAMILY" EXCEPT FOR MY DAUGHTERS ARE AWOL, SELFISH, IGNORANT...

Do you go to a narcolepsy meet up?

Aside from big conferences like the National Narcolepsy Conference, there are lot's of meet up groups that exist! Let's make them known. What meet up groups have you attended? What...

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Lack of Empathy and Compassion When Tired

I am unable to connect fully or be empathetic when I am tired. I feel like on the surface this makes sense. However, I do want to know if I...

Pregnancy with narcolepsy - treatment options?

I am planning on getting pregnant soon but I am concerned with my narcolepsy. I haven't done a sleep study yet - just basing the diagnosis off of what my...

Addressing Narcolepsy Misconceptions

What misconceptions about narcolepsy have you had to address with your family and friends? How did you handle it? Share below!...

How Can Family & Friends Support You?

How can loved ones make holiday gatherings more comfortable and supportive for someone with narcolepsy? What strategies and tips do you have for communicating your needs with family and friends?...

How to manage narcolepsy in college

Managing school, social life and narcolepsy in college....

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