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Read conversations, start a discussion, and connect with others about narcolepsy.

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Approaching IH

Been testing with multiple (4) MSLTs, and 3 different clinics, I'm approaching what is now considered Idiopathic Hypersomnia (IH). I thought I...

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Cannot Focus

I cannot focus. I'm exhausted and disgusted with treatment. I've had four sleep studies and the doctor told me I have narcolepsy...

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Narcolepsy and Stress

Do you find that stress increases your daytime sleepiness or other symptoms?...

At What Age Were You Diagnosed With Narcolepsy?

Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

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Where is the most embarrassing place you have fallen asleep?

Share your answers below!...

Housework

Narcolepsy without Cataplexy is a diagnosis on my medical records along with EDS. I see remarks about people thinking you’re lazy. I...

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My story: Can anyone relate?

Hello everyone, I am writing this at 4am, as per ususal, I have been awake every hour on the hour since midnight...

Scared to try Xyrem

I’ve just been prescribed Xyrem to manage my cataplexy and plan to start it this weekend. I’m scared in case it makes...

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