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Read conversations, start a discussion, and connect with others about narcolepsy.

FeaturedActive today

Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

Active yesterday

Waking up wondering if someone's been in the house

Has anyone ever had the feeling of someone being in their house or violating them when they were sleeping and then you...

Active 2 days ago

Addressing Narcolepsy Misconceptions

What misconceptions about narcolepsy have you had to address with your family and friends? How did you handle it? Share below!...

Active 4 days ago

Associated conditions

Learning that you not only have narcolepsy but also severe Obstructive Sleep Apnea with 48 episodes an hour and then after researching...

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

Surprising Symptoms of Narcolepsy

What are your most surprising symptoms of narcolepsy? How do you manage them?...

Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

Scared to try Xyrem

I’ve just been prescribed Xyrem to manage my cataplexy and plan to start it this weekend. I’m scared in case it makes...

Paralysis or cataplexy

I’ve been taking medication and been diagnosed for narcolepsy for the last year now. The medications are helping almost all symptoms however...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

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