Narcolepsy & a Cardiovascular Co-morbiditiesI have recently discovered that Narcolepsy, more specifically the typical lifestyle adopted by those with narcolepsy, indirectly increases the risks of heart issues. The primary lifestyle or behavior that many...Reactions0reactionsComments2 repliesAwarenessTips & Advice
FeaturedExplaining Narcolepsy to OthersHow do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...Reactions0reactionsComments18 repliesAwarenessFriends & Family
Telling people you have narcolepsyI’m not embarrassed about having narcolepsy and have come to terms with it. But I also don’t want it to hold me back in my career and other areas of...Reactions0reactionsComments9 repliesAwarenessWork & EmploymentTips & Advice
RepeatingI'm in a large circle of people introducing myself and answering a question, everyone has the same response however, mine is opposite. By the time they get to me, I'm...Reactions0reactionsComments6 repliesAwarenessCoping
Diagnosed with Narcolepsy with Cataplexy in 1977. I started on Provigil after participating in the drug trial study. Would like contact from members who have been on Provigil or Nuvigil(Armodafinil...Would like to talk with Narcoleptics in their 60's, 70's, and 80's who have taken Provigil or NUVIGIL. WANT TO KNOW HOW THEY ARE DOING. HAVE THEY CONTINUED ON NUVIGIL...Reactions0reactionsComments4 repliesCopingAwareness
Will you take our In America survey to share the truth about life with narcolepsy?Thank you for participating. This survey has closed. From daytime sleepiness to cataplexy and brain fog, narcolepsy can impact all aspects of life. To better understand the patient experience and realities...Reactions0reactionsComments0 repliesAwarenessResearch & Clinical Trials
World Narcolepsy Day 2022! How did you celebrate?Yesterday was an awesome day of spreading awareness for the Narcolepsy and Sleep Disorder community. I got to see genuine love spread throughout the day as well as connection and...Reactions0reactionsComments0 repliesAwareness
Will you take our In America survey to share the truth about life with narcolepsy?From sleep attacks to cataplexy, there’s so much more to life with narcolepsy than most people know. Help contribute to a better understanding of living with narcolepsy by taking our...Reactions0reactionsComments3 repliesAwarenessResearch & Clinical TrialsCoping
Community meetings?Hello! I am curious to learn if there are any online meetings here. I live in Russia and the situation with narcolepsy support in my country is literally non-existent....Reactions0reactionsComments4 repliesAwarenessCoping