Fill in the blank: My most frustrating narcolepsy symptom is _____.
From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!
Falling asleep driving. Falling asleep at work. No energy.
starting one tomorrow. 
Let us know whether it helps, if you don't mind. I hope it makes a difference for you, especially for work and driving. Warmly, Lori (Team Member)
Mine is the absolutely, overwhelming excessive daytime sleepiness that hits me out of nowhere & is uncontrollable & overpowering. That's the best way I know how to describe it, and it still isn't even close.
I am medicated to the maximum of my meds, and I guess they have to be helping some. I've tried everything else & either it didn't work at all or not for long.
My husband is my biggest cheerleader. He tries hard to understand & sympathize, as well as he can. He recently saw how bad i was struggling with alertness at work day after day, along with other health issues, and finally asked me to just quit working. I didn't want to completely give up my career, so we compromised & I work very limited hours now & can pretty much make my own schedule, so that helps. My coworkers are very understanding also & helpful.I'm glad you have such strong support. Please know we're here for you whenever you need us. - Lori (Team Member)
Cataplexy 🥺
Fundamentally not being able to regulate when I go to sleep and when I need to wake up on a daily basis. It’s the most disruptive and stressful part. Not being able to be in control or to choose when (sleep-onset and whatever it’s called when people wake up) these natural processes happen (falling asleep and waking) even with ten alarms set on my phone, the stop watch, and a “Super Shaker” alarm. Not remembering turning these alarms and alerts off. The big blur between sleeping/dreams and actually being “awake” which may be more of a clean-break instead of a blurry oblivion in people without this problem. The disorientation upon waking in which I may be talking to the ceiling out loud thinking I’m talking to a person because I was dreaming about someone and talking in the dream. I’m still talking when I wake, and it makes me feel foolish because no one’s really there but me.
