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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!

  1. Always telling my daughter, "mommy is tired, please go get daddy," and she responds, "mommy you are always tired or working, you don't like/want to play with me."

    1. Parenting with narcolepsy can really be tough. My heart goes out to you. This is one of five articles written by one of our advocates of parenting with narcolepsy during different stages of your child's growth: I thought it might help you feel less alone. Since your daughter is talking, I shared the elementary school article. You can find the others by entering "Mom Life and Narcolepsy" in the search box in the upper left corner. I hope this helps. Thinking of you and sending lots of gentle hugs your way. - Lori (Team Member)

  2. Trying to wake and wake inside other, and another, and inifine dreams. Sometimes so paralysed that's hard to breath.
    Vivid nightmares experiencing being shot, falling, drowning and dreaming about having narcolepsy and paralisation.

    1. My heart goes out to you, . It seems so unfair that sleep can be such a terrifying experience for some people. Gentle hugs. - Lori (Team Member)

  3. Hallucinations! its so hard to explain to people why I suddenly screamed when nothings there!

    1. That would be difficult to explain, for sure, . Here is an article you can share with friends if ever you feel the need: It might help them understand a bit better. Warm wishes. - Lori (Team Member)

  4. Usually it's the excessive daytime sleepiness, but lately it's been the vivid dreams that are much more realistic than they used to be and are now confusing my reality a bit.

    1. They can seem so real, . I hope they ease up soon and that you get some relief from them. Wishing you the best. - Lori (Team Member)

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