Fill in the blank: My most frustrating narcolepsy symptom is _____.
From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!
feeling very drain
Constantly falling asleep, I've taken meds for so many years that my body is used to them and they do nothing. I've tried changing meds but nothing else even helps a little.
I wish you had more treatment options. You must be incredibly frustrated. Gentle hugs. - Lori (Team Member)
Falling asleep driving. Falling asleep at work. No energy.
So far i think the medication helps. I don't seem to be a sleepy during the day. Less likely to fall asleep while sitting relaxing. I try not to drive at night at all or any more than necessary anytime. I'm on call every three weeks for a week 24 hours a day. So I worry about going out on a call at night but it thankfully doesn't happen much. I hope the medication is a good long-term solution for you. Keep us updated, if you don't mind. - Lori (Team Member)
Mine is the absolutely, overwhelming excessive daytime sleepiness that hits me out of nowhere & is uncontrollable & overpowering. That's the best way I know how to describe it, and it still isn't even close.
I am medicated to the maximum of my meds, and I guess they have to be helping some. I've tried everything else & either it didn't work at all or not for long.
My husband is my biggest cheerleader. He tries hard to understand & sympathize, as well as he can. He recently saw how bad i was struggling with alertness at work day after day, along with other health issues, and finally asked me to just quit working. I didn't want to completely give up my career, so we compromised & I work very limited hours now & can pretty much make my own schedule, so that helps. My coworkers are very understanding also & helpful.I'm glad you have such strong support. Please know we're here for you whenever you need us. - Lori (Team Member)
