Fill in the blank: My most frustrating narcolepsy symptom is _____.
From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!
My cataplexy is one of the biggest issues. I am able to control it with medication but if I am really struggling with being awake it will kick in
Cataplexy. I can live with being tired, Cataplexy is what turned me into a worthless human.
My heart goes out to you. Do you take any medication that helps? Gentle hugs. - Lori (Team Member)
The most frustrating for most narcoleptic patients has to be the extreme sleepiness when you have appointments, plans, or just things that need to get done. The sleepiness is totally debilitating for some of us.
That has to be the number one complaint of people with narcolepsy and the most misunderstood symptom. Do you take any medication to keep you alert during the day or have any strategies that help? Have you been diagnosed long? Warm wishes. - Lori (Team Member)
falling asleep mid sentence. or waking up not knowing where you are.
That has got to be frightening sometimes. Gentle hugs. - Lori (Team Member)
