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Have you felt stigma because of your narcolepsy?

Sometimes narcolepsy can have stigma that comes with it; some might confuse it with laziness or lack of time management for sleep.

What stigma's have you experienced because of your narcolepsy?

  1. That my sleep hygiene is poor.

    1. And as I've pointed out to them, they share all of this "normal people wisdom" when I am at my lowest, saying things like this narcolepsy is a walking death. They tell me that they hate me being in that state. I would be nicer if they said that they hate that narcolepsy gets me into that state.

    2. It sure would. It would be even nicer if they asked how they could help. - Lori (Team Member)

  2. I constantly experience stigma! Most people think I am lazy, unstructured, or that my life is just a mess.

    1. Thank you for mentioning wearing a medical bracelet. Never thought of this.

      1. I am going to get myself a medical bracelet soon.

    2. I ended up having a seizure after 10 years. My friends thought I was having a stroke but I was unable to tell them it was cataplexy.

      1. That must have been scary for you, , especially since you couldn't communicate with them. Do those closest to you understand now or do you wear a medical ID bracelet? Thinking of you. - Lori (Team Member)

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