And as I've pointed out to them, they share all of this "normal people wisdom" when I am at my lowest, saying things like this narcolepsy is a walking death. They tell me that they hate me being in that state. I would be nicer if they said that they hate that narcolepsy gets me into that state.
Lori.Foster Community Admin
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It sure would. It would be even nicer if they asked how they could help. - Lori (Team Member)
Oppi Member
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I constantly experience stigma! Most people think I am lazy, unstructured, or that my life is just a mess.
Joanjarzynka Member
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Thank you for mentioning wearing a medical bracelet. Never thought of this.
RamboCro Member
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I am going to get myself a medical bracelet soon.
Joanjarzynka Member
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I ended up having a seizure after 10 years. My friends thought I was having a stroke but I was unable to tell them it was cataplexy.
Lori.Foster Community Admin
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That must have been scary for you, , especially since you couldn't communicate with them. Do those closest to you understand now or do you wear a medical ID bracelet? Thinking of you. - Lori (Team Member)