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Hi I was wondering. Are the medication helping you to stay a wake the whole day or do most of you have to fall a sleep during the day, I always have to take a nap, I can manage to work 8 h if I dont have to sit down for more than 10 min (Im taking modafinil) but its often hard. For examble I cant drive home after work have to take a nap first. But If I take a nap its like my brain is reset and if I also take my table I dont have to worry for next 8h. I havent met a doctor how knows the treatment for narcolepsy for many years but reading about it here tells me that maybe its possible to take more meds

  1. I got changed to Armodafinil and Adderall combination for my narcolepsy. I also have to take an hour or two nap just to get through the day. I talked with my doctor about it. If the medication works for you even 50 % of the time, then you were doing good. I am at the point where I am going to have to change something. I feel like sleeping all the time.

    1. Thanks for chiming in, . I hope you find a new treatment plan that is more effective for you. Sending lots of healthy vibes your way. Best wishes. - Lori (Team Member)

  2. I've been taking Modafinil for 30+ years and was one of the first people with narcolepsy to be prescribed it.
    The worst side effect is that dry mouth has resulted in dental problems and I don't remember being told that would happen.
    Does anyone else have this problem?
    P.S. I still need a nap, especially after a meal.

    1. Hi, Thanks but it's a bit late for that, I have dentures now. I used to chew sugar free gum to stop my mouth being so dry but it didn't stop the tooth decay. Such is life.

    2. You are not alone, Carol (). Lots of people lose their teeth to dry mouth even when their dental hygiene is good. Hugs. - Lori (Team Member)

  3. Controlling Narcoleptic Daytime Sleepiness

    1. Hi . I think your message might have been cut off. Did you have a link or article to share? Wishing you the best. - Lori (Team Member)

  4. I take adderall. I was sleeping 18 hours a day before but I have the urge to sleep 24. For some reason couldn't fall asleep for those 6 hours, felt like insomnia. Now I sleep 10 to 12 hours. I'm happier. I feel less sleepy and more rested when I'm awake so I don't mind being awake more now.

    1. So glad you have a treatment that works for you! Are you able to get your medication right now? I know some people have been struggling to get access to Adderall in particular in recent months. Regardless, it is so useful to be able to stay awake and sleep when we need to! Having untreated narcolepsy means not being able to control sleep and wake cycles and I know from experience that it's almost painful... Glad you are doing better lately! Warmest regards, Tatiana ( Team Member)

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