Narcolepsy Misconceptions
What are some of the biggest misconceptions about narcolepsy?
I had a friend who became very upset with me because she found that I was able to rise for the day of my son’s (her Godson) graduation from Law School, but my husband was unable to wake me in time for her 50th birthday dinner…it seemed ed she thought it was something I could control. I learned about this 9 years after it happened as well as there being other things where she felt I did not value her. Why in Heaven’s name would I purposely miss my very best friend’s 50th birthday dinner, especially after having flown down to Key West to spend the occasion with her and several other friends. She was Godmother to both of my sons and my very best and closest friend for over 30 years. It truly feels like a death, of which I can’t seem to get though all of the stages. I will though, in time.
Thank you for listening and best to all of my fellow narcoleptics.How sad that she let that resentment stew for so long. Were you finally able to discuss it with her? Are the two of you still close now? Sending lots of gentle hugs your way. - Lori (Team Member)
Many believe that the sleepiness is simply something that you can push through and do not understand that the sleepiness we experience is far more intense than the average person's.
That can be the hardest thing to make people understand about narcolepsy. Do you have much support from those closest to you? - Lori (Team Member) My closest family and friends do understand and help out when needed.
That I will just fall asleep anywhere at anytime anyday
That we have energy you our bad days. Like my meds are helping keep my eyes open but don't have a pinky worth of energy. I call it Jello legs, cement feet syndrome, can barely find energy to use the bathroom.
