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Surprising Symptoms of Narcolepsy

What are your most surprising symptoms of narcolepsy? How do you manage them?

  1. Loss of memory, and the mental illnesses that are so often a part of narcolepsy. (depression, anxiety, ADHD)

    1. Overall muscle weakness and no physical strength. Was dealing with this years b4 I was diagnosed. Thought I was just out of shape! I wasn't diagnosed till I passed out on my Kit.fl & broke some bones in the fall. Was in the hosp 4 days for tests etc

      1. That must have been so painful, . Did you recover fully? I'm glad they decided to consider narcolepsy as a factor. Have you had any serious falls since? Best wishes. - Lori (Team Member)

    2. That Cataplexy can get progressively worse as the years go by. Mine went from being triggered by laughter and extreme sadness to now being almost constantly in Cataplexy if I do not have my medication.

      1. What took me off guard is that I have had narcolepsy my whole life. It was controllable. (it had to be, back then it was not diagnosed). I had a stroke and even the doctors told me that because of the stroke my narcolepsy became 10x worse.

        1. That must have been incredibly frustration, , to recover from a stroke only to learn it's made your narcolepsy worse. Are you able to take any medications for your narcolepsy? - Lori (Team Member)

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