What are the worst side effects medication has given you?

Iris Vasconcelos

I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and what these can be?

I know it's different for everyone but that's why I'm so curious to know...how many of us have really really bad experiences with medication side effects?

Thanks to all!! xxx

Shortnapz Member
I never ending cycle that the doctors keep adding some of the same type of medications one on top of another instead of up in the milligrams and the daily taking and them not prescribing what I need not listening to me.
CommunityMember2faef0 Member
Unfortunately, I have experienced a psychotic break.
1. Lori.Foster Community Admin
  How awesome, ! It must be strange, but what a great position to be in when you have to apply for disability. You should be able to order a customized medical bracelet online. I have seen them on Amazon and on Etsy. It might give you some peace of mind to know people have access to that information if you are unable to respond to them. Maybe your doctor can help you figure out what information would be most helpful to provide. - Lori (Team Member)
2. CommunityMember2faef0 Member
  
  Thank you! 🫶🏾
Lyaneris Member
The only one to give me bad sideeffects was Sunosi, although the packaging listed only a few. It basically doubled the wall to feel emotions and motivation for me.
1. Tatiana Corbitt Moderator & Contributor
  So sorry to hear that you had a bad experience with Sunosi! This can be such a stressful thing to go through. I can relate though, I also tried Sunosi for my Narcolepsy and experienced similar issues unfortunately. It really messed with my depression symptoms too, not in a good way! Luckily I was able to switch and find a better treatment plan. Do you find that your current treatment plan for Narcolepsy works well for you? Warmly, Tatiana (narcolepsy.sleep-disorders.net Team Member)
2. Iris Vasconcelos Moderator & Contributor
  Oh wow...that's so crazy. I'm sorry you had to go through that! Hope things are better for you now! Take care hun! Iris xxx
Evanstam Member
I make sure I find the prescription and read all of the information on it.
1. Iris Vasconcelos Moderator & Contributor
  That is definitely really good advice! You definitely need to be aware of what possible side effects that could occur. Thanks so much for sharing Evanstam! Best wishes, Iris (Team member Narcolepsy.Sleep-Disorders.net)
2. Tatiana Corbitt Moderator & Contributor
  This is a great practice especially for those of us living with Narcolepsy, which is a rather unusual condition and doctors may not always be informed about the side effects of our medication. I also like to ask my pharmacist about potential side effects when starting a new medication. They always know what to look out for. Thanks for sharing! Warmly, Tatiana (narcolepsy.sleep-disorders.net Team Member)