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Read conversations, start a discussion, and connect with others about narcolepsy.

The one thing that eliminated my cataplexy

You can live a full and happy life with Narcolepsy Type 1. How do I know this? Because I went scurrying to a Doctor the minute that I started having...

Lumryz

What's people's experience who have changed from Xywav/Xyrem to Lumryz? I'm considering on changing to the new medicine, but I want to know how it has helped other people, plus...

Extreme lethargy, lower concentration and awareness

Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right meds....

Modafinil Providuil

Does anyone know who can prescribe me this medication?...

Pregnancy with narcolepsy - treatment options?

I am planning on getting pregnant soon but I am concerned with my narcolepsy. I haven't done a sleep study yet - just basing the diagnosis off of what my...

How long did you take to find the right treatment?

I know there are many different drugs to deal with narcolepsy. Unfortunately, not all of them are legal in every country (some of them are not allowed in Chile, where...

What are the worst side effects medication has given you?

I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and what these can be? I know it's different...

Narcolepsy medications and heart problems

I just turned 50 and have been talking Adderall for almost 30 years and while I am not thrilled to have to take amphetamines, I have been fortunate to live...

Sleep meds

I have narcolepsy and have been taking zopiclone 15mg. I no longer find it effective. What are others taking?...

Supplements or herbal remedies to treat narcolepsy

So first thing first I don't know if this is appropriate if I share my experiences on consuming supplements or herbal remedies here. But I am curious to find out...

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