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Read conversations, start a discussion, and connect with others about narcolepsy.

Associated conditions

Learning that you not only have narcolepsy but also severe Obstructive Sleep Apnea with 48 episodes an hour and then after researching...

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

Nightmares

Do you experience nightmares as part of your narcolepsy symptoms and do they affect you even after waking?...

Scared to try Xyrem

I’ve just been prescribed Xyrem to manage my cataplexy and plan to start it this weekend. I’m scared in case it makes...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a...

Exit the pit-sunken place

God will show you through His word how to get out the pit. When we pray and ask God to do something...

Electric Buzzing Feeling When Slipping Into Sleep

Hello everyone, I have been diagnosed with Narcolepsy since 2018, and it has been a journey in so many ways. One strange...

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Narcolepsy and Stress

Do you find that stress increases your daytime sleepiness or other symptoms?...

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Explaining Narcolepsy to Others

How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...

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