Power of Positive Thinking: Silencing the Inner CriticThe average time to diagnosis for people with narcolepsy is 8 to 15 years. By the time of diagnosis, a person may have spent as much as half a lifetime...Reactions0reactionsComments1 comments
Relationships and Narcolepsy: Managing EmotionsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments3 comments
Hypnagogic and Hypnopompic Hallucinations: Shadow People and Demon BunniesLeading up to and after my diagnosis of narcolepsy with cataplexy, excessive daytime sleepiness most interfered with my quality of life. The sleepiness preoccupied my daily thinking, but that was...Reactions0reactionsComments13 comments
People-First Language: Person With Narcolepsy, Not NarcolepticThis article is about my preference for person-first language, such as identifying as a person having narcolepsy with cataplexy, as opposed to narcoleptic and cataplectic. It is important for me...Reactions0reactionsComments1 comments
The Bumpy Road to DiagnosisNarcolepsy is notorious for being a difficult disorder to diagnose. It can take years for patients to be diagnosed, and they can often be misdiagnosed in the process! I want...Reactions0reactionsComments0 comments
Relationships and Narcolepsy: Communicating Our NeedsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments4 comments
Inside My Unmedicated Narcoleptic LifeHave you ever wondered what it might be like to have narcolepsy and be unmedicated? I have always said, that there is no wrong or right way in how we...Reactions0reactionsComments3 comments
Sleepy Strength Is More Than Being Strong and ExercisingExercise and strength training have been a part of my life as long as excessive daytime sleepiness. By the time I was in middle school, I had begun to struggle...Reactions0reactionsComments3 comments
Pack Your Bags! Preparing for an Overnight Sleep Study and MSLTLet's talk about preparing you on what to expect and what to bring for a test that helps diagnose narcolepsy! As a guy, this is perhaps a bit embarrassing to...Reactions0reactionsComments0 comments
Behind the Red DoorImagine laying in your bed awake, but completely unable to move, or speak, while intruders approach your bedroom. You just lay there passively waiting for it to be over while...Reactions0reactionsComments2 comments
Relationships and Narcolepsy: Disclosing While DatingWhen it comes to relationships, every couple will have their issues – but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments2 comments
What Does It Mean to Be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading this now. You are not alone if you...Reactions0reactionsComments0 comments
Narcoleptic Nap Guide: Drowsy Driving Edition Part 1Have you ever experienced the following while behind the wheel of a car: Or maybe you've found yourself nodding away while at the wheel of the car, despite feeling rested...Reactions0reactionsComments11 comments
Diving in Your SoupPicture this: Sicily 1956...Oh, wait. That’s a Golden Girls story. Presuming you all know the TV show The Golden Girls? Anyway, let’s try to picture this instead: Cannes in France...Reactions0reactionsComments0 comments
Putting Negative Self-Talk to SleepAs a person with narcolepsy, I’ve often been told that I’m strong and resilient for getting through each day. It’s true, I won’t deny that overcoming the many obstacles that...Reactions0reactionsComments3 comments
Narcolepsy in the WorkplaceI started working at my current employer as an intern. This is where I was first introduced to the hustle, 8 AM meetings, and endless amounts of coffee. Coffee became...Reactions0reactionsComments0 comments
My Narcolepsy DiagnosisWhat? I have narcolepsy? Like the girl in that movie that falls asleep in her soup? I remember this being the first thing I thought of when I was diagnosed...Reactions0reactionsComments2 comments
Skin and Body Temperature and NarcolepsyNarcolepsy can be a difficult condition where people experience both daytime and nighttime symptoms connected to waking up and falling asleep. Daytime symptoms can include excessive sleepiness and sudden muscle...Reactions0reactionsComments0 comments
You Aren’t Lazy! You Have Narcolepsy!I can fall asleep within minutes of laying down and struggle to stay motivated throughout my day. If you come to my house, it’s possible that you might find me...Reactions0reactionsComments8 comments
Scrolling for EnergyAs I grow another year older, I feel my sleepiness getting stronger. I look back on my younger years and wonder how I was able to take 5 college courses...Reactions0reactionsComments5 comments
