Narcolepsy and Stress-Induced Sleepiness and CataplexyExcessive daytime sleepiness is a symptom experienced by everyone having narcolepsy type 1 (with cataplexy and hypocretin deficient) and narcolepsy type 2 (without cataplexy and not hypocretin deficient). This profound...reactions3comments
Can Narcolepsy Take a Seat?Imagine you’re on a train on your way home from work. It’s been a long day. Despite taking your regular nap at lunch you can feel yourself fading. The gentle...reactions1comment
4 Terms I Created to Describe My NarcolepsyOver the years I have created terms to describe my narcolepsy. It's so hard to describe how I feel sometimes! When I say I am tired to someone who has...reactions11comments
Fine-Tune Your Narcolepsy SymptomsBesides any medication a doctor can prescribe you, you can do some things yourself to fine-tune your narcolepsy symptoms. The following lists are based on positive patient experiences which could...reactions4comments
My Secret to Reducing Narcolepsy SymptomsJune 2020 is my 1 year anniversary of sharing my narcolepsy story on social media. When I started, I had finally overcome a large portion of my symptoms of narcolepsy, naturally...reactions1comment
Everyone's Tired... Right?Growing up, I never thought twice about my sleepiness and I didn't question it either. After I was diagnosed with narcolepsy, I would constantly think about how my brain was wired...reactions1comment
Power of Positive Thinking: Silencing the Inner CriticThe average time to diagnosis for people with narcolepsy is 8 to 15 years. By the time of diagnosis, a person may have spent as much as half a lifetime...reactions1comment
Relationships and Narcolepsy: Managing EmotionsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...reactions3comments
Hypnagogic and Hypnopompic Hallucinations: Shadow People and Demon BunniesLeading up to and after my diagnosis of narcolepsy with cataplexy, excessive daytime sleepiness most interfered with my quality of life. The sleepiness preoccupied my daily thinking, but that was...reactions13comments
People-First Language: Person With Narcolepsy, Not NarcolepticThis article is about my preference for person-first language, such as identifying as a person having narcolepsy with cataplexy, as opposed to narcoleptic and cataplectic. It is important for me...reactions1comment
The Bumpy Road to DiagnosisNarcolepsy is notorious for being a difficult disorder to diagnose. It can take years for patients to be diagnosed, and they can often be misdiagnosed in the process! I want...reactionscomments
Relationships and Narcolepsy: Communicating Our NeedsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...reactions4comments
Inside My Unmedicated Narcoleptic LifeHave you ever wondered what it might be like to have narcolepsy and be unmedicated? I have always said, that there is no wrong or right way in how we...reactions3comments
Sleepy Strength Is More Than Being Strong and ExercisingExercise and strength training have been a part of my life as long as excessive daytime sleepiness. By the time I was in middle school, I had begun to struggle...reactions3comments
Pack Your Bags! Preparing for an Overnight Sleep Study and MSLTLet's talk about preparing you on what to expect and what to bring for a test that helps diagnose narcolepsy! As a guy, this is perhaps a bit embarrassing to...reactionscomments
Behind the Red DoorImagine laying in your bed awake, but completely unable to move, or speak, while intruders approach your bedroom. You just lay there passively waiting for it to be over while...reactions2comments
Relationships and Narcolepsy: Disclosing While DatingWhen it comes to relationships, every couple will have their issues – but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...reactions2comments
What Does It Mean to Be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading this now. You are not alone if you...reactionscomments
Narcoleptic Nap Guide: Drowsy Driving Edition Part 1Have you ever experienced the following while behind the wheel of a car: Or maybe you've found yourself nodding away while at the wheel of the car, despite feeling rested...reactions11comments
Diving in Your SoupPicture this: Sicily 1956...Oh, wait. That’s a Golden Girls story. Presuming you all know the TV show The Golden Girls? Anyway, let’s try to picture this instead: Cannes in France...reactionscomments
