What It's Like Living With a Rare DiseaseLiving with a rare disease is not easy. There are a lot of rare diseases out there. Narcolepsy is the rare disease that I live with. I know zero people...Reactions0reactionsComments0 comments
Fighting the Desire to Sleep ForeverContent Note: This article describes suicidal ideation. If you or a loved one are struggling, consider reading our mental health resources page. Suicide. It’s a hard topic to broach, but...Reactions0reactionsComments2 comments
The Exhaustion of Just Making It Through the Day: Helping Others to UnderstandLiving with narcolepsy can involve fighting excessive daytime sleepiness and fatigue on a daily basis. Getting through each day and engaging in daily activities can feel like a never-ending battle...Reactions0reactionsComments8 comments
Your Voice, Your Vote: Advocating for ChangeThe goal of this article is to bring about awareness of issues related to people with disabilities and to encourage eligible voters to exercise that right. Anyone looking for my...Reactions0reactionsComments2 comments
One Bad AppleI would like to share an experience I had with a medical provider I had the misfortune of meeting. He was one of a handful of bad apples I have...Reactions0reactionsComments0 comments
4 Reasons to Subscribe to Our Weekly NewsletterDo you want more information about narcolepsy? Are you looking for support? Do you want to talk to other people affected by this condition? If you answered “yes” to any...Reactions0reactionsComments0 comments
The Struggle and Stigma of Narcolepsy MedicationsAs people with narcolepsy, most of us take some type of medication every day. They help us to live as close to “normal” as possible. However, acquiring the medications we...Reactions0reactionsComments8 comments
5 Tips to Be Successful in College With NarcolepsyDealing with narcolepsy and the workload of college can be a stressful experience. You could have 4 exams, 7 assignments, a pop quiz, and a 15-page paper all due within...Reactions0reactionsComments0 comments
Narcolepsy, Dreams, and the "Emotional Hangover"Most people with narcolepsy will know what it’s like to experience wild dreams. With our brains hard-wired to lapse into REM at a moment’s notice, we can sometimes feel like...Reactions0reactionsComments35 comments
Concentrating With Narcolepsy Is Harder Than It LooksI started an article last week, and it has taken me 3 sessions and one redo to complete! So I decided my next article would be about how hard it...Reactions0reactionsComments10 comments
World Narcolepsy Day - Take Over the WorldTaking over the world one story at a time.Pinky: “Gee, Brain, what are we going to do tonight?” Brain: “The same thing we do every night, Pinky. Try to take...Reactions0reactionsComments0 comments
Relationships and Narcolepsy: 3 Important ConversationsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments0 comments
Take the Connected Health Survey!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to mobile apps, we use connected health technology to track symptoms, monitor...Reactions0reactionsComments0 comments
Narcolepsy and Stress-Induced Sleepiness and CataplexyExcessive daytime sleepiness is a symptom experienced by everyone having narcolepsy type 1 (with cataplexy and hypocretin deficient) and narcolepsy type 2 (without cataplexy and not hypocretin deficient). This profound...Reactions0reactionsComments3 comments
Can Narcolepsy Take a Seat?Imagine you’re on a train on your way home from work. It’s been a long day. Despite taking your regular nap at lunch you can feel yourself fading. The gentle...Reactions0reactionsComments1 comments
4 Terms I Created to Describe My NarcolepsyOver the years I have created terms to describe my narcolepsy. It's so hard to describe how I feel sometimes! When I say I am tired to someone who has...Reactions0reactionsComments11 comments
Fine-Tune Your Narcolepsy SymptomsBesides any medication a doctor can prescribe you, you can do some things yourself to fine-tune your narcolepsy symptoms. The following lists are based on positive patient experiences which could...Reactions0reactionsComments4 comments
My Secret to Reducing Narcolepsy SymptomsJune 2020 is my 1 year anniversary of sharing my narcolepsy story on social media. When I started, I had finally overcome a large portion of my symptoms of narcolepsy, naturally...Reactions0reactionsComments1 comments
Everyone's Tired... Right?Growing up, I never thought twice about my sleepiness and I didn't question it either. After I was diagnosed with narcolepsy, I would constantly think about how my brain was wired...Reactions0reactionsComments1 comments
Power of Positive Thinking: Silencing the Inner CriticThe average time to diagnosis for people with narcolepsy is 8 to 15 years. By the time of diagnosis, a person may have spent as much as half a lifetime...Reactions0reactionsComments1 comments
