Living

Aside from the condition itself, there's an added burden tied to narcolepsy that hardly receives recognition — the struggle to be financially independent. In an ideal world, money would be...

Narcolepsy will rear its quirky little head at the most inconvenient times. It doesn’t care where we are or what we are doing. If you have cataplexy, like I do...

Finding the right narcolepsy treatment plan is like building a house. When I was first diagnosed with narcolepsy, I hoped there would be a quick fix — a pill I...

As the years go by, there's a subtle weight that descends, a deepening sensation of isolation that accompanies the unrelenting hold of narcolepsy. It is more than the neverending struggle...

When I was a kid, I loved playing video games. The first games I can remember getting my hands on were Barbie Horse Adventures and Sims 3: Date Night. My...

Recently, I was experiencing some tingling in my foot. I am trying to do a better job of noticing when my body is communicating with me. I am 26, and...

Grooming with narcolepsy isn’t for the faint of heart. As a person with narcolepsy, every little bit of effort that I dedicate to one part of my life is unable...

I received notice today that vocational rehab has a spot open for me. This program is my last attempt to enter the workforce again. I will be starting with one...

We have come to the end of 2023 and are moving into 2024. As with millions around the globe, a new year brings new goals, resolutions, ideas, and targets. We...

I’ve realised that since I was diagnosed with narcolepsy, I’ve learned so much about myself, and I continue to do so the more time goes by. For a while, I...

It is possible to be "born with" narcolepsy and never experience life without it. However, I was not born with narcolepsy. My narcolepsy onset in my college years following a...

In January 2024, it will be 4 years since being officially diagnosed and starting my idiopathic hypersomnia advocacy journey. When I started doing my advocacy work, I felt alone and...

For many people with narcolepsy, finding comfort and support in friends and family is an essential part of the condition journey. When those living with narcolepsy encounter a lack of...

It can take months to years to get diagnosed with narcolepsy. For myself, once I got my narcolepsy diagnosis, I thought the road was over. 'If we know what is...

I know that taking care of animals can be tough at times, but the benefit we gain from having them in our lives is priceless! When my narcolepsy started becoming...

Living with narcolepsy means that we have to live life around our condition. Unfortunately, we don’t get the holidays off from our symptoms! Here are some ways that I make...

When I was diagnosed with narcolepsy at 28 years old, there were many things I worried about... but my weight was certainly not one of them. Like most recently diagnosed...

If you have narcolepsy, chances are you’ve been in this situation, too. You’re in the grocery store, looking at colorful cereal boxes, when suddenly it hits you – a sleep...

Recently I have been unable to get one question out of my mind: Is narcolepsy a magnet for other illnesses, disorders, and diseases? It has led to me to trying to answer another...

I was recently asked to say something positive about narcolepsy. I must admit, I could not come up with anything right there on the spot. This disease has affected so...