Long Road to TreatmentIt can take months to years to get diagnosed with narcolepsy. For myself, once I got my narcolepsy diagnosis, I thought the road was over. 'If we know what is...reactions2comments
My Dogs Have Saved Me From MyselfI know that taking care of animals can be tough at times, but the benefit we gain from having them in our lives is priceless! When my narcolepsy started becoming...reactions3comments
4 Ways to Survive the Holidays With NarcolepsyLiving with narcolepsy means that we have to live life around our condition. Unfortunately, we don’t get the holidays off from our symptoms! Here are some ways that I make...reactionscomments
The "Weight" of NarcolepsyWhen I was diagnosed with narcolepsy at 28 years old, there were many things I worried about... but my weight was certainly not one of them. Like most recently diagnosed...reactionscomments
Falling Asleep in PublicIf you have narcolepsy, chances are you’ve been in this situation, too. You’re in the grocery store, looking at colorful cereal boxes, when suddenly it hits you – a sleep...reactions4comments
Narcolepsy: A Comorbidity Magnet?Recently I have been unable to get one question out of my mind: Is narcolepsy a magnet for other illnesses, disorders, and diseases? It has led to me to trying to answer another...reactions14comments
Is There Anything Positive About Narcolepsy?I was recently asked to say something positive about narcolepsy. I must admit, I could not come up with anything right there on the spot. This disease has affected so...reactions5comments
Snuggle Up With a Good BookOne of my favorite hobbies has always been reading. In elementary school, I spent my lunch period hanging out with the school librarian. Usually we chatted about the newest books...reactions1comment
When Friends Understand… or Don’tThe longer I live, the more friends I have. (Not all at once, though.) My social life started suffering when my narcolepsy onset. There were many years where I just...reactions3comments
Humour as a Coping Mechanism for NarcolepsyNarcolepsy is no laughing matter. As a matter of fact, no chronic illness is something to laugh about. Having said this, I do believe that humour and chronic illness aren’t...reactionscomments
No, You’re NOT Tired Like Me!As a person with narcolepsy, I am always tired to a certain degree. When people ask me how I am, a common response I have for them is, "I’m good...reactions3comments
Yes, I Can DrivePeople automatically assume a lot of things when I first tell them I have idiopathic hypersomnia (IH). It causes them to jump to thinking about all the things that I...reactions10comments
Narcolepsy Extrovert to IntrovertI recently heard this analogy: An introvert wakes up in the morning with 5 coins, and every interaction takes a coin, and at the end of the day, they're depleted. An...reactions3comments
Narcolepsy Symptoms Can Be Scary!It’s that time of year again — the air is turning chilly, pumpkins are popping up on every corner, steaming mugs of tea and coffee fill us with warmth... Spooky...reactionscomments
My Limitations Are Up to Me!I feel like I’ve had to go back into self-advocating for myself once more. It is not that I ever quit sticking up for myself, but I started to let...reactionscomments
A Day in the Life: Idiopathic HypersomniaBeing someone with idiopathic hypersomnia (IH), it causes me to sleep an excessive amount. Sometimes detailing my day-to-day habits is enlightening to outsiders to see how I operate. While this...reactionscomments
Dealing With Narcolepsy Stigma Within the FamilyLiving with narcolepsy isn't just an individual journey; it's a shared experience within the intricate web of family dynamics. While we hope for understanding and support from our loved ones...reactions4comments
Discovering Different Types of CataplexyCataplexy is a symptom of narcolepsy that consists of sudden muscle weakness or even temporary paralysis. It can be triggered by many different things, but especially strong emotions. When this...reactions5comments
In Sickness and in HealthI did not receive my narcolepsy diagnosis until about year after I took my vows with my husband. We, like many other couples, opted for traditional vows, one of which...reactions3comments
My Day of RestDo you have a day of the week that you look forward to? Is it a day you have off from work, or a day you spend with loved ones?...reactions2comments
