Snuggle Up With a Good BookOne of my favorite hobbies has always been reading. In elementary school, I spent my lunch period hanging out with the school librarian. Usually we chatted about the newest books...Reactions0reactionsComments1 comments
When Friends Understand… or Don’tThe longer I live, the more friends I have. (Not all at once, though.) My social life started suffering when my narcolepsy onset. There were many years where I just...Reactions0reactionsComments3 comments
Humour as a Coping Mechanism for NarcolepsyNarcolepsy is no laughing matter. As a matter of fact, no chronic illness is something to laugh about. Having said this, I do believe that humour and chronic illness aren’t...Reactions0reactionsComments0 comments
No, You’re NOT Tired Like Me!As a person with narcolepsy, I am always tired to a certain degree. When people ask me how I am, a common response I have for them is, "I’m good...Reactions0reactionsComments3 comments
Yes, I Can DrivePeople automatically assume a lot of things when I first tell them I have idiopathic hypersomnia (IH). It causes them to jump to thinking about all the things that I...Reactions0reactionsComments10 comments
Narcolepsy Extrovert to IntrovertI recently heard this analogy: An introvert wakes up in the morning with 5 coins, and every interaction takes a coin, and at the end of the day, they're depleted. An...Reactions0reactionsComments3 comments
Narcolepsy Symptoms Can Be Scary!It’s that time of year again — the air is turning chilly, pumpkins are popping up on every corner, steaming mugs of tea and coffee fill us with warmth... Spooky...Reactions0reactionsComments0 comments
My Limitations Are Up to Me!I feel like I’ve had to go back into self-advocating for myself once more. It is not that I ever quit sticking up for myself, but I started to let...Reactions0reactionsComments0 comments
A Day in the Life: Idiopathic HypersomniaBeing someone with idiopathic hypersomnia (IH), it causes me to sleep an excessive amount. Sometimes detailing my day-to-day habits is enlightening to outsiders to see how I operate. While this...Reactions0reactionsComments0 comments
Dealing With Narcolepsy Stigma Within the FamilyLiving with narcolepsy isn't just an individual journey; it's a shared experience within the intricate web of family dynamics. While we hope for understanding and support from our loved ones...Reactions0reactionsComments4 comments
Discovering Different Types of CataplexyCataplexy is a symptom of narcolepsy that consists of sudden muscle weakness or even temporary paralysis. It can be triggered by many different things, but especially strong emotions. When this...Reactions0reactionsComments5 comments
In Sickness and in HealthI did not receive my narcolepsy diagnosis until about year after I took my vows with my husband. We, like many other couples, opted for traditional vows, one of which...Reactions0reactionsComments3 comments
My Day of RestDo you have a day of the week that you look forward to? Is it a day you have off from work, or a day you spend with loved ones?...Reactions0reactionsComments2 comments
Movies and DozingA common thought people have when a date or family member falls asleep during a movie is, "Wow, guess they weren’t that interested in the movie." Besides some people being...Reactions0reactionsComments3 comments
The Next StepI recently earned my barbering diploma. I will officially get my certificate in September or October. Last year, I decided to go back to school to learn a new skill...Reactions0reactionsComments1 comments
5 Ways I Keep Up With ChoresDaily life with narcolepsy can be difficult. There are many ways in which symptoms can impact us, including sleep attacks and brain fog, that can make it harder for us...Reactions0reactionsComments4 comments
World Narcolepsy Day Cariloha Giveaway!The World Narcolepsy Day Cariloha Giveaway is now closed. Thank you for your interest! World Narcolepsy Day is September 22, 2023! Awareness of narcolepsy is important for many reasons. Narcolepsy...Reactions0reactionsComments0 comments
The Empty Validation of a Narcolepsy DiagnosisI’ve been diagnosed for almost 6 years now, and as much as it feels like it was only yesterday... it also feels like an entire lifetime has gone by. Throughout...Reactions0reactionsComments8 comments
Breaking Up With NarcolepsyDo you ever find that periods of stress can worsen your narcolepsy symptoms? I recently found myself at the tail end of a romantic relationship. The day our relationship ended...Reactions0reactionsComments1 comments
Narcolepsy and Surgery: Advocating for MyselfI have been struggling with my neck for quite a while. For some reason, I attributed it to sleeping more than the average person. It never dawned on me that...Reactions0reactionsComments2 comments