My Condition, My Choice!“You look tired, is everything ok?” This is a question that most of us living with narcolepsy are probably tired of hearing - especially in the workplace. Recently I was...Reactions0reactionsComments5 comments
Invisibility: Blessing or Curse?There are many illnesses that are fairly visually obvious. Many chronic conditions may be difficult — or, at times, even impossible — to hide. Narcolepsy is not one of them...Reactions0reactionsComments0 comments
Worries While Having Narcolepsy Narcolepsy is a rare condition affecting 1 in 2,000 people in the general population. Due to its rarity, I am not flabbergasted when an individual doesn't know much about narcolepsy...Reactions0reactionsComments0 comments
SSI and Medicaid: Moving to a Place Based on Healthcare“What do you mean I’m not eligible for Medicare?” I groan into the phone. “I’m on Social Security, aren’t I?” At this point the Social Security agent kindly explained to...Reactions0reactionsComments0 comments
Brain Fog on a Sunny Day: How I Stay Productive on Difficult DaysWith a chronic illness like narcolepsy, some days I am more capable than others. Other days I feel like a mountaintop has crashed over my head, preventing me from getting...Reactions0reactionsComments0 comments
Working From Home: The Good, the Bad, and the UglyI am sure so many of us have experienced the ups and downs of working from home over the last 2 years. I remember when COVID-19 lockdowns first happened in...Reactions0reactionsComments0 comments
Analyzing the Benefits and Risks of Stimulant UseMost people living with narcolepsy are well acquainted with this word: stimulants. Known under countless other names (amphetamines, methylphenidate, Ritalin, modafinil, Adderall, and more), every individual’s reaction is unpredictable, and...Reactions0reactionsComments4 comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...Reactions0reactionsComments0 comments
Mr. Night Shift and Ms. NarcolepsyI met my boyfriend in high school. Honestly, I never really noticed him until my senior year. We were both in the marching band, and during water breaks, we would...Reactions0reactionsComments0 comments
Narcolepsy, Periods, and Cramps… Oh My!I have lived with narcolepsy since it onset in my junior year of college in 2016. The symptoms were extremely difficult to deal with in the beginning. My cataplexy was...Reactions0reactionsComments1 comments
How I Prepare for Medical AppointmentsMost of us living with narcolepsy are probably well acquainted with regular visits to the doctor. Unfortunately, people diagnosed with narcolepsy very often establish this relationship with the medical system...Reactions0reactionsComments2 comments
Using Public Transportation With NarcolepsyI recently moved to Portland, Oregon, and am learning how to utilize the public transit services. I own a car but like to utilize public transportation on days when my...Reactions0reactionsComments0 comments
Frustrating Challenges of Brain FogOne of the more frustrating challenges of living with narcolepsy is the brain fog and memory issues. There are many times when my close family and friends retell stories that...Reactions0reactionsComments6 comments
Narcolepsy Onset Is TraumaticMy narcolepsy is unique. My narcolepsy was caused by a virus — a little bug. I was visiting home from college when I learned upon arrival that my nephew was...Reactions0reactionsComments4 comments
Surviving RegretI’ve been wondering for some time now if I’m the only one that feels as though I’m simply watching everyone else live their lives, while mine just seems to be...Reactions0reactionsComments0 comments
Tips for Nights Out With NarcolepsyIn a previous post, I spoke about my experiences of nights out and drinking alcohol. I've struggled with it and, at times, put myself in dangerous situations. Along the way...Reactions0reactionsComments2 comments
Finding Housing With a Narcolepsy Service DogWhen I found out that I had to be out of my current living situation in a month due to a lack of funding on my landlord’s end, my first...Reactions0reactionsComments2 comments
Becoming a Social Media AdvocateUsually, when we speak about social media, it is not in a very favourable manner. Social media has impacted society in many negative ways. That much is undeniable. But as...Reactions0reactionsComments2 comments
3 Ways to Live a Better Life With NarcolepsyOne way to live better with narcolepsy is to learn what is best for you. After my diagnosis of narcolepsy, I thought that my life would be what it was before...Reactions0reactionsComments3 comments
Losing Weight as a NarcolepticJust 2 years ago, at the peak of my narcolepsy symptom severity, I was at my highest weight ever. My BMI put me in the “morbidly obese” category, and I...Reactions0reactionsComments4 comments