SSI and Medicaid: Moving to a Place Based on Healthcare“What do you mean I’m not eligible for Medicare?” I groan into the phone. “I’m on Social Security, aren’t I?” At this...reactionscomments
Camping With NarcolepsyIt is tough being an outdoorsy person with a disability. This probably doesn’t come as a surprise. A disability is defined as...reactions1comment
Relationships and Narcolepsy: Managing EmotionsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring...reactions4comments
Approaching Workplace Accommodations – Part One How to approach my employer was one of the hardest decisions I faced after my diagnosis. Accommodations are required to meet the...reactions3comments
Narcolepsy Runs in the FamilyI’m pretty sure we all have those strange family stories that get passed down from generation to generation, but I often entertained...reactions21comments
Narcolepsy Changes Across the LifespanDifferent life stages can have an effect on medical conditions. This includes narcolepsy. Life changes can mean new symptoms, changes to medicines...reactions13comments
The “Missing Minutes” of NarcolepsyI stared at the time on my laptop screen. It read 3:55 pm. That could not be right. Where had the last...reactions6comments
The Cost of Looking "Fine" With NarcolepsyThe skills that help you survive narcolepsy can, unfortunately, also make others underestimate it. Let me offer you an example. A couple...reactionscomments
5 Ways I Keep Up With ChoresDaily life with narcolepsy can be difficult. There are many ways in which symptoms can impact us, including sleep attacks and brain...reactions4comments
What Are the Long-Term Effects of Narcolepsy?Disease burden is a term doctors use to talk about how much an illness impacts a person’s life. It will come as...reactionscomments
Narcolepsy and Feeling Chronically AloneLiving with a chronic illness is hard. Living with an invisible chronic illness like narcolepsy is hard and extremely lonely. As a...reactions6comments
5 of the Weirdest Places I've NappedLiving with narcolepsy means sometimes I have to rest my eyes in inconvenient places. There are times when I can fight through...reactions28comments
How Narcolepsy Styles MeFrom pajamas to out-the-door, this guide gives you a peek into my narcolepsy-related wardrobe choices. Narcolepsy makes it difficult for me to...reactions2comments
Falling Asleep in PublicIf you have narcolepsy, chances are you’ve been in this situation, too. You’re in the grocery store, looking at colorful cereal boxes...reactions4comments
Narcolepsy Medical Care Transitions and Challenges (Part 1 of 2)I recently helped a friend and fellow person with narcolepsy briefly by sharing my personal experience regarding medical provider transitions and challenges...reactionscomments
Narcolepsy Medical Care Transitions and Challenges (Part 2 of 2)Editor's note: Read part 1 here. Hypocretin deficiency is still not a true indicator of whether a person will have cataplexy and...reactions2comments
What Helps Me Wake Up EarlyMy diagnosis of narcolepsy did not happen until after I graduated from college. I was fortunate to land a job at the...reactions1comment
More Than Just Sleep: Honoring Narcolepsy AwarenessWelcome to Narcolepsy Awareness Month! This is a pivotal time for us to come together to dismantle the myths surrounding narcolepsy, advocate...reactionscomments
Can’t Sleep, Can’t Stay AwakeWhen I explain to people that I have narcolepsy, one common way people like to respond is by saying, “Wow, I’d love...reactions6comments
Behind the Scenes of Narcolepsy: The Struggle to Remember“Seriously, you forgot?” This is a phrase I have become accustomed to hearing often in the last few years. The most common...reactions17comments
