Let's Talk About Weight Issues and NarcolepsyNarcolepsy affects much more than sleep. It can impact weight as well. In fact, some research suggests that people with narcolepsy are more likely to live with weight issues such...reactionscomments
Narcolepsy, Disability, and Identity: Have I Become My Diagnosis?The longer I live with narcolepsy, the more I realize how I’ve had to adapt to life as a result of my symptoms. The list of things I have to...reactions3comments
Creating a Sleep-Friendly Routine for Children With NarcolepsyNarcolepsy can make it hard for kids to get good sleep. It affects how the brain controls sleep-wake cycles. This can lead to daytime sleepiness, sudden sleep attacks, and other...reactions2comments
Pediatric Narcolepsy: Myths and Facts You Should KnowThe word “narcolepsy” might bring to mind images of someone constantly yawning or falling asleep. While excessive daytime sleepiness (EDS) is a major symptom of narcolepsy, it is not the...reactionscomments
Explaining Narcolepsy to Siblings: A Guide for ParentsNarcolepsy can be tricky for adults to understand. It can be even harder for kids. If your child has narcolepsy, their siblings might have lots of questions. They might also...reactionscomments
Narcolepsy Organizations That Make a DifferenceLiving with narcolepsy can often feel like an isolating experience, but I’ve come to realize how powerful it is to find a community that truly understands. After years of struggling...reactionscomments
The Role of Sleep Studies in Diagnosing Pediatric NarcolepsySleep is essential for everyone, especially children. But what happens when a child's sleep patterns seem unusual? Sometimes, a sleep study can help doctors understand what is going on. These...reactionscomments
Another Day in the LifeI felt compelled to write another “A Day in the Life” piece about living with idiopathic hypersomnia. The first article I wrote detailing my day to day was about an...reactionscomments
Understanding Sleep-Related Hallucinations in Children With NarcolepsyImagine seeing a giant spider crawling on your wall. You reach out to swat it, but your hand goes right through. The spider disappears. This might sound like a scary...reactionscomments
My Narcolepsy Does Not Make Me A BurdenI not long ago read a journal article discussing the “challenges” of parenting a child with narcolepsy. At first, I could hardly believe what I was reading. Here were doctors...reactionscomments
The Hidden Power of Sunflower Lanyards: My Journey Through an Accessibility RevolutionAs someone living with narcolepsy, a hidden disability that most people can’t immediately identify, the sunflower lanyard has become an essential part of my life. Before the lanyard, I relied...reactionscomments
How Severe Is Your Child’s Narcolepsy?Narcolepsy is a sleep disorder that can affect adults and children alike. Doctors need a way to measure how severe a person’s narcolepsy is so they can track the condition...reactionscomments
How Nutrition and Exercise Can Help Manage Narcolepsy Symptoms in KidsNarcolepsy can make daily life challenging for kids. It can cause symptoms like excessive daytime sleepiness (EDS), cataplexy (sudden muscle weakness), sleep paralysis (being unable to move while waking up...reactionscomments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health is available...reactionscomments
Pediatric Narcolepsy Treatment: What Parents Should KnowNarcolepsy is a chronic condition that can make life challenging for kids. But several treatments can help. Sleep specialists who diagnose and treat pediatric narcolepsy can help you find the...reactionscomments
Communicating Narcolepsy NeedsNarcolepsy symptoms make life hard. And misunderstandings surrounding narcolepsy symptoms can make life harder! Effectively communicating our narcolepsy-related needs is very important. Effective communication is important for bridging the gap...reactions5comments
Life With and Without CataplexyImagine living life constantly on the edge, where a simple joke could cause your knees to buckle, or a surge of anger might send your body into paralysis. This was...reactions2comments
Personal Experience with Jet Lag and Narcolepsy ManagementI traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey was smooth, and I managed to stay awake...reactionscomments
I Don’t Want Your Medical AdviceI’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed by gluten, and once I stopped eating it...reactions7comments
Attending Conventions, With a Sleep DisorderIf you have met me, then you know that I am the biggest nerd possible. Video games, anime, DND, board games, etc.; you name it, I'm more than likely have...reactionscomments