Benefits of Narcolepsy Support GroupsI attended my first narcolepsy support group meeting in 2020. I was stunned to see the vibrancy and variety in people who attended. I felt incredibly validated while listening to...Reactions0reactionsComments2 comments
Fairy Tales Don't Always End in Happily Ever AfterFor many years, I heard about the "miracle drug" called Xyrem. People from the United States of America who used it were saying it contributed to the reason they regained...Reactions0reactionsComments1 comments
Shopping With Narcolepsy Is Friggin' HardA typical Tuesday morning might find me in the aisles of my local grocery store. Tiredness is etched underneath my eyes. If I have my service dog with me, she...Reactions0reactionsComments0 comments
Behind the Scenes of Narcolepsy: The Struggle to Remember“Seriously, you forgot?” This is a phrase I have become accustomed to hearing often in the last few years. The most common tones in which these words are uttered usually...Reactions0reactionsComments17 comments
Internalized AbleismAccording to the definition given by Britannica, ableism is a type of discrimination where able-bodied people are seen as normal and superior to those with a disability, resulting in prejudice...Reactions0reactionsComments3 comments
Are People With Narcolepsy Safe?“What if I am stopped by police and can’t understand their demands?” I ask my friend, after expressing my fear of police due to my hearing impairment. “I just don’t...Reactions0reactionsComments9 comments
Narcoleptic Nap Guide: Drowsy Driving Edition Part 2This article is part 2 of my Narcoleptic Nap Guide series. You can read part 1 where I share tips for reducing risk on the road. In this article, we...Reactions0reactionsComments1 comments
Narcolepsy and the Social Model of DisabilityAccording to England and Wales-based disability equality charity, Scope, The (social) model says that people are disabled by barriers in society, not by their impairment or difference. Barriers can be physical, like...Reactions0reactionsComments5 comments
Listen to the SignsThere are a few aspects of living with narcolepsy that the general public may not be aware of. I’m sure I have mentioned before about the misconceptions about living with...Reactions0reactionsComments10 comments
Narcolepsy and the Female OrgasmThe female orgasm. Those 3 words inspire strong though polarizing reactions. In many cultures, it is taboo. In some countries, it is feared and even hated. For example, some cultures...Reactions0reactionsComments4 comments
Community Views: Managing Brain FogLiving with narcolepsy involves managing a variety of symptoms. The most common symptoms are excessive daytime sleepiness, cataplexy, and sleep paralysis. Many people with narcolepsy also experience brain fog. Brain...Reactions0reactionsComments0 comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...Reactions0reactionsComments0 comments
A Purpose That MattersI believe everything in life happens for a reason, particularly those experiences we wish we could avoid. Advocacy for me is sharing my story, not only to raise awareness but...Reactions0reactionsComments16 comments
How Narcolepsy Leads to Disenfranchised GriefWhen we are diagnosed with narcolepsy, there is a common mixture of feelings that arise. It is incredibly validating to know that our experiences are real and not “all in...Reactions0reactionsComments4 comments
What the Narcissism Epidemic Means for People With Narcolepsy: Part 2According to The Narcissism Epidemic by Jean M. Twenge, PH.D. and W. Keith Campbell, PH.D., the narcissism epidemic in the United States has proliferated at the same rate as the...Reactions0reactionsComments0 comments
Somewhere We BelongLet me begin by stating that I truly am proud to belong to this community. I have many friends who live with a variety of different conditions and, therefore, am...Reactions0reactionsComments2 comments
Narcolepsy and 'Mosquitos' Part 2: Everyday Phrases That Can Feel Like MicroaggressionsIn part one of this series, I looked into microaggressions and the things that people commonly say to me regarding my narcolepsy that can have an ableist sting to them...Reactions0reactionsComments9 comments
What the Narcissism Epidemic Means for People With Narcolepsy: Part 1Surely you’ve heard of the obesity epidemic. However, have you heard of the narcissism epidemic? According to The Narcissism Epidemic by Jean M. Twenge, PH.D. and W. Keith Campbell, PH.D...Reactions0reactionsComments0 comments
More Than Just TiredNarcolepsy is so much more than just being tired. A lot of people with narcolepsy have to take medication to help them get the deep sleep they need. There are...Reactions0reactionsComments2 comments
International Travel With NarcolepsyTravel excites me for 2 main reasons: the anticipation of new adventures and the joy of seeing familiar faces. Travelling can be a stressful experience for me because no matter...Reactions0reactionsComments3 comments