How Narcolepsy Leads to Disenfranchised GriefWhen we are diagnosed with narcolepsy, there is a common mixture of feelings that arise. It is incredibly validating to know that our experiences are real and not “all in...Reactions0reactionsComments4 comments
What the Narcissism Epidemic Means for People With Narcolepsy: Part 2According to The Narcissism Epidemic by Jean M. Twenge, PH.D. and W. Keith Campbell, PH.D., the narcissism epidemic in the United States has proliferated at the same rate as the...Reactions0reactionsComments0 comments
Somewhere We BelongLet me begin by stating that I truly am proud to belong to this community. I have many friends who live with a variety of different conditions and, therefore, am...Reactions0reactionsComments2 comments
Narcolepsy and 'Mosquitos' Part 2: Everyday Phrases That Can Feel Like MicroaggressionsIn part one of this series, I looked into microaggressions and the things that people commonly say to me regarding my narcolepsy that can have an ableist sting to them...Reactions0reactionsComments9 comments
What the Narcissism Epidemic Means for People With Narcolepsy: Part 1Surely you’ve heard of the obesity epidemic. However, have you heard of the narcissism epidemic? According to The Narcissism Epidemic by Jean M. Twenge, PH.D. and W. Keith Campbell, PH.D...Reactions0reactionsComments0 comments
More Than Just TiredNarcolepsy is so much more than just being tired. A lot of people with narcolepsy have to take medication to help them get the deep sleep they need. There are...Reactions0reactionsComments2 comments
International Travel With NarcolepsyTravel excites me for 2 main reasons: the anticipation of new adventures and the joy of seeing familiar faces. Travelling can be a stressful experience for me because no matter...Reactions0reactionsComments3 comments
I'm a Dreamer, and That Is My StrengthImagine if a TV show production team had to come up with loads of new material every day for the length of an entire lifespan. Writers and producers would struggle...Reactions0reactionsComments2 comments
Narcolepsy and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...Reactions0reactionsComments2 comments
Narcolepsy and 'Mosquitos’ Part 1: Everyday Phrases That Can Sting When You Have NarcolepsyHaving narcolepsy is a daily struggle. One of the less often spoken-about difficulties can come in the form of ableist microaggressions. A microaggression is a “subtle, often unintentional, form of...Reactions0reactionsComments6 comments
Living With Idiopathic Hypersomnia: Tips for Managing Excessive Daytime SleepinessThe main symptom of idiopathic hypersomnia (IH) is excessive daytime sleepiness (EDS). This can make it hard to carry out basic tasks during the day. People with IH often feel...Reactions0reactionsComments0 comments
Arizonan Summers Make My Narcolepsy UnlivableI’ve lived in Arizona for my entire life. The dry, baking heat has enveloped me since I was a child. Just like any warm-blooded human would do, I spent my...Reactions0reactionsComments6 comments
School AccommodationsGetting accommodations for school can be hard unless you have a concrete diagnosis. When I was in high school and even middle and elementary school, I never got accommodations or...Reactions0reactionsComments5 comments
Wash, Rinse, and Repeat: Adaptation and RoutinesSometimes life feels like an endless repeat cycle that starts and ends at the same point. I can hear the little voice in my head tell me when I am...Reactions0reactionsComments3 comments
The American Dream Is a LieI grew up in a suburban neighborhood in the United States. My father is the hardest working person I know, and yet we struggled financially. I was raised to believe...Reactions0reactionsComments7 comments
Flights, Medication, and NarcolepsyTraveling has never been something that I enjoy. Well, I enjoy the destination, but the journey getting there sucks. As a child, I often got car sick when sitting in...Reactions0reactionsComments2 comments
Narcolepsy.Sleep-Disorders.net Celebrates 1 Year!Happy 1-year anniversary to our community! Narcolepsy.Sleep-Disorders.net launched in June 2020, and it has been an amazing ride. None of this would be possible without each and every one of...Reactions0reactionsComments0 comments
Narcolepsy and ComorbiditiesIt has been said that people with narcolepsy often have comorbidities, which means someone has the presence of one or more additional chronic conditions. I have both fibromyalgia and migraines...Reactions0reactionsComments4 comments
Yes, I Do Use Medical CannabisIt is a starry Friday night, and I am sitting on my front patio twisting a funny-looking cigarette in my hands. The scent of the pine trees is distinct underneath...Reactions0reactionsComments8 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like narcolepsy can mean...Reactions0reactionsComments0 comments