Behind the Scenes of Narcolepsy: The Hidden Dangers“Dangerous” is a word most would probably not associate with narcolepsy. It’s just a sleep disorder, right? What could possibly be dangerous about a sleep disorder? Although I would prefer...reactions9comments
Camping With NarcolepsyIt is tough being an outdoorsy person with a disability. This probably doesn’t come as a surprise. A disability is defined as a condition that impacts one or more life...reactions1comment
The Sun Won't SetI recently went on an international trip to Sweden to visit my brother. If you haven’t already, you can read my article about traveling with narcolepsy. Thankfully, I managed to...reactions4comments
Benefits of Narcolepsy Support GroupsI attended my first narcolepsy support group meeting in 2020. I was stunned to see the vibrancy and variety in people who attended. I felt incredibly validated while listening to...reactions2comments
Fairy Tales Don't Always End in Happily Ever AfterFor many years, I heard about the "miracle drug" called Xyrem. People from the United States of America who used it were saying it contributed to the reason they regained...reactions1comment
Shopping With Narcolepsy Is Friggin' HardA typical Tuesday morning might find me in the aisles of my local grocery store. Tiredness is etched underneath my eyes. If I have my service dog with me, she...reactionscomments
Behind the Scenes of Narcolepsy: The Struggle to Remember“Seriously, you forgot?” This is a phrase I have become accustomed to hearing often in the last few years. The most common tones in which these words are uttered usually...reactions17comments
Internalized AbleismAccording to the definition given by Britannica, ableism is a type of discrimination where able-bodied people are seen as normal and superior to those with a disability, resulting in prejudice...reactions3comments
Are People With Narcolepsy Safe?“What if I am stopped by police and can’t understand their demands?” I ask my friend, after expressing my fear of police due to my hearing impairment. “I just don’t...reactions9comments
Narcoleptic Nap Guide: Drowsy Driving Edition Part 2This article is part 2 of my Narcoleptic Nap Guide series. You can read part 1 where I share tips for reducing risk on the road. In this article, we...reactions1comment
Narcolepsy and the Social Model of DisabilityAccording to England and Wales-based disability equality charity, Scope, The (social) model says that people are disabled by barriers in society, not by their impairment or difference. Barriers can be physical, like...reactions5comments
Listen to the SignsThere are a few aspects of living with narcolepsy that the general public may not be aware of. I’m sure I have mentioned before about the misconceptions about living with...reactions10comments
Narcolepsy and the Female OrgasmThe female orgasm. Those 3 words inspire strong though polarizing reactions. In many cultures, it is taboo. In some countries, it is feared and even hated. For example, some cultures...reactions4comments
Community Views: Managing Brain FogLiving with narcolepsy involves managing a variety of symptoms. The most common symptoms are excessive daytime sleepiness, cataplexy, and sleep paralysis. Many people with narcolepsy also experience brain fog. Brain...reactionscomments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...reactionscomments
A Purpose That MattersI believe everything in life happens for a reason, particularly those experiences we wish we could avoid. Advocacy for me is sharing my story, not only to raise awareness but...reactions16comments
How Narcolepsy Leads to Disenfranchised GriefWhen we are diagnosed with narcolepsy, there is a common mixture of feelings that arise. It is incredibly validating to know that our experiences are real and not “all in...reactions4comments
What the Narcissism Epidemic Means for People With Narcolepsy: Part 2According to The Narcissism Epidemic by Jean M. Twenge, PH.D. and W. Keith Campbell, PH.D., the narcissism epidemic in the United States has proliferated at the same rate as the...reactionscomments
Somewhere We BelongLet me begin by stating that I truly am proud to belong to this community. I have many friends who live with a variety of different conditions and, therefore, am...reactions2comments
Narcolepsy and 'Mosquitos' Part 2: Everyday Phrases That Can Feel Like MicroaggressionsIn part one of this series, I looked into microaggressions and the things that people commonly say to me regarding my narcolepsy that can have an ableist sting to them...reactions9comments