Hiking With Narcolepsy: Managing Symptoms on the TrailA forest of greens and browns surrounds me. Dirt crunches beneath my boots. My German Shepherd service dog is happily pulling me along the trail. I am passing a trail...Reactions0reactionsComments4 comments
My New Role in the Narcolepsy CommunityWhen I first started going to online support groups with Wake Up Narcolepsy, I never would have guessed I would be where I am today. I remember my first ever...Reactions0reactionsComments6 comments
Paperwork Can Be Challenging!I was involved in a serious car accident 7 months ago. We were in downtown Houston on the interstate and were stopped in traffic. The person behind us did not...Reactions0reactionsComments2 comments
Am I Unreliable Now?It’s 4 PM, and I am exhausted. Earlier I’d driven twice in one day, which is more than I can typically handle. My roommate pouts across the room after I’d...Reactions0reactionsComments4 comments
Finding the Right Doctor (Part 1): What Poor Care Looks LikeI’m sure a lot of women will agree that we don’t always get fair treatment from doctors. Many times our concerns are brushed aside or flat out denied. We are...Reactions0reactionsComments0 comments
Xywav® (calcium, magnesium, potassium, and sodium oxybate) Approved for Idiopathic Hypersomnia in AdultsOn August 12, 2021, the U.S. Food and Drug Administration (FDA) approved Xywav® (calcium, magnesium, potassium, and sodium oxybate) oral solution to treat adults with idiopathic hypersomnia (IH). There are...Reactions0reactionsComments0 comments
Crying Over Spilled MilkYou know those days where you feel like you are being tested by the universe? Anything and everything that could go wrong seems to be going wrong, and you are...Reactions0reactionsComments4 comments
What Is Automatic Behavior in Narcolepsy?Automatic behavior is when someone experiences a temporary brief sleep episode during an activity (e.g., eating and writing) and automatically continues with the activity for a few seconds or minutes...Reactions0reactionsComments32 comments
Story Sharing: Working Through Imposter Syndrome and Internal GatekeepingBefore starting working as an advocate, I had spent more than 2 years unemployed. This was due to a combination of factors, but it mostly boiled down to ill health...Reactions0reactionsComments23 comments
Gaming With NarcolepsyThe world of gaming is a vibrant, albeit intimidating, space. The intersectional nature of my identity greatly impacts my experience. As a gamer who identifies as female and is a...Reactions0reactionsComments6 comments
Why I Choose Patience (Even When It's Hard)“Wow, I wish I could fall asleep whenever I want to.” “You get to take naps during work? You’re so lucky!” “I can’t tell if I have narcolepsy or 2...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like narcolepsy. Often, we...Reactions0reactionsComments0 comments
Community Views: The Impact of Narcolepsy SymptomsNarcolepsy has deep and lasting consequences for daily living. Many situations, whether at work, home, or school, are made more challenging by narcolepsy symptoms. To better understand the impact of...Reactions0reactionsComments0 comments
The Concept of AcceptanceWhat is acceptance? The Oxford Learner's Dictionary describes it as “The quality of being willing to accept an unpleasant or difficult situation.” Acceptance is essentially a common and unremarkable word...Reactions0reactionsComments10 comments
Narcolepsy and Mental IllnessContent Note: This article mentions suicide ideation. If you or a loved one are experiencing suicidal thoughts, there are resources available for support including the National Suicide Prevention Lifeline (1-800-273-8255)...Reactions0reactionsComments2 comments
College and NarcolepsyI recently started going to college again this summer, and I am full-time. This is the first time I have been in school since before my narcolepsy diagnosis. This time...Reactions0reactionsComments25 comments
'Sleepiness Is Not Laziness' The Way We Act in Our Dreams Is Proof of That!The narcolepsy community has long used this phrase. This is because, unfortunately, a lot of people still think of sleepiness this way. So many of us are shamed for our...Reactions0reactionsComments6 comments
Behind the Scenes of Narcolepsy: The Hidden Dangers“Dangerous” is a word most would probably not associate with narcolepsy. It’s just a sleep disorder, right? What could possibly be dangerous about a sleep disorder? Although I would prefer...Reactions0reactionsComments9 comments
Camping With NarcolepsyIt is tough being an outdoorsy person with a disability. This probably doesn’t come as a surprise. A disability is defined as a condition that impacts one or more life...Reactions0reactionsComments1 comments
The Sun Won't SetI recently went on an international trip to Sweden to visit my brother. If you haven’t already, you can read my article about traveling with narcolepsy. Thankfully, I managed to...Reactions0reactionsComments4 comments