Behind the Red DoorImagine laying in your bed awake, but completely unable to move, or speak, while intruders approach your bedroom. You just lay there passively waiting for it to be over while...Reactions0reactionsComments2 comments
Relationships and Narcolepsy: Disclosing While DatingWhen it comes to relationships, every couple will have their issues – but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments2 comments
What Does It Mean to Be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading this now. You are not alone if you...Reactions0reactionsComments0 comments
Narcoleptic Nap Guide: Drowsy Driving Edition Part 1Have you ever experienced the following while behind the wheel of a car: Or maybe you've found yourself nodding away while at the wheel of the car, despite feeling rested...Reactions0reactionsComments11 comments
Diving in Your SoupPicture this: Sicily 1956...Oh, wait. That’s a Golden Girls story. Presuming you all know the TV show The Golden Girls? Anyway, let’s try to picture this instead: Cannes in France...Reactions0reactionsComments0 comments
Putting Negative Self-Talk to SleepAs a person with narcolepsy, I’ve often been told that I’m strong and resilient for getting through each day. It’s true, I won’t deny that overcoming the many obstacles that...Reactions0reactionsComments3 comments
COVID-19 Updates, July 16: Updates on People at Risk, Testing, Reopening, and a VaccineEven after months of navigating life in the COVID-19 era, keeping up with new information and news can be overwhelming. Below are some of the latest developments surrounding COVID-19 for...Reactions0reactionsComments0 comments
Narcolepsy in the WorkplaceI started working at my current employer as an intern. This is where I was first introduced to the hustle, 8 AM meetings, and endless amounts of coffee. Coffee became...Reactions0reactionsComments0 comments
My Narcolepsy DiagnosisWhat? I have narcolepsy? Like the girl in that movie that falls asleep in her soup? I remember this being the first thing I thought of when I was diagnosed...Reactions0reactionsComments2 comments
Skin and Body Temperature and NarcolepsyNarcolepsy can be a difficult condition where people experience both daytime and nighttime symptoms connected to waking up and falling asleep. Daytime symptoms can include excessive sleepiness and sudden muscle...Reactions0reactionsComments0 comments
You Aren’t Lazy! You Have Narcolepsy!I can fall asleep within minutes of laying down and struggle to stay motivated throughout my day. If you come to my house, it’s possible that you might find me...Reactions0reactionsComments8 comments
Scrolling for EnergyAs I grow another year older, I feel my sleepiness getting stronger. I look back on my younger years and wonder how I was able to take 5 college courses...Reactions0reactionsComments5 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with narcolepsy. New here? We invite you to explore what...Reactions0reactionsComments0 comments
Half Asleep but Still DreamingEach day that I live with narcolepsy, I am learning how to better describe so many of the bizarre symptoms that I experience on a day to day basis. The...Reactions0reactionsComments23 comments
Narcolepsy Changes Across the LifespanDifferent life stages can have an effect on medical conditions. This includes narcolepsy. Life changes can mean new symptoms, changes to medicines, and different ways of managing your illness. Here...Reactions0reactionsComments11 comments
School and Narcolepsy: Tips for Parents of Young StudentsHaving a young child diagnosed with narcolepsy can be overwhelming, particularly when faced with managing narcolepsy and school. Fortunately, there are ways to help make the process feel possible. Here...Reactions0reactionsComments0 comments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for...Reactions0reactionsComments0 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency...Reactions0reactionsComments0 comments
Why Participate in a Clinical Trial?Medical research often uses clinical trials in order to find new information about diseases and treatments. Clinical trials are studies that evaluate medical, surgical, or behavioral intervention. It is often...Reactions0reactionsComments0 comments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data...Reactions0reactionsComments0 comments