Managing Guilt and Privilege as a Narcolepsy AdvocateFor anyone who has read my work in the past, you may be aware that I’ve been taking a new medication for...reactions4comments
Mom Life and Narcolepsy: Elementary SchoolWelcome to part 4 of my series on "Mom Life and Narcolepsy." As we discuss the elementary years, I want to share...reactionscomments
If My Diagnosis Journey Would Have Gone DifferentlyMy diagnosis journey was a long 20 years full of misdiagnoses and misunderstandings. When I was young and until I was diagnosed...reactions4comments
Terrible, Horrible, No Good, Very Sleepy DayMatt and the terrible, horrible, no good, very sleepy day. If you live with narcolepsy, chances are you have experienced one of...reactions4comments
Wakix® Becomes First and Only Non-Controlled Drug Approved for Cataplexy Due to NarcolepsyThe U.S. Food and Drug Administration (FDA) has approved Wakix® (pitolisant) for the treatment of cataplexy in adults with narcolepsy. This makes...reactionscomments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone...reactions1comment
Learning How it Feels to SleepAs a person with narcolepsy, I’ve been sleeping a lot of my life away ever since I was 13. No one who...reactions9comments
Relationships and Narcolepsy: 3 Important ConversationsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring...reactionscomments
Household Tips Part 2: Daily Routines and PlanningIf you find yourself struggling to get things done around the house, here are some things I do to help myself so...reactions1comment
Eating Healthy When You Are So Tired You Can't Get off the CouchEver have a day or month or even a year where you are so tired it seems impossible to eat healthy? Yeah...reactions1comment
Mom Life and Narcolepsy: PregnancyNarcolepsy is exhausting. Pregnancy is exhausting. Put them together and a level of exhaustion that is almost paralyzing becomes a reality. My...reactions2comments
Your Voice, Your Vote: Advocating for ChangeThe goal of this article is to bring about awareness of issues related to people with disabilities and to encourage eligible voters...reactions2comments
Where Do I Start? How to Share Your Narcolepsy Story“I want to share my story, but don’t know how to start…” If this sounds like you, you’re not alone. We’ve heard...reactionscomments
My Journey With NarcolepsyMy name is Gabrielle, I am a full-time music teacher living in Kentucky. I have been diagnosed with narcolepsy since 2018 and...reactions2comments
Take the Connected Health Survey!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to mobile apps, we...reactionscomments
Others May Not “See” It. But I Feel It.During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go...reactionscomments
FDA Makes Way For New Experimental Drugs to Fight COVID-19On March 19, the U.S. Food and Drug Administration (FDA) approved the testing of two drugs, chloroquine (hydroxychloroquine) and remdesivir, to treat...reactionscomments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United...reactionscomments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this...reactions3comments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show...reactionscomments
