New Narcolepsy, New LifeIt is possible to be "born with" narcolepsy and never experience life without it. However, I was not born with narcolepsy. My narcolepsy onset in my college years following a...Reactions0reactionsComments0 comments
Support SystemsIn January 2024, it will be 4 years since being officially diagnosed and starting my idiopathic hypersomnia advocacy journey. When I started doing my advocacy work, I felt alone and...Reactions0reactionsComments0 comments
Community Views: What I Wish My Friends and Family KnewFor many people with narcolepsy, finding comfort and support in friends and family is an essential part of the condition journey. When those living with narcolepsy encounter a lack of...Reactions0reactionsComments0 comments
Long Road to TreatmentIt can take months to years to get diagnosed with narcolepsy. For myself, once I got my narcolepsy diagnosis, I thought the road was over. 'If we know what is...Reactions0reactionsComments2 comments
My Dogs Have Saved Me From MyselfI know that taking care of animals can be tough at times, but the benefit we gain from having them in our lives is priceless! When my narcolepsy started becoming...Reactions0reactionsComments3 comments
4 Ways to Survive the Holidays With NarcolepsyLiving with narcolepsy means that we have to live life around our condition. Unfortunately, we don’t get the holidays off from our symptoms! Here are some ways that I make...Reactions0reactionsComments0 comments
The "Weight" of NarcolepsyWhen I was diagnosed with narcolepsy at 28 years old, there were many things I worried about... but my weight was certainly not one of them. Like most recently diagnosed...Reactions0reactionsComments0 comments
Falling Asleep in PublicIf you have narcolepsy, chances are you’ve been in this situation, too. You’re in the grocery store, looking at colorful cereal boxes, when suddenly it hits you – a sleep...Reactions0reactionsComments4 comments
Narcolepsy: A Comorbidity Magnet?Recently I have been unable to get one question out of my mind: Is narcolepsy a magnet for other illnesses, disorders, and diseases? It has led to me to trying to answer another...Reactions0reactionsComments14 comments
Is There Anything Positive About Narcolepsy?I was recently asked to say something positive about narcolepsy. I must admit, I could not come up with anything right there on the spot. This disease has affected so...Reactions0reactionsComments4 comments
Snuggle Up With a Good BookOne of my favorite hobbies has always been reading. In elementary school, I spent my lunch period hanging out with the school librarian. Usually we chatted about the newest books...Reactions0reactionsComments1 comments
When Friends Understand… or Don’tThe longer I live, the more friends I have. (Not all at once, though.) My social life started suffering when my narcolepsy onset. There were many years where I just...Reactions0reactionsComments3 comments
Humour as a Coping Mechanism for NarcolepsyNarcolepsy is no laughing matter. As a matter of fact, no chronic illness is something to laugh about. Having said this, I do believe that humour and chronic illness aren’t...Reactions0reactionsComments0 comments
No, You’re NOT Tired Like Me!As a person with narcolepsy, I am always tired to a certain degree. When people ask me how I am, a common response I have for them is, "I’m good...Reactions0reactionsComments3 comments
Yes, I Can DrivePeople automatically assume a lot of things when I first tell them I have idiopathic hypersomnia (IH). It causes them to jump to thinking about all the things that I...Reactions0reactionsComments10 comments
Narcolepsy Extrovert to IntrovertI recently heard this analogy: An introvert wakes up in the morning with 5 coins, and every interaction takes a coin, and at the end of the day, they're depleted. An...Reactions0reactionsComments3 comments
Narcolepsy Symptoms Can Be Scary!It’s that time of year again — the air is turning chilly, pumpkins are popping up on every corner, steaming mugs of tea and coffee fill us with warmth... Spooky...Reactions0reactionsComments0 comments
My Limitations Are Up to Me!I feel like I’ve had to go back into self-advocating for myself once more. It is not that I ever quit sticking up for myself, but I started to let...Reactions0reactionsComments0 comments
A Day in the Life: Idiopathic HypersomniaBeing someone with idiopathic hypersomnia (IH), it causes me to sleep an excessive amount. Sometimes detailing my day-to-day habits is enlightening to outsiders to see how I operate. While this...Reactions0reactionsComments0 comments
Dealing With Narcolepsy Stigma Within the FamilyLiving with narcolepsy isn't just an individual journey; it's a shared experience within the intricate web of family dynamics. While we hope for understanding and support from our loved ones...Reactions0reactionsComments4 comments