I Am Held Captive by My CataplexyI’ve lost someone close to me, and I am having a hard time both physically and emotionally handling it. Experiencing grief when you have a condition such as narcolepsy feels...Reactions0reactionsComments0 comments
Should You Live Alone With Narcolepsy?When I express how much I want to live on my own again, people always ask me, “Is it a good idea to live alone with narcolepsy?” It’s a question...Reactions0reactionsComments0 comments
Community Perspectives: Narcolepsy in Love, Life, and RelationshipsIt's no secret in this community that living with narcolepsy and maintaining relationships at the same time can come with unique challenges. Many people often associate the month of February...Reactions0reactionsComments3 comments
Narcolepsy and My Chaotic Relationship With FoodLiving with narcolepsy means that I often struggle to take care of my basic needs. Naturally, narcolepsy has made my relationship with food difficult at times. When my narcolepsy first...Reactions0reactionsComments0 comments
Navigating Love and Narcolepsy: A Guide to Dating Someone With NarcolepsyDating someone with narcolepsy can bring unique challenges, but with understanding, communication, and empathy, you can build a strong and fulfilling relationship. Here's a guide to help you navigate the...Reactions0reactionsComments0 comments
How Narcolepsy Affects Financial IndependenceAside from the condition itself, there's an added burden tied to narcolepsy that hardly receives recognition — the struggle to be financially independent. In an ideal world, money would be...Reactions0reactionsComments0 comments
Fight or Flight: A Narcoleptic's Reaction to PainNarcolepsy will rear its quirky little head at the most inconvenient times. It doesn’t care where we are or what we are doing. If you have cataplexy, like I do...Reactions0reactionsComments0 comments
Finding the Right Narcolepsy Treatment Plan Is Like Building a HouseFinding the right narcolepsy treatment plan is like building a house. When I was first diagnosed with narcolepsy, I hoped there would be a quick fix — a pill I...Reactions0reactionsComments4 comments
Narcolepsy and the Cloak of IsolationAs the years go by, there's a subtle weight that descends, a deepening sensation of isolation that accompanies the unrelenting hold of narcolepsy. It is more than the neverending struggle...Reactions0reactionsComments0 comments
Picking Up the Controller: IH and Video GamesWhen I was a kid, I loved playing video games. The first games I can remember getting my hands on were Barbie Horse Adventures and Sims 3: Date Night. My...Reactions0reactionsComments0 comments
This Can't Be Happening to MeRecently, I was experiencing some tingling in my foot. I am trying to do a better job of noticing when my body is communicating with me. I am 26, and...Reactions0reactionsComments0 comments
Grooming With NarcolepsyGrooming with narcolepsy isn’t for the faint of heart. As a person with narcolepsy, every little bit of effort that I dedicate to one part of my life is unable...Reactions0reactionsComments0 comments
To Work or Not — That IS the Question!I received notice today that vocational rehab has a spot open for me. This program is my last attempt to enter the workforce again. I will be starting with one...Reactions0reactionsComments1 comments
New Year, New Goals: Knowing Your WorthWe have come to the end of 2023 and are moving into 2024. As with millions around the globe, a new year brings new goals, resolutions, ideas, and targets. We...Reactions0reactionsComments0 comments
The Curious Link Between Narcolepsy and ADHDI’ve realised that since I was diagnosed with narcolepsy, I’ve learned so much about myself, and I continue to do so the more time goes by. For a while, I...Reactions0reactionsComments32 comments
New Narcolepsy, New LifeIt is possible to be "born with" narcolepsy and never experience life without it. However, I was not born with narcolepsy. My narcolepsy onset in my college years following a...Reactions0reactionsComments0 comments
Support SystemsIn January 2024, it will be 4 years since being officially diagnosed and starting my idiopathic hypersomnia advocacy journey. When I started doing my advocacy work, I felt alone and...Reactions0reactionsComments0 comments
Community Views: What I Wish My Friends and Family KnewFor many people with narcolepsy, finding comfort and support in friends and family is an essential part of the condition journey. When those living with narcolepsy encounter a lack of...Reactions0reactionsComments0 comments
Long Road to TreatmentIt can take months to years to get diagnosed with narcolepsy. For myself, once I got my narcolepsy diagnosis, I thought the road was over. 'If we know what is...Reactions0reactionsComments2 comments
My Dogs Have Saved Me From MyselfI know that taking care of animals can be tough at times, but the benefit we gain from having them in our lives is priceless! When my narcolepsy started becoming...Reactions0reactionsComments3 comments