Narcolepsy and GriefGrief is something that I have been used to from a young age. It is extremely hard to go through, but narcolepsy and grief feels like a different ball game...Reactions0reactionsComments1 comments
Managing Stress and Narcolepsy: Part 1Narcolepsy and stress often go hand-in-hand. Cataplexy is a temporary paralysis that people with type 1 narcolepsy (like me) experience. It is triggered by heightened emotional states. Other ways in...Reactions0reactionsComments4 comments
Narcolepsy and Feeling Chronically AloneLiving with a chronic illness is hard. Living with an invisible chronic illness like narcolepsy is hard and extremely lonely. As a narcolepsy advocate and support group host, I have...Reactions0reactionsComments4 comments
5 Ways I Am Improving My Life With Narcolepsy This YearAll over my social media in recent months, I saw quotes like "new year, new me," or "out with the old, in with the new." Everyone was so pumped up...Reactions0reactionsComments1 comments
7 Subtle Signs of What Might Be NarcolepsyWhen most people think of narcolepsy, they immediately envision someone who falls asleep suddenly, anywhere, anytime. However, narcolepsy is much more than excessive daytime sleepiness; there are numerous other symptoms...Reactions0reactionsComments23 comments
Limitless, Yet LimitedI have a thirst for learning. I am always interested in developing a new skill, doing something new. I get restless and bored with the mundane. I crave a little...Reactions0reactionsComments0 comments
Recovering With Narcolepsy: A Tale of 2 ConditionsHave you had the pleasure of getting shingles? "Pleasure" is not the right word, of course. There is a lot of pain, itching, and an ugly red-bumped rash. Very couture...Reactions0reactionsComments5 comments
Dating and Idiopathic HypersomniaWith another Valentine's Day come and gone, the holiday reminds me about the struggles I’ve had with dating due to my idiopathic hypersomnia (IH). Before I was diagnosed, I was...Reactions0reactionsComments2 comments
Health Leader Roundtable: Narcolepsy and Sleep Health AwarenessNarcolepsy is a sleep disorder impacting between 135,000 and 200,000 people in the United States alone. With symptoms like excessive daytime sleepiness and insomnia, it's no wonder many people with...Reactions0reactionsComments0 comments
My Struggles With Sleep and NutritionI have recently realized that my relationship with sleep and nutrition is not the best. I struggle with a fear of missing out, and it often prevents me from prioritizing...Reactions0reactionsComments1 comments
5 of the Weirdest Places I've NappedLiving with narcolepsy means sometimes I have to rest my eyes in inconvenient places. There are times when I can fight through the overwhelming urge to sleep, and I’m grateful...Reactions0reactionsComments28 comments
The Evolution of My CataplexyMost people I’ve spoken to have expressed that one of their first symptoms of narcolepsy was excessive daytime sleepiness. This was not my case. The first symptom I remember experiencing...Reactions0reactionsComments21 comments
Searching for DiversityI have been actively seeking out fellow people with narcolepsy for over 2 decades. I started out in online groups where I was talking with people online. Most of the...Reactions0reactionsComments2 comments
"Prove You're Disabled"... Again!The first time I went through the application process for disability benefits, it was too much to handle. I received many denial letters. I had to get a lawyer. I...Reactions0reactionsComments5 comments
Can Stress Trigger Narcolepsy Symptoms?Narcolepsy is a sleep disorder that makes it hard to stay awake. It causes excessive daytime sleepiness (EDS). EDS can make it hard to work, be social, or have relationships...Reactions0reactionsComments0 comments
"Narcolepsy? What's That?"The number of people I know with narcolepsy grew greatly during the COVID-19 pandemic. Pre-pandemic I had met a few people with narcolepsy by attending the Narcolepsy UK conferences, but...Reactions0reactionsComments0 comments
7 Techniques I Use To Avoid Sleep ParalysisIf you’ve experienced sleep paralysis, you most likely know how terrifying these experiences can be. They can range from seeing disturbing entities to feeling them suffocating you. It goes without...Reactions0reactionsComments4 comments
"I Don't Have Narcolepsy?": Lauryn's JourneyI was back in my dorm room after finishing my classes for the day. The time slot after my classes was my dedicated nap time, but before I could get...Reactions0reactionsComments3 comments
The Narcoleptic Insomniac ParadoxI sleep a lot. I fall asleep on the bus, the train, in waiting rooms, in church. Slightly busy days for the average person can completely wipe me out. I...Reactions0reactionsComments15 comments
Blame My Narcolepsy, NOT ME!Living with narcolepsy can be very difficult. Depending on symptom severity and the effectiveness of the treatment plans in place, the experience of narcolepsy can affect every part of the...Reactions0reactionsComments5 comments