Blame My Narcolepsy, NOT ME!Living with narcolepsy can be very difficult. Depending on symptom severity and the effectiveness of the treatment plans in place, the experience of narcolepsy can affect every part of the...Reactions0reactionsComments5 comments
Community Views: The Most Surprising Symptoms of NarcolepsyLiving with narcolepsy includes navigating many symptoms. It is a daily challenge. The symptoms can significantly alter your life. We were curious about the symptoms you experience with narcolepsy. We...Reactions0reactionsComments5 comments
3 Typical Reactions to NarcolepsyWhen I was first diagnosed with narcolepsy in 2018, I would have never pictured myself talking openly about it to anyone, let alone strangers. It wasn’t until 2020, after publishing...Reactions0reactionsComments4 comments
Falling Into Another DiagnosisI have been living with obstructive sleep apnea for about 12 years. Whilst I had heard of sleep apnea before I was diagnosed and was aware of some of the...Reactions0reactionsComments4 comments
Narcolepsy Is Not "Just Falling Asleep"So many people don't know what narcolepsy is. Those who do have limited knowledge and understanding. Thanks to its portrayal in the media, a lot of people think that narcolepsy...Reactions0reactionsComments5 comments
How To Tell Your Employer About Your NarcolepsyWorking a full-time or part-time job with narcolepsy can be highly challenging. Not knowing how they may react, or how you may be treated afterward, are only some of the...Reactions0reactionsComments10 comments
Strategies For Managing Automatic BehaviorsAs a person with severe type 1 narcolepsy, the question isn’t whether I will experience automatic behaviors or not – the question is when I will experience automatic behaviors. If...Reactions0reactionsComments2 comments
Cataplexy vs. MeI have been living and battling with my cataplexy since before my diagnosis 20 years ago. In the early days before my medication was regulated, I felt like the cataplexy...Reactions0reactionsComments2 comments
10 Ways To Self-AdvocateWe talk a lot about spreading awareness and advocacy in this community, and while both are so important, in order to do these we need to first be able to...Reactions0reactionsComments2 comments
When Dreaming Is Too MuchIf you have narcolepsy like me, then you might also have vivid dreams. Chronic vivid dreams are one symptom of many that might indicate narcolepsy. Sometimes these dreams are full...Reactions0reactionsComments0 comments
New Year, Same Old NarcolepsyRinging in the New Year can be a great opportunity to set intentions for the upcoming year. After the whirlwind of the holidays, I can end up totally exhausted. From...Reactions0reactionsComments1 comments
The Full Impact of NarcolepsyThere are so many things that make our journey with narcolepsy more difficult than it has to be, but the biggest one for me is the lack of information we...Reactions0reactionsComments2 comments
Your Year in Review With NarcolepsyAs we all prepare to ring in the New Year of 2023, it's the perfect time to connect with each other as a community to share the trials and triumphs...Reactions0reactionsComments2 comments
What Your Preferred Caffeinated Drink Says About Your DayIf you have narcolepsy, chances are that you consume caffeine. Stimulants are one of the treatment options available for narcolepsy, and caffeine is a cheap over-the-counter stimulant option. Narcolepsy symptoms...Reactions0reactionsComments2 comments
Narcolepsy: Don’t Judge a Book by Its Cover"Don’t judge a book by its cover" is one of the most cliché phrases, but it’s still one of my favourite sayings because it relates to invisible illnesses so perfectly...Reactions0reactionsComments2 comments
The War Between Sleeping and DreamingAs a person with narcolepsy, I sleep a lot, and I am almost always sleepy. It is often a surprise to people when I say I do not enjoy sleeping...Reactions0reactionsComments1 comments
Conducting My Own Narcolepsy Research: The FindingsIn a previous post, I wrote about conducting my research project for my master's degree in health psychology. My research involved interviewing individuals with narcolepsy to explore the lived experience...Reactions0reactionsComments8 comments
Advocacy: One Person Can Make a DifferenceJohn F. Kennedy once said, "One person can make a difference, and everyone should try." The world is such an enormous place that we often fall into the trap of...Reactions0reactionsComments1 comments
The Dos and Do Nots of Traveling With NarcolepsyHello and welcome aboard flight number 7899 with service to your favorite vacation spot. Thank you so much for choosing to fly with us today. As your flight attendant, I...Reactions0reactionsComments5 comments
Explaining Narcolepsy to ChildrenI have been thankful for finding the thing that I might be doing for the rest of my life, and that’s working with children. Right before the pandemic, I was...Reactions0reactionsComments3 comments