Cataplexy vs. MeI have been living and battling with my cataplexy since before my diagnosis 20 years ago. In the early days before my medication was regulated, I felt like the cataplexy...Reactions0reactionsComments2 comments
10 Ways To Self-AdvocateWe talk a lot about spreading awareness and advocacy in this community, and while both are so important, in order to do these we need to first be able to...Reactions0reactionsComments2 comments
When Dreaming Is Too MuchIf you have narcolepsy like me, then you might also have vivid dreams. Chronic vivid dreams are one symptom of many that might indicate narcolepsy. Sometimes these dreams are full...Reactions0reactionsComments0 comments
New Year, Same Old NarcolepsyRinging in the New Year can be a great opportunity to set intentions for the upcoming year. After the whirlwind of the holidays, I can end up totally exhausted. From...Reactions0reactionsComments1 comments
The Full Impact of NarcolepsyThere are so many things that make our journey with narcolepsy more difficult than it has to be, but the biggest one for me is the lack of information we...Reactions0reactionsComments2 comments
Your Year in Review With NarcolepsyAs we all prepare to ring in the New Year of 2023, it's the perfect time to connect with each other as a community to share the trials and triumphs...Reactions0reactionsComments2 comments
What Your Preferred Caffeinated Drink Says About Your DayIf you have narcolepsy, chances are that you consume caffeine. Stimulants are one of the treatment options available for narcolepsy, and caffeine is a cheap over-the-counter stimulant option. Narcolepsy symptoms...Reactions0reactionsComments2 comments
Narcolepsy: Don’t Judge a Book by Its Cover"Don’t judge a book by its cover" is one of the most cliché phrases, but it’s still one of my favourite sayings because it relates to invisible illnesses so perfectly...Reactions0reactionsComments2 comments
The War Between Sleeping and DreamingAs a person with narcolepsy, I sleep a lot, and I am almost always sleepy. It is often a surprise to people when I say I do not enjoy sleeping...Reactions0reactionsComments1 comments
Conducting My Own Narcolepsy Research: The FindingsIn a previous post, I wrote about conducting my research project for my master's degree in health psychology. My research involved interviewing individuals with narcolepsy to explore the lived experience...Reactions0reactionsComments8 comments
Advocacy: One Person Can Make a DifferenceJohn F. Kennedy once said, "One person can make a difference, and everyone should try." The world is such an enormous place that we often fall into the trap of...Reactions0reactionsComments1 comments
The Dos and Do Nots of Traveling With NarcolepsyHello and welcome aboard flight number 7899 with service to your favorite vacation spot. Thank you so much for choosing to fly with us today. As your flight attendant, I...Reactions0reactionsComments6 comments
Explaining Narcolepsy to ChildrenI have been thankful for finding the thing that I might be doing for the rest of my life, and that’s working with children. Right before the pandemic, I was...Reactions0reactionsComments3 comments
The Story of When I Mixed Alcohol and StimulantsOne of the worst experiences I’ve ever had was the day I accidentally mixed methylphenidate with alcohol. It was an experience that I would never like to repeat again. For...Reactions0reactionsComments5 comments
Who’s Who in the Sleep Clinic?If you’re going to participate in a sleep study, you may encounter more than one person working at a clinic, and several of those people may not be your sleep...Reactions0reactionsComments2 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
Give Yourself Grace During the HolidaysThe smell of turkey in the oven, the flickering of candlelight, the sound of family members catching up. It is that time of year again — the holiday season has...Reactions0reactionsComments5 comments
Meet Taylor, From Project Sleep!Taylor Dillon (she/her) is one of the smartest people I know — I’ll start my interview with her off there. Her knowledge of narcolepsy and sleep science is mind-blowing. She...Reactions0reactionsComments0 comments
How to Help People With Narcolepsy Feel SeenLiving with an invisible illness like narcolepsy can make us feel invisible, too. I can imagine that it’s difficult for people who don’t live with a chronic condition to be...Reactions0reactionsComments9 comments
If Cats Could Talk (Part 2): Having a BrotherThis article is part of a series written from the perspective of Kerly's cat, DJ. You can read Part 1 here. Back by popular demand. Guess who's back, back again...Reactions0reactionsComments1 comments