Narcolepsy’s Effects on ChildrenNarcolepsy is often associated with adults. But narcolepsy can also affect children, although it is quite rare. Narcolepsy often impacts children differently...reactionscomments
My Narcolepsy Does Not Make Me A BurdenI not long ago read a journal article discussing the “challenges” of parenting a child with narcolepsy. At first, I could hardly...reactionscomments
The Hidden Power of Sunflower Lanyards: My Journey Through an Accessibility RevolutionAs someone living with narcolepsy, a hidden disability that most people can’t immediately identify, the sunflower lanyard has become an essential part...reactionscomments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Communicating Narcolepsy NeedsNarcolepsy symptoms make life hard. And misunderstandings surrounding narcolepsy symptoms can make life harder! Effectively communicating our narcolepsy-related needs is very important...reactions5comments
Parental Partnership: Supporting Families With a Child Affected by a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. When I became a mother...reactionscomments
Keeping Your Family Connected When Raising a Child With a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000...reactionscomments
Personal Experience with Jet Lag and Narcolepsy ManagementI traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey...reactionscomments
I Don’t Want Your Medical AdviceI’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed...reactions7comments
Loving Me Unconditionally: My Journey From Sadness to LoveHave you ever or do you ever look in the mirror and ask yourself: Why did I do that stupid thing? Why...reactions7comments
Narcolepsy and the Menstrual CycleLiving with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my...reactions4comments
Transitioning From Pediatric to Adult Care With a Rare DiseaseYoung people living with a rare disease are living longer than ever. That’s the good news. The less-good news is that not...reactionscomments
Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and...reactionscomments
Successful First Narcolepsy Conference I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one...reactions2comments
What Is the Difference Between Narcolepsy Type 2 and Idiopathic Hypersomnia?If you have excessive daytime sleepiness that interferes with how you function, you may wonder if you might have narcolepsy. The sleep...reactions1comment
Does Narcolepsy Make Me Unreliable?As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable...reactions5comments
Narcolepsy in Children and Teens Versus AdultsNarcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both...reactionscomments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase...reactionscomments
Medically MisunderstoodHave you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour...reactionscomments
