Narcolepsy and Daytime HallucinationsMost of us living with narcolepsy have experienced hallucinations at some point in our lives. It’s one of the most common symptoms...reactions38comments
The Invisible Illness MaskThere are so many things that we have to conceal from the world every single day. Everyone is going through their own...reactions10comments
When You’re ALWAYS Tired…A typical day with a sleep disorder like narcolepsy can look like this… Wake up. Lay in bed. Bask in the morning...reactions17comments
How It Feels To Experience A MicrosleepLiving with narcolepsy is like living with an extra, constant shadow by your feet, not just as a medical condition, but as...reactions7comments
Narcolepsy Organizations That Make a DifferenceLiving with narcolepsy can often feel like an isolating experience, but I’ve come to realize how powerful it is to find a...reactionscomments
Narcolepsy’s Effects on ChildrenNarcolepsy is often associated with adults. But narcolepsy can also affect children, although it is quite rare. Narcolepsy often impacts children differently...reactionscomments
My Narcolepsy Does Not Make Me A BurdenI not long ago read a journal article discussing the “challenges” of parenting a child with narcolepsy. At first, I could hardly...reactionscomments
The Hidden Power of Sunflower Lanyards: My Journey Through an Accessibility RevolutionAs someone living with narcolepsy, a hidden disability that most people can’t immediately identify, the sunflower lanyard has become an essential part...reactionscomments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Communicating Narcolepsy NeedsNarcolepsy symptoms make life hard. And misunderstandings surrounding narcolepsy symptoms can make life harder! Effectively communicating our narcolepsy-related needs is very important...reactions5comments
Parental Partnership: Supporting Families With a Child Affected by a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. When I became a mother...reactionscomments
Keeping Your Family Connected When Raising a Child With a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000...reactionscomments
Personal Experience with Jet Lag and Narcolepsy ManagementI traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey...reactionscomments
I Don’t Want Your Medical AdviceI’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed...reactions7comments
Loving Me Unconditionally: My Journey From Sadness to LoveHave you ever or do you ever look in the mirror and ask yourself: Why did I do that stupid thing? Why...reactions7comments
Narcolepsy and the Menstrual CycleLiving with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my...reactions4comments
Transitioning From Pediatric to Adult Care With a Rare DiseaseYoung people living with a rare disease are living longer than ever. That’s the good news. The less-good news is that not...reactionscomments
Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and...reactionscomments
Successful First Narcolepsy Conference I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one...reactions2comments
