What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
Give Yourself Grace During the HolidaysThe smell of turkey in the oven, the flickering of candlelight, the sound of family members catching up. It is that time of year again — the holiday season has...Reactions0reactionsComments5 comments
Meet Taylor, From Project Sleep!Taylor Dillon (she/her) is one of the smartest people I know — I’ll start my interview with her off there. Her knowledge of narcolepsy and sleep science is mind-blowing. She...Reactions0reactionsComments0 comments
How to Help People With Narcolepsy Feel SeenLiving with an invisible illness like narcolepsy can make us feel invisible, too. I can imagine that it’s difficult for people who don’t live with a chronic condition to be...Reactions0reactionsComments9 comments
If Cats Could Talk (Part 2): Having a BrotherThis article is part of a series written from the perspective of Kerly's cat, DJ. You can read Part 1 here. Back by popular demand. Guess who's back, back again...Reactions0reactionsComments1 comments
5 Creative Ways I Manage Sleep ParalysisThere are few things more terrifying than the nightmares, hallucinations, and sleep paralysis that can plague people with narcolepsy. Before I was able to start medication to treat these symptoms...Reactions0reactionsComments2 comments
The Narcoleptic Metamorphosis: From Social Butterfly to HermitGrowing up, I was always a social butterfly. I always had friends over, was always attending events like concerts and poetry nights. The last thing anyone would have called me...Reactions0reactionsComments9 comments
Conducting My Own Narcolepsy ResearchI recently finished my master's degree in health psychology. I'm so happy because I achieved a distinction which I am incredibly proud of. Completing a master's degree requires a lot...Reactions0reactionsComments3 comments
Did They Break Up With Me Because of My Narcolepsy?Dating with narcolepsy is difficult. From the naps we need frequently, to late-night dinners and activities being a no-go, there are a lot of barriers for us. And what happens...Reactions0reactionsComments6 comments
My First Hallucination ExperienceIt was only when I was diagnosed with narcolepsy at the age of 28 that I started connecting the dots and remembered my very first hallucination. To this day, it...Reactions0reactionsComments2 comments
Where Does Narcolepsy Stigma Come From?When I was first diagnosed with narcolepsy, I internalised all of the stigma that comes with it. Narcolepsy is often not taken seriously by people in society and by healthcare...Reactions0reactionsComments5 comments
My Top 5 Narcolepsy and Sleep PodcastsUntil the pandemic occurred in 2020, I had never listened to a podcast, but after I’d finished a 3-month-long binge of Netflix, I suddenly found myself with nothing to watch...Reactions0reactionsComments2 comments
Productivity and NarcolepsyAs a person with narcolepsy, I struggle with productivity. Brain fog has been one of the most inhibiting symptoms for me. It keeps me going in circles, wasting the little...Reactions0reactionsComments2 comments
The Unhealthy Habit of ComparingThere is one very specific mistake that all of us will likely make at some point in our lives that isn’t beneficial to us in any way, but we do...Reactions0reactionsComments4 comments
Outdoor Adventures With NarcolepsyI went camping with my service dog, Kida, this past weekend. She is a German Shepherd, covered in thick fur that sheds in endless clumps. It was a 40-minute drive...Reactions0reactionsComments2 comments
Mum's the WordToday I would like to introduce my mother, Dorothy, as we commemorate 21 years since I was diagnosed. In this interview, I asked her to share her experiences of parenting...Reactions0reactionsComments1 comments
Accepting Your New RealityI have recently just finished my master's degree at university. When I was younger and doing my GCSE exams at secondary school, I was extremely career driven. My life goal...Reactions0reactionsComments1 comments
A Typical Night of a Person With NarcolepsyA common misconception about narcolepsy is thinking we sleep fine at night. Many people believe that insomnia and narcolepsy are opposites, but that is far from the truth. I don’t...Reactions0reactionsComments2 comments
Communities: Recognising Over CriticisingAlthough there’s much we don’t know about narcolepsy, there is one thing that we can all be sure of: it is different for everyone. As far as I know, there...Reactions0reactionsComments2 comments
Narcolepsy Is More Than Just Excessive Daytime SleepinessExcessive daytime sleepiness is the big picture; however, narcolepsy can affect much more. Whenever I tell someone I have narcolepsy, they seem only to grasp the excessive daytime sleepiness part...Reactions0reactionsComments1 comments