Parental Partnership: Supporting Families With a Child Affected by a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. When I became a mother...reactionscomments
Keeping Your Family Connected When Raising a Child With a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000...reactionscomments
Personal Experience with Jet Lag and Narcolepsy ManagementI traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey...reactionscomments
I Don’t Want Your Medical AdviceI’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed...reactions7comments
Loving Me Unconditionally: My Journey From Sadness to LoveHave you ever or do you ever look in the mirror and ask yourself: Why did I do that stupid thing? Why...reactions7comments
Narcolepsy and the Menstrual CycleLiving with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my...reactions4comments
Transitioning From Pediatric to Adult Care With a Rare DiseaseYoung people living with a rare disease are living longer than ever. That’s the good news. The less-good news is that not...reactionscomments
Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and...reactionscomments
Successful First Narcolepsy Conference I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one...reactions2comments
What Is the Difference Between Narcolepsy Type 2 and Idiopathic Hypersomnia?If you have excessive daytime sleepiness that interferes with how you function, you may wonder if you might have narcolepsy. The sleep...reactions1comment
Does Narcolepsy Make Me Unreliable?As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable...reactions5comments
Narcolepsy in Children and Teens Versus AdultsNarcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both...reactionscomments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase...reactionscomments
Medically MisunderstoodHave you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour...reactionscomments
Putting a Ring On It: Getting Married While Managing a Sleep DisorderSome might have noticed my recent name change from “Craine” to “Bhavnani.” As of my writing this, I exited the dating realm...reactions1comment
Traveling with the Right TribeAs an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends...reactions4comments
NOT “Fat and Lazy” – Just NarcolepticLiving with narcolepsy as a person of a larger size can bring some added complications. I’d been overweight all my life when...reactions1comment
How NOT to React to a Cataplexy AttackCataplexy is a sudden, brief loss of muscle tone often triggered by strong emotions. If you have never witnessed a cataplexy attack...reactionscomments
Narcolepsy Letter to My 21-Year-Old SelfI went for lunch recently with a dear friend, someone I've known since I was 11. As we sat reminiscing, she posed...reactionscomments
