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Can you tell when you are about to have a cataplexy attack?

Are there any early warning signs that let you know a cataplexy attack is coming? Share below!

  1. My speech gets slurred and I don't make sense. I eat a lot of candy in a short time. Sometimes I have to have help laying down. The worst is when I fall over without warning

    1. That must be scary when you have no warning, . I hope it doesn't happen often. Have you ever been hurt as a result? Sending lots of gentle hugs your way. - Lori (Team Member)

  2. I have a sort of aura my hearing changes as if my ears are blocked and my eyes blink independently for some reason that's when I'm exhausted ..the only time it's been triggered is when my dog got attacked by a neighbours dog so now it happens every time my dogs squabble even .bizarre !

    1. I used to perform as a stand up comedian for some time and at the time my narcolepsy was not diagnosed yet, people just assumed I worked too much. At the time I never experience cataplexy while performing. Those weird symptoms is what prompted me to seek a doctor (I’m a physician myself). As orexin levels drop over time that’s when cataplexy starts manifesting and I assume that’s what happened with me . Telling jokes, being emotionally invested in a discussion is what gives me the jaw drop / lock jaw feeling and the knees giving in. I take Wakix 18 mg for this purpose , my cataplexy attacks have decreased by maybe 50%. Could be worth a try. I didn’t want to try venlafaxine just because I wanted to stay away from antidepressants.

      1. I am glad Wakix helps, . Between your second career as a comedian and the empathy you have likely developed as someone who has a chronic illness, you must be in high demand as a doctor. Thanks for chiming in. Best of all wishes. - Lori (Team Member)

    2. I know that when I am tired, they are bound to happen. If I am exhausted at work and a coworker makes me laugh, I have to hold on to something so I do not fall. I try to avoid socializing when I am this level of tired because I know these attacks are inevitable. I actually had an attack when a bug flew at me the other day in the street, my legs gave out and my friend had to help me up. I do not know why the attack occurred at that time, that was a new one for me. I guess from fear because I do not like bugs lol.

      1. Hi . Certain bugs can definitely illicit the high-stress fight-or-flight. (Ticks do that for me!) I am glad your friend was there to help. That could have been a dangerous situation. It's good you know your triggers well enough to avoid emotional situations when you are tired, but I wish you didn't have to do that. Thanks for chiming in. Best wishes. - Lori (Team Member)

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