Can you tell when you are about to have a cataplexy attack?
Are there any early warning signs that let you know a cataplexy attack is coming? Share below!
Maybe like 3 seconds before
Does that give you time to do anything at all to protect yourself? - Lori (Team Member)
Yes most of the time I know when a Cataplexy is going to happen. Laughter & fear are my main triggers. Fear is the hard one to cope with as anything might trigger me even imagined fear. It also happens if something goes wrong & I have to try & explain a problem to people who really aren't listening to me? My throat constricts & I find it hard to speak? Then the slide to the ground begins & I am paralysed, unable to explain they must help me to sit, on the ground if necessary. I laughed reading about someone holding a glass as one of my worst was while holding a glass. Recognising I was about to have a cataplexy I moved to a wall to slow down the fall. I could say 1 word which happened to be "get" 😆 I had 5 people watching me & starting to panic but nothing like I was knowing this glass was going to break & I was going to get hurt? After what seemed like ages someone spotted the glass & removed it. Released from danger I continued to the floor & within minutes it was all over & I could carry on with what I was going to do!
Thank goodness your body gives you a bit of warning. You could have been seriously hurt by that glass. Do you wear a bracelet or anything so people know you have type 1 narcolepsy? Fear is such a difficut emotion to control. I can see why that would be such an unpredictable trigger. Best wishes. - Lori (Team Member)
My speech gets slurred and I don't make sense. I eat a lot of candy in a short time. Sometimes I have to have help laying down. The worst is when I fall over without warning
That must be scary when you have no warning,
. I hope it doesn't happen often. Have you ever been hurt as a result? Sending lots of gentle hugs your way. - Lori (Team Member)
I have a sort of aura my hearing changes as if my ears are blocked and my eyes blink independently for some reason that's when I'm exhausted ..the only time it's been triggered is when my dog got attacked by a neighbours dog so now it happens every time my dogs squabble even .bizarre !
