Community meetings?
Hello! I am curious to learn if there are any online meetings here. I live in Russia and the situation with narcolepsy support in my country is literally non-existent.
Hi! How have you been? Did you ever end up finding a support group? I hope you have found encouragement from reading some of the articles and stories here.
Xoxo/Zzz, Gabriellehi, thanks for asking! Actually I was able to contact with Russian-speaking community thanks to this article, which describes narcolepsy and hypersomnia and features several cases
https://meduza.io/feature/2021/04/29/on-padal-zamertvo-kazhdyy-raz-kogda-stanovilos-veselo
We've had a couple of online meetings so far, hope this group will continue functioningI am so happy to hear that! Best wishes to you!
Xoxo/Zzz, Gabrielle
Oksana,
I am sorry you have not found the support you need in your country. Both Narcolepsy Network and Wake Up Narcolepsy have weekly meetings online. I have included information on both below. I also hope our community can also help provide you some of the support you need.
Warmly, Lindsey (Narcolepsy.Sleep-Disorders.Net Team Member)
https://narcolepsynetwork.org/virtual-support-group-meeting/
https://www.supportgroupscentral.com/groups_detail.cfm?cid=34&CFID=3334238&CFTOKEN=f1f86246d92cd76e-830CDE94-F482-E2E5-FD403D223306BCD0
