caret icon Back to all discussions

idk if I have narcolepsy help me pls

So I have excessive day time sleepiness and I cannot stop myself from falling asleep in my classes I used to never be able to sleep at school but since 3 years I have really hard time staying awake even tho the teachers constantly warn me I can feel my eyes rolling back and can't stop my eyelids closing but at the same time I am underweight and only had sleep paralysis once in my life

Although I have these and want to get diagnosed I can't bring up myself to tell my family that I have been sleeping in my classes and have been skipping my homeworks to sleep it's so shameful to me I'm already going to a private highschool which they pay a lot for me but I can't even manage to stay awake

So in conclusion I don't think I can get help if I'm not sure I have narcolepsy so here I am lol so do you guys think I actually have it or not?

  1. Hey Reminaa. I'm so sorry that you're having such an awful time! It's definitely not easy to ever be able to know if you do have narcolepsy or not without a sleep study unfortunately. I would personally advise you to do this as soon as possible if it's affecting your life in such a grave way. If you ever need to talk to someone please feel free to message me privately! I will be happy to listen! Let me know how things go if you can! Take care, Iris xxx

    1. hii! I actually told my family and had EEG done and turns out I'm epileptic 😁 I guess I gotta move to a epilepsy help site lol also thanks a lot for advice! ₍ᐢ.ˬ.⑅ᐢ₎

    2. Oh yay!!! So happy for you that you received your diagnosis! The worst thing sometimes is just not knowing who you can talk to because you don't know what you have so I'm very happy that you can reach out to your community now! But don't forget if you ever need help or support you can still reach out to us! I'm always happy to help even if it's just to listen or help research for something (which I love doing!hehe). Wishing you all the best hun! Take care, Iris xxx

  2. Hi , thanks so much for sharing! While we can't provide a diagnosis, we definitely suggest you speak with your doctor and family about your symptoms. Here is an article about diagnosing narcolepsy that you may find helpful: https://narcolepsy.sleep-disorders.net/diagnosis. Best, Allison (Team Member)

    Please read our rules before posting.