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Narcolepsy Misconceptions

What are some of the biggest misconceptions about narcolepsy?

  1. That I'm lazy and I just don't try hard enough it's pretty much everybody

    1. Welcome to the community, ! We're glad to have you here. The ignorance can be maddening, for sure. Do you have support from those closest to you? Wishing you the best. - Lori (Team Member)

  2. This one from my mother before I finally stopped talking to her: “Amy, you’re living in a fantasy if you think you can just sleep and cut your work hours down and not do more to move up in the world. Stop sleeping! Whatever you’ve got is what you got! Deal with it!” Or, from coworkers “Your sleeping on breaks is making a bad example to the other workers!” and “Yeah, I’m tired too”.

    1. How awful. I wish you could still have a relationship with your mother, but you are wise to put your physical and mental health first. Do you still experience that kind of ignorance from coworkers? Thinking of you. - Lori (Team Member)

  3. That I am lazy. That narcolepsy can be cured naturally with more vitamins, warm milk at night, or more caffeine during the day.

    1. Maddedning, isn't it, ? If only it were that easy. - Lori (Team Member)

  4. People think you are lazy, or they will say just get over it already I get tired to. You try to explain that your tired and my tired are two totally different things. People try to understand somewhat but in the long run it's just easier to keep things to yourself. Most especially with Cataplexy. Trying to explain that to others is like talking to a brick wall.

    1. We hear you, ! Here is an article from one of our advocates about that same issue: https://narcolepsy.sleep-disorders.net/living/not-tired-like-me. I hope it helps you feel less alone. Best wishes. - Lori (Team Member)

    2. yep everyone I've ever been close to.

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