Allison Echols
What are some of the biggest misconceptions about narcolepsy?
WhiteLily
The biggest misconception I’m dealing with almost daily from my husband-
I’m just being lazy and if i really wanted to fight the need to sleep i can. That i must not really want more in life and I’m okay with settling for what we have now bc i don’t try hard enough to push myself. We were at work one day and he found out another woman also has narcolepsy and when we got home he started to compare how hard she was working and if she could push through the day and bust her butt and i should be able to do so as well! Needless to say i laughed bc i busy my butt every single day, but some day i can do more and some days i just can’t but I continue on until i can no longer do so every single day! There’s times where he even tells me to step back and allow others to do things as well and that i am doing too much, lmao! So it’s like the days where I struggle he forgets all about the other days! 50% of the disagreements we have- even after being together for 18 years, stems from my narcolepsy and how he thinks i use it to benefit me so I can lay around and be lazy! He has never read up about it, he has never listened to me explain things as I learned them, and he tunes it all out!!! He thinks that I enjoy suffering I guess! What mother wants to sleep so much that her kids cry bc we don’t get out enough!? That hurts the worse!!
Gabrielle Keith Moderator
Xoxo/Zzz, Gabrielle
Gabrielle Keith Moderator
Xoxo/Zzz, Gabrielle
Iris Vasconcelos Moderator
Iris Vasconcelos Moderator
Linn
That the only symptom is falling asleep everywhere, all the time. Often in strange places and positions.
Allison Echols Admin
Hi