My first cataplexy injury and my friends didn't show me any comfort
I was at an event on the weekend and my cataplexy got me a few times. The last one was particularly bad and I crumpled on the grass right in the middle of a group of friends. I even sustained my first cataplexy injury when the grass (of all things) cut my knee and my whole leg was muddy. No one did anything to comfort me. I know they care and that they know strong reactions can make it keep going like dominos but a piece of me feels hurt that, aside from one girl telling another that I was having an "episode", they didn't even acknowledge it. Does anyone else feel like that?
Even if their intentions were good, that must have been hurtful,
. Would you be comfortable being honest with them and understanding at the same time, maybe by email so you don't get too emotional? You might have to give them some extra guidance as to what is helpful and what will make your episodes worse. I hope you get some input here from others who have shared your experience. Here is an article from one of our advocates about cataplexy and friends that might interest you: https://narcolepsy.sleep-disorders.net/living/social-life-changes. Lots of hugs. - Lori (Team Member)
