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How long did you take to find the right treatment?

I know there are many different drugs to deal with narcolepsy. Unfortunately, not all of them are legal in every country (some of them are not allowed in Chile, where I live). So my doctor began trying with some drugs. I suffered strong and long-lasting side effects so the drug was changed for another. In the process, leaving the first drug also had consequences. It seems that the right drug is finally found to be trial and error. Do the side effects ever end? How long did you take to find the right drug?

  1. Many months

    1. I hope your sleep specialist finds something that is both effective and tolerable. That's a long journey for sure. Do you have much support? - Lori (Team Member)

    2. thank you. I hope so too. I do have a GREAT support system. Not to mention I have God on my side. 😉🙏🏾

  2. I’m doing quite well on Pitolisant and Methalphenidate. My first medication, Mazindol was unfortunately discontinued

    1. Hi , I'm glad to hear that you found medication that works! Best, Allison (Team Member)

  3. I refuse to take a medication any more. It's more exhausting than the narcolepsy. I am struggling but I know what to watch for. Being medicated by trial and error has to many unexpected side effects. I have enough side effects from the narcolepsy to deal with.

    1. I even screamed to my doctor does it ever get better. I literally screamed out of frustration.

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