How long did you take to find the right treatment?

I’m doing quite well on Pitolisant and Methalphenidate. My first medication, Mazindol was unfortunately discontinued

I refuse to take a medication any more. It's more exhausting than the narcolepsy. I am struggling but I know what to watch for. Being medicated by trial and error has to many unexpected side effects. I have enough side effects from the narcolepsy to deal with.

I even screamed to my doctor does it ever get better. I literally screamed out of frustration.

I’ve had a diagnosis of Hyperion is about 20 yrs ago that was somewhat managed with Ritalin then eventually provigil since the Ritalin became unmanageable. About 5 yrs ago I had another sleep study done that led to a narcolepsy diagnosis. I started back on provigil and started Xyrem. I thought I’d was a miracle because I realized I never slept more that 2-3 hours a night, if that. So when I got 5-6 hrs, I was amazed. Since then I can’t seem to get more than 5 hrs of sleep and have to switched to xywav which tastes better and way less sodium. I recently added Sunoco, which takes 12 weeks to see full effect and was awesome at 12 weeks but at 13 I started to get mental side effects like high agitation and mood swings and started to have insomnia. I quickly weaned off of that and am back to just Xywav and provigil. Still craving and searching for the miracle medicine that will give 6-7 straight hours of sleep so I’m hoping Jazz gets approval for it’s one dose medicine soon because I will 100% be trying that when it comes out. Good luck to you. It’s a constant journey and quest for sleep.