Hello everyone!
I have been suspecting I have narcolepsy for a couple of years now and finally began seeking help as falling asleep at my desk is no way to keep a job.
I wanted to share some of my symptoms to see if anyone can relate and also let me know if it sounds like narcolepsy may be to blame.
I first experienced troubles with sleep and staying awake at the age of 16 as I would often really struggle to stay awake on the bus and in class. I went to the doctors about this, ran a few blood tests but they found nothing and then the tiredness reduced on its own.
Fast forward two years to when I was 18 and I had just got home from a sleep deprived week in Magaluf and experienced my first hallucination when falling asleep. I remember being half asleep and seeing what I thought was my brother standing at the foot of my bed and he would not respond or move when I spoke to him. In my dazed state I ended up running at him and the hallucination stopped. I shrugged this off as temporary sleep deprivation.
Soon after this I got my first fall time job working in a call centre and always felt exhausted and stressed out as I could not sleep at night. I don’t remember experiencing many hallucinations or cataplexy during this time but was definitely always tired.
When I was 20 I went to university and this was the stage at which I realised something was not quite right. During freshers I was understandably very sleep deprived and the hallucinations at night were becoming more frequent and more intense. They were reduced significantly when freshers came to an end and I was no longer drinking all the time and had a reasonably good sleeping pattern.
However, despite eating healthy, exercising regularly and focusing on uni work the daytime tiredness remained and I started experiencing random sleep attacks during lectures and seminars. During these sleep attacks it was almost impossible to stay awake and it felt like my head kept falling and I was experiencing minor visual hallucinations. I also began to experience cataplexy as my leg would randomly give way when walking (usually when I saw someone I knew or didn’t want to see).
I finished uni in June and have began working in a job which is mainly office based and struggle to stay focused and just feel tired and irritable all day. Most nights whenever I try to sleep I have weird vivid dreams for about an hour and experience very tactile and auditory hallucinations accompanied by paralysis. I am lucky to get 4-6 hours of sleep per night and it’s very fragmented.
Can any of you relate to any of my symptoms and have any suggestions for how to handle them?
I am currently trying to see a sleep specialist but that could take some time.