The best narcolepsy advice I've ever gotten was _____.
What is the best advice you've ever gotten on living with narcolepsy? How has this advice positively influenced your narcolepsy journey? Please share below.
Keep a log every day and share it with your doctor
be passionate and look forward to things in life
I see you are new here,
. Welcome to the community! Such great advice! Thank you! Have you been diagnosed long? Warm wishes. - Lori (Team Member)
My faith, choosing Joy everyday, and knowing that I am a stronger person than I was before Narcolepsy is what gets me through each day. I have been living with Narcolepsy/Cataplexy for 22 years.
That is a long time to live with narcolepsy,
. You must have been young when you were diagnosed. I am glad you have your faith to lean on and that you can still find joy in each day after all these years. - Lori (Team Member)
You are not “lazy” or “just bored”.
Even some of the people who are generally so supportive said these things when I first got diagnosed while in college. People don’t always understand, and that’s okay in my opinion. I’m 6 years into my diagnosis and even I’m still learning.Those are such important reminders,
. Thanks for chiming in. Best wishes. - Lori (Team Member)
