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Read conversations, start a discussion, and connect with others about narcolepsy.

Controlled Medications and Life Expectancy

I’m almost 44 and living my entire life with Severe Narcolepsy with Cataplexy has brought me to this question. What as a person with narcolepsy value more? Quality of life...

Workplace accommodations

Have you ever requested accommodations for your narcolepsy from an employer? If you did, how was your experience? Did your employer offer resistance? Were they supportive? Have you ever had...

Looking for individual health insurance for someone who has narcolepsy with prescription coverage

Hello My daughter is 27 years old she is currently under state insurance which covers her medical and her very expensive prescription for her illness. She is currently taking some...

Experience with Tufts Medicare Insurance and Xyrem/Xywav

I am turning 65 soon and will have to change insurance plans when I go on Medicare. I have been on Xyrem for a few years now. I live in...

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