Living

As a person with narcolepsy, I’ve gotten a lot of comments about my disease. Some comments about my narcolepsy have been inquisitive, but also supportive and understanding. The larger majority...

World Narcolepsy Day is Thursday, September 22, and while medical research has come a long way, narcolepsy remains a widely unknown and misunderstood condition. People living with narcolepsy still face...

World Narcolepsy Day is on September 22 each year. Several organizations hold events to celebrate this day of awareness. Project Sleep was the first organization that I heard about when...

I’m annually reminded of how special my life has been on World Narcolepsy Day. This year has been exceptional, though, as I have hit a milestone birthday. Most people would...

Healthcare experiences can vary greatly with narcolepsy. Your healthcare team impacts how you feel. Doctors who listen and respond to your concerns create a positive experience. Medical gaslighting and feeling...

I have found that one of the biggest misconceptions surrounding narcolepsy is that people with this condition sleep more than the average person. This is simply untrue. For a long...

My partner recently had a birthday, and in celebration of that, we decided to take a weekend trip with his parents. We got a cabin on the top of a...

What does it mean to be invisible? I have been thinking about this concept ever since I was introduced to the term "invisible illness" over 2 years ago. The definition of...

I always hated studying poetry in English Literature. I think it was because we studied poetry that I never connected to. However,  over the past couple of years I started...

There are a variety of ways that my narcolepsy affects my dental care. From regular oral hygiene practices to dental emergencies, narcolepsy affects it all! Imagine you’re sitting in the...

Summertime and I have a love-hate relationship. Summer is the time for getting out and enjoying the warm sunshine. This is usually when families take a vacation and have new...

Living with narcolepsy requires a variety of tools. Medication, for example. Adequate napping schedules, too, for many people. Service dogs for narcolepsy are also an option for mitigating symptoms. Unfortunately...

I got my first pet, an adorable puppy, when I was 27 years old. At the time, I had not yet been diagnosed with narcolepsy, so I had no idea...

This article is the second installment of a 2-part series. Read Part 1 here!Brain fog is a major symptom of narcolepsy. It makes it difficult for me to focus on...

Often, narcolepsy and other sleep disorders are not diagnosed until you're in your 30s or even later. But, looking back, many community members realized that they had displayed signs of...

At the moment, I have no specific doctor to support me with my narcolepsy. Having recently moved to another country, I once again find myself searching for the right medical...

Yesterday I was perusing the colorful aisles at my local grocery store. It wasn’t until I reached the checkout line that I realized I’d forgotten my reusable grocery bags at...

Have you ever prepared a gorgeous, steaming meal only to burn it to a crisp at the last minute? Cooking with narcolepsy can be a dangerous game to play. I...

Narcolepsy can be an annoying third-wheel on a date. With your nerves on edge and excitement brewing, it can be difficult to set boundaries for your narcolepsy symptoms. The more...

Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...