When Dreaming Is Too MuchIf you have narcolepsy like me, then you might also have vivid dreams. Chronic vivid dreams are one symptom of many that might indicate narcolepsy. Sometimes these dreams are full...Reactions0reactionsComments0 comments
New Year, Same Old NarcolepsyRinging in the New Year can be a great opportunity to set intentions for the upcoming year. After the whirlwind of the holidays, I can end up totally exhausted. From...Reactions0reactionsComments1 comments
The Full Impact of NarcolepsyThere are so many things that make our journey with narcolepsy more difficult than it has to be, but the biggest one for me is the lack of information we...Reactions0reactionsComments2 comments
The Dos and Do Nots of Traveling With NarcolepsyHello and welcome aboard flight number 7899 with service to your favorite vacation spot. Thank you so much for choosing to fly with us today. As your flight attendant, I...Reactions0reactionsComments5 comments
The Story of When I Mixed Alcohol and StimulantsOne of the worst experiences I’ve ever had was the day I accidentally mixed methylphenidate with alcohol. It was an experience that I would never like to repeat again. For...Reactions0reactionsComments5 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
Give Yourself Grace During the HolidaysThe smell of turkey in the oven, the flickering of candlelight, the sound of family members catching up. It is that time of year again — the holiday season has...Reactions0reactionsComments5 comments
Meet Taylor, From Project Sleep!Taylor Dillon (she/her) is one of the smartest people I know — I’ll start my interview with her off there. Her knowledge of narcolepsy and sleep science is mind-blowing. She...Reactions0reactionsComments0 comments
How to Help People With Narcolepsy Feel SeenLiving with an invisible illness like narcolepsy can make us feel invisible, too. I can imagine that it’s difficult for people who don’t live with a chronic condition to be...Reactions0reactionsComments9 comments
5 Creative Ways I Manage Sleep ParalysisThere are few things more terrifying than the nightmares, hallucinations, and sleep paralysis that can plague people with narcolepsy. Before I was able to start medication to treat these symptoms...Reactions0reactionsComments2 comments
Did They Break Up With Me Because of My Narcolepsy?Dating with narcolepsy is difficult. From the naps we need frequently, to late-night dinners and activities being a no-go, there are a lot of barriers for us. And what happens...Reactions0reactionsComments6 comments
My First Hallucination ExperienceIt was only when I was diagnosed with narcolepsy at the age of 28 that I started connecting the dots and remembered my very first hallucination. To this day, it...Reactions0reactionsComments2 comments
Where Does Narcolepsy Stigma Come From?When I was first diagnosed with narcolepsy, I internalised all of the stigma that comes with it. Narcolepsy is often not taken seriously by people in society and by healthcare...Reactions0reactionsComments5 comments
Mum's the WordToday I would like to introduce my mother, Dorothy, as we commemorate 21 years since I was diagnosed. In this interview, I asked her to share her experiences of parenting...Reactions0reactionsComments1 comments
Accepting Your New RealityI have recently just finished my master's degree at university. When I was younger and doing my GCSE exams at secondary school, I was extremely career driven. My life goal...Reactions0reactionsComments1 comments
A Typical Night of a Person With NarcolepsyA common misconception about narcolepsy is thinking we sleep fine at night. Many people believe that insomnia and narcolepsy are opposites, but that is far from the truth. I don’t...Reactions0reactionsComments2 comments
Communities: Recognising Over CriticisingAlthough there’s much we don’t know about narcolepsy, there is one thing that we can all be sure of: it is different for everyone. As far as I know, there...Reactions0reactionsComments2 comments
Narcolepsy Is More Than Just Excessive Daytime SleepinessExcessive daytime sleepiness is the big picture; however, narcolepsy can affect much more. Whenever I tell someone I have narcolepsy, they seem only to grasp the excessive daytime sleepiness part...Reactions0reactionsComments1 comments
Narcolepsy and Daytime HallucinationsMost of us living with narcolepsy have experienced hallucinations at some point in our lives. It’s one of the most common symptoms and one that brings up a lot of...Reactions0reactionsComments31 comments
Weird Things People Say About NarcolepsyAs a person with narcolepsy, I’ve gotten a lot of comments about my disease. Some comments about my narcolepsy have been inquisitive, but also supportive and understanding. The larger majority...Reactions0reactionsComments15 comments
