"Narcolepsy? What's That?"The number of people I know with narcolepsy grew greatly during the COVID-19 pandemic. Pre-pandemic I had met a few people with narcolepsy by attending the Narcolepsy UK conferences, but...reactionscomments
7 Techniques I Use To Avoid Sleep ParalysisIf you’ve experienced sleep paralysis, you most likely know how terrifying these experiences can be. They can range from seeing disturbing entities to feeling them suffocating you. It goes without...reactions4comments
"I Don't Have Narcolepsy?": Lauryn's JourneyI was back in my dorm room after finishing my classes for the day. The time slot after my classes was my dedicated nap time, but before I could get...reactions3comments
The Narcoleptic Insomniac ParadoxI sleep a lot. I fall asleep on the bus, the train, in waiting rooms, in church. Slightly busy days for the average person can completely wipe me out. I...reactions15comments
Blame My Narcolepsy, NOT ME!Living with narcolepsy can be very difficult. Depending on symptom severity and the effectiveness of the treatment plans in place, the experience of narcolepsy can affect every part of the...reactions5comments
Community Views: The Most Surprising Symptoms of NarcolepsyLiving with narcolepsy includes navigating many symptoms. It is a daily challenge. The symptoms can significantly alter your life. We were curious about the symptoms you experience with narcolepsy. We...reactions5comments
3 Typical Reactions to NarcolepsyWhen I was first diagnosed with narcolepsy in 2018, I would have never pictured myself talking openly about it to anyone, let alone strangers. It wasn’t until 2020, after publishing...reactions4comments
Falling Into Another DiagnosisI have been living with obstructive sleep apnea for about 12 years. Whilst I had heard of sleep apnea before I was diagnosed and was aware of some of the...reactions4comments
Narcolepsy Is Not "Just Falling Asleep"So many people don't know what narcolepsy is. Those who do have limited knowledge and understanding. Thanks to its portrayal in the media, a lot of people think that narcolepsy...reactions10comments
How To Tell Your Employer About Your NarcolepsyWorking a full-time or part-time job with narcolepsy can be highly challenging. Not knowing how they may react, or how you may be treated afterward, are only some of the...reactions10comments
Strategies For Managing Automatic BehaviorsAs a person with severe type 1 narcolepsy, the question isn’t whether I will experience automatic behaviors or not – the question is when I will experience automatic behaviors. If...reactions2comments
Cataplexy vs. MeI have been living and battling with my cataplexy since before my diagnosis 20 years ago. In the early days before my medication was regulated, I felt like the cataplexy...reactions2comments
10 Ways To Self-AdvocateWe talk a lot about spreading awareness and advocacy in this community, and while both are so important, in order to do these we need to first be able to...reactions2comments
When Dreaming Is Too MuchIf you have narcolepsy like me, then you might also have vivid dreams. Chronic vivid dreams are one symptom of many that might indicate narcolepsy. Sometimes these dreams are full...reactionscomments
New Year, Same Old NarcolepsyRinging in the New Year can be a great opportunity to set intentions for the upcoming year. After the whirlwind of the holidays, I can end up totally exhausted. From...reactions1comment
The Full Impact of NarcolepsyThere are so many things that make our journey with narcolepsy more difficult than it has to be, but the biggest one for me is the lack of information we...reactions2comments
Your Year in Review With NarcolepsyAs we all prepare to ring in the New Year of 2023, it's the perfect time to connect with each other as a community to share the trials and triumphs...reactions2comments
What Your Preferred Caffeinated Drink Says About Your DayIf you have narcolepsy, chances are that you consume caffeine. Stimulants are one of the treatment options available for narcolepsy, and caffeine is a cheap over-the-counter stimulant option. Narcolepsy symptoms...reactions2comments
Narcolepsy: Don’t Judge a Book by Its Cover"Don’t judge a book by its cover" is one of the most cliché phrases, but it’s still one of my favourite sayings because it relates to invisible illnesses so perfectly...reactions2comments
The War Between Sleeping and DreamingAs a person with narcolepsy, I sleep a lot, and I am almost always sleepy. It is often a surprise to people when I say I do not enjoy sleeping...reactions1comment
