Support SystemsIn January 2024, it will be 4 years since being officially diagnosed and starting my idiopathic hypersomnia advocacy journey. When I started...reactionscomments
The Queen of FidgetingHave you ever had someone think you were being rude because you couldn't sit still or because you were constantly fidgeting? I...reactions12comments
Cooking Safety: Narcolepsy in the KitchenHave you ever prepared a gorgeous, steaming meal only to burn it to a crisp at the last minute? Cooking with narcolepsy...reactions4comments
7 Subtle Signs of What Might Be NarcolepsyWhen most people think of narcolepsy, they immediately envision someone who falls asleep suddenly, anywhere, anytime. However, narcolepsy is much more than...reactions23comments
Narcolepsy Is More Than Just Excessive Daytime SleepinessExcessive daytime sleepiness is the big picture; however, narcolepsy can affect much more. Whenever I tell someone I have narcolepsy, they seem...reactions1comment
Yes, I Do Use Medical CannabisIt is a starry Friday night, and I am sitting on my front patio twisting a funny-looking cigarette in my hands. The...reactions8comments
Too Hot to HandleI love traveling and I love sunny warm weather. I will admit that with my narcolepsy, summer can be a little more...reactionscomments
The Struggle and Stigma of Narcolepsy MedicationsAs people with narcolepsy, most of us take some type of medication every day. They help us to live as close to...reactions13comments
Following Your GutFor a while, I was going back and forth thinking to myself, Are these really my only options to manage my condition?...reactions7comments
How My Narcolepsy Diagnosis Changed My Mindset on Happiness and Self-worthAs far back as I can recall, my happiness and self-worth were solely based on achieving goals and success. In college, I...reactions1comment
The Concept of AcceptanceWhat is acceptance? The Oxford Learner's Dictionary describes it as “The quality of being willing to accept an unpleasant or difficult situation.”...reactions10comments
Not a CompetitionCompetition is an innate part of existing as human beings but can be generalized across anything living. Things that humans have built...reactionscomments
Fear of Hurting Myself or OthersAs a person with narcolepsy, I am always thinking about safety. It is the one thing that I am always aware of...reactions2comments
Learning to Make Myself a PriorityI am so excited to be able to share my narcolepsy experiences with all of you again! I have taken a year...reactions3comments
Interview With a Fellow NarcolepticLiving with narcolepsy can be a challenge and is not always easy. One of the things that I struggled with in the...reactionscomments
Community Views: What I Wish My Friends and Family KnewFor many people with narcolepsy, finding comfort and support in friends and family is an essential part of the condition journey. When...reactionscomments
Making a Clean Space AccessibleLiving with a chronic disease like narcolepsy is hard enough, but keeping a clean living space on top of that? It’s virtually...reactionscomments
Is It Me or My Medication?During college, I struggled with anxiety and depression. This was prior to my narcolepsy diagnosis, and at times I wonder if the...reactions6comments
I Am Held Captive by My CataplexyI’ve lost someone close to me, and I am having a hard time both physically and emotionally handling it. Experiencing grief when...reactionscomments
Should You Live Alone With Narcolepsy?When I express how much I want to live on my own again, people always ask me, “Is it a good idea...reactionscomments
