The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Finding My TribeBack in 2020, during the famous pandemic of COVID-19, something wonderful was about to start: something that would change the lives of all those who got involved. At that time...Reactions0reactionsComments5 comments
Narcolepsy in Kids: Are They Born With It?Narcolepsy often begins in childhood or adolescence. But it can look a lot different in kids than in adults. This can make it hard for doctors to diagnose children with...Reactions0reactionsComments6 comments
A Love Letter to My BedThank you for supporting me. Truly, you do. I spend most of my time swaddled beneath your sheets. My bones press into my mattress, and my mattress holds me up...Reactions0reactionsComments0 comments
If Sleep Is So Important, Why Is the Impact of Narcolepsy So Overlooked?We are always being told about the importance of sleep by health professionals and in the media. One example comes from the Mental Health Foundation (UK), whose article on the...Reactions0reactionsComments7 comments
Meet Tre Burge: Narcolepsy Advocate and Content Creator“I’ve always been creative. Developing 'Sleppy' came from a need to express what I experience every day with narcolepsy – being sleepy,” shares Tre Burge, a content creator and narcolepsy...Reactions0reactionsComments0 comments
Automatic Behaviors Are Disabling When You Have NarcolepsyMy eyes trace the lines of a book One word at a time I swallow each letter and digest The contents within But my gaze starts to shake The world...Reactions0reactionsComments0 comments
Community Views: Describing Life With Narcolepsy in EmojisBefore diagnosis, narcolepsy was perhaps unfamiliar to you — now, at times when you might need to explain this neurological disorder to others, it can be overwhelming to share all...Reactions0reactionsComments0 comments
Living With PTSD and NarcolepsyI was recently diagnosed with PTSD. Though I’ve been diagnosed and treated for other mental illnesses, such as depression, I overlooked a few of my PTSD symptoms at their onset...Reactions0reactionsComments7 comments
Cataplexy TriggersThere is one particular question about narcolepsy that I would most like to be answered. In my opinion, I feel that when we speak of cataplexy, people's focus seems to...Reactions0reactionsComments8 comments
Narcolepsy Ruined My College GraduationMy type 1 narcolepsy onset began in 2016, in the beginning of my junior year of college. My cataplexy attacks, constant uncontrollable sleep attacks, and hallucinations did not respond well...Reactions0reactionsComments2 comments
The Good and Bad of Online CommunitiesDo you belong to an online community or support group? These days, I think it’s safe to say that it’s rare to find someone who doesn’t. The world has drastically...Reactions0reactionsComments0 comments
Can Your Location Impact Your Experience With Narcolepsy?Since being diagnosed with narcolepsy in 2018, my life has unfortunately been less than stable, but this experience offered me the opportunity to live in 3 different countries in the...Reactions0reactionsComments1 comments
Am I a Bad Friend?My partner and I were driving in the car when I turned to him and asked, "Am I a bad friend?" I began to share my thoughts about how living...Reactions0reactionsComments0 comments
Cataplexy 101If you have narcolepsy, there’s a chance you experience cataplexy. Cataplexy is the sudden, temporary loss of muscle tone leading to weakness and loss of voluntary muscle control. It is...Reactions0reactionsComments11 comments
4 Ways Narcolepsy Can Impact Your Sex LifeNarcolepsy can have an impact on many different aspects of your life, including your sex life. If narcolepsy is affecting your sexual health, you may be embarrassed to talk to...Reactions0reactionsComments0 comments
Do Delivery Services Help Create an Accessible World?I remember the first time I ever ordered groceries to be delivered to my house. As a kid, these services had been limited to pizza parties – so the idea...Reactions0reactionsComments0 comments
Feeling Alone in Our StrugglesThere’s a line I wrote in my blog “Life in Flashes,” when I first started writing, that I have begun questioning lately: “Narcolepsy isn’t just one part of my life...it...Reactions0reactionsComments5 comments
My Most Supportive Family Member is 8 Years OldI am not a parent. It’s important to say this, as I am extremely aware that being a parent is something that you can only understand when you become one...Reactions0reactionsComments0 comments
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