What Narcolepsy StoleMy world is different from yours. When I wake up in the morning, my first thoughts are never about what I’ll be doing that day, or rehashing some likely dramas...reactions12comments
Vaccines and Narcolepsy: What We Learned Since the H1N1 VaccineWe first started to understand the connection between narcolepsy and our immune system after the 2009 H1N1 pandemic. Doctors saw a surge of new narcolepsy cases after people recovered from...reactionscomments
If My Diagnosis Journey Would Have Gone DifferentlyMy diagnosis journey was a long 20 years full of misdiagnoses and misunderstandings. When I was young and until I was diagnosed, I always felt like something was off but...reactions4comments
Anti-Binge OatsAs a person with type 1 narcolepsy, I often struggle to feel gratified from the food that I eat. A 2016 study found that it is common for people with...reactions4comments
The Choices We Make: Not Everything Is a ChoiceI made one of the most difficult and heartbreaking decisions in my life: I euthanized my cat of almost 17 years. She had a fairly serious infection in her eye...reactions4comments
Terrible, Horrible, No Good, Very Sleepy DayMatt and the terrible, horrible, no good, very sleepy day. If you live with narcolepsy, chances are you have experienced one of these days. These days are more a matter...reactions4comments
My Not-So-Normal Realization: Part 2This is the second article in a two-part series. In part 1, Lindsey shares how she came to realize her extreme sleepiness was not normal. Driving home that morning, a...reactions4comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...reactions1comment
My Childhood of MisdiagnosesSince being diagnosed, I have been looking back more and more on my childhood and how I would act. I personally think I have had narcolepsy since I was 2...reactions12comments
Narcolepsy's Cloak of InvisibilityThere is some debate as to whether narcolepsy is truly an invisible illness. I mean if you look close enough you can see the signs that someone is struggling with...reactions12comments
Learning How it Feels to SleepAs a person with narcolepsy, I’ve been sleeping a lot of my life away ever since I was 13. No one who knew me would ever doubt my ability to...reactions9comments
Lonely Nights: The Social Impact of NarcolepsyOne of the most difficult side effects of living with narcolepsy is the inability to stay up late. People don’t wake up early to party, they stay up late. So...reactions4comments
Mom Life and Narcolepsy: ToddlersBeing a mom with toddlers is an adventure. Being a mom with toddlers and narcolepsy is straight up bonkers. If you have been following along with my Mom Life and...reactions4comments
Approaching Workplace Accommodations (Part 2): When Good Accommodations Go BadIt’s important to stay vigilant when assessing an accommodations request. Are the accommodations providing support and opportunities for success? Is the employer honoring the requests while maintaining confidentiality? Accommodations require...reactions5comments
When Sleep Becomes Scary: Narcolepsy and NightmaresNightmares, as anyone knows, can be pretty scary. Luckily, they tend to occur mostly in childhood and only happen on rare occasions in adulthood. However, nightmares are one of the...reactions26comments
Household Tips Part 2: Daily Routines and PlanningIf you find yourself struggling to get things done around the house, here are some things I do to help myself so I do not feel overwhelmed. Start with making...reactions1comment
Narcolepsy Runs in the FamilyI’m pretty sure we all have those strange family stories that get passed down from generation to generation, but I often entertained people with the stories of my grandfather. My...reactions13comments
Narcolepsy Online Support GroupsI have recently connected with some amazing people through different narcolepsy organizations. There are several social media groups on Facebook, Instagram, and Twitter that I have found. There is one...reactions5comments
Eating Healthy When You Are So Tired You Can't Get off the CouchEver have a day or month or even a year where you are so tired it seems impossible to eat healthy? Yeah, me too. Then when you go to eat, you...reactions1comment
Advantages of NarcolepsyDuring this pandemic, I have learned the importance of positive thinking. When you think positively, positive things happen in your life; however, whenever thinking of narcolepsy, the first thing that...reactions7comments