Can Narcolepsy Take a Seat?Imagine you’re on a train on your way home from work. It’s been a long day. Despite taking your regular nap at lunch you can feel yourself fading. The gentle... By Elle Wales3 min readBookmark for laterReactions 0 reactions Comments1 comments
4 Terms I Created to Describe My NarcolepsyOver the years I have created terms to describe my narcolepsy. It's so hard to describe how I feel sometimes! When I say I am tired to someone who has... By Jenean2 min readBookmark for laterReactions 0 reactions Comments11 comments
Fine-Tune Your Narcolepsy SymptomsBesides any medication a doctor can prescribe you, you can do some things yourself to fine-tune your narcolepsy symptoms. The following lists are based on positive patient experiences which could... By Feri Ascencion2 min readBookmark for laterReactions 0 reactions Comments4 comments
My Secret to Reducing Narcolepsy SymptomsJune 2020 is my 1 year anniversary of sharing my narcolepsy story on social media. When I started, I had finally overcome a large portion of my symptoms of narcolepsy, naturally... By Keeley Lange3 min readBookmark for laterReactions 0 reactions Comments1 comments
Everyone's Tired... Right?Growing up, I never thought twice about my sleepiness and I didn't question it either. After I was diagnosed with narcolepsy, I would constantly think about how my brain was wired... By Christina Christensen2 min readBookmark for laterReactions 0 reactions Comments1 comments
Power of Positive Thinking: Silencing the Inner CriticThe average time to diagnosis for people with narcolepsy is 8 to 15 years. By the time of diagnosis, a person may have spent as much as half a lifetime... By Matthew Horsnell3 min readBookmark for laterReactions 0 reactions Comments1 comments
Relationships and Narcolepsy: Managing EmotionsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with... By Elle Wales5 min readBookmark for laterReactions 0 reactions Comments3 comments
Hypnagogic and Hypnopompic Hallucinations: Shadow People and Demon BunniesLeading up to and after my diagnosis of narcolepsy with cataplexy, excessive daytime sleepiness most interfered with my quality of life. The sleepiness preoccupied my daily thinking, but that was... By Matthew Horsnell3 min readBookmark for laterReactions 0 reactions Comments11 comments
People-First Language: Person With Narcolepsy, Not NarcolepticThis article is about my preference for person-first language, such as identifying as a person having narcolepsy with cataplexy, as opposed to narcoleptic and cataplectic. It is important for me... By Matthew Horsnell3 min readBookmark for laterReactions 0 reactions Comments1 comments
The Bumpy Road to DiagnosisNarcolepsy is notorious for being a difficult disorder to diagnose. It can take years for patients to be diagnosed, and they can often be misdiagnosed in the process! I want... By Judy Ferguson3 min readBookmark for laterReactions 0 reactions Comments0 comments
Relationships and Narcolepsy: Communicating Our NeedsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with... By Elle Wales5 min readBookmark for laterReactions 0 reactions Comments4 comments
Inside My Unmedicated Narcoleptic LifeHave you ever wondered what it might be like to have narcolepsy and be unmedicated? I have always said, that there is no wrong or right way in how we... By Keeley Lange3 min readBookmark for laterReactions 0 reactions Comments2 comments
Sleepy Strength Is More Than Being Strong and ExercisingExercise and strength training have been a part of my life as long as excessive daytime sleepiness. By the time I was in middle school, I had begun to struggle... By Matthew Horsnell3 min readBookmark for laterReactions 0 reactions Comments3 comments
Pack Your Bags! Preparing for an Overnight Sleep Study and MSLTLet's talk about preparing you on what to expect and what to bring for a test that helps diagnose narcolepsy! As a guy, this is perhaps a bit embarrassing to... By Aaron Nuest2 min readBookmark for laterReactions 0 reactions Comments0 comments
Behind the Red DoorImagine laying in your bed awake, but completely unable to move, or speak, while intruders approach your bedroom. You just lay there passively waiting for it to be over while... By Judy Ferguson2 min readBookmark for laterReactions 0 reactions Comments2 comments
Relationships and Narcolepsy: Disclosing While DatingWhen it comes to relationships, every couple will have their issues – but when one of you has narcolepsy, this can bring up some unique challenges! As a person with... By Elle Wales4 min readBookmark for laterReactions 0 reactions Comments2 comments
What Does It Mean to Be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are here, reading this now. You are not alone if you... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Narcoleptic Nap Guide: Drowsy Driving Edition Part 1Have you ever experienced the following while behind the wheel of a car: Or maybe you've found yourself nodding away while at the wheel of the car, despite feeling rested... By Nicole Kenyon2 min readBookmark for laterReactions 0 reactions Comments11 comments
Diving in Your SoupPicture this: Sicily 1956...Oh, wait. That’s a Golden Girls story. Presuming you all know the TV show The Golden Girls? Anyway, let’s try to picture this instead: Cannes in France... By Feri Ascencion2 min readBookmark for laterReactions 0 reactions Comments0 comments
Putting Negative Self-Talk to SleepAs a person with narcolepsy, I’ve often been told that I’m strong and resilient for getting through each day. It’s true, I won’t deny that overcoming the many obstacles that... By Elle Wales5 min readBookmark for laterReactions 0 reactions Comments3 comments