The 5 Symptoms of Narcolepsy and What That Looks Like for MeWhen I was first diagnosed with narcolepsy, I went online, watched videos, and read articles to learn as much as I could about my new diagnosis. Although there are 5...reactions7comments
My Advice to People Newly Diagnosed With NarcolepsyWhen I was first diagnosed with narcolepsy type 2, I was not sure what to expect and thought I was alone since I don’t know anyone in person with narcolepsy...reactions11comments
Living With Narcolepsy in a Developing Country and Its ImplicationsHaving grown up for most of my life in the United Kingdom, where the common colour of the sky is grey and taking vitamin D daily is standard practise, I...reactions4comments
What Calls People With NarcolepsyI haven't been sleeping well. Just because my body tells me I am exhausted, doesn't mean I will fall asleep well or even quickly. Things often roll around in my...reactions1comment
Long-Term Benefits of Treating NarcolepsyUntreated narcolepsy places a huge burden on the lives of people living with the condition. Problems at school and work are common, leading to poor education and unemployment. Relationships suffer...reactions1comment
Dear StrangerDear Stranger, I see you eyeing me from across the room. Your table is in the other corner of the restaurant and you won’t stop looking at me. I know...reactions3comments
Finally...My Sleep StudyIt may sound weird, but once I had everything approved through insurance and had my sleep study booked, I was oddly excited. I mean, who really wants to sleep in...reactions5comments
Narcolepsy Coaxed Me Out of the Closet“I just really like boobs,” I cried to my college roommates once. “You know, sometimes we really wonder about you!” they giggled, the attractive sporty blonde duo that they were...reactionscomments
Same Conversation, Different DayHave you ever found out important information and it was something you had to explain to basically everyone anytime you meet someone? My experience with narcolepsy so far is just...reactions1comment
What Are the Long-Term Effects of Narcolepsy?Disease burden is a term doctors use to talk about how much an illness impacts a person’s life. It will come as no surprise to anyone with it that narcolepsy...reactionscomments
Caring for Pets as a Person with NarcolepsyI am in bed, my sheets tangled around my limbs. My hair is sticking out in sections of tangled curls. I’ve taken my medication an hour earlier, but my body...reactions5comments
Managing Guilt and Privilege as a Narcolepsy AdvocateFor anyone who has read my work in the past, you may be aware that I’ve been taking a new medication for about 3.5 years. Xyrem has allowed me to...reactions4comments
What Not to Say to a Narcoleptic“You must have needed it.” This is the phrase I have heard for most of my life when I have awakened from a nap. I never really paid attention to...reactions12comments
Narcolepsy - Vocations and Occupations“What do you do?” If I were granted control of conversational dialogue, I would remove this question from the vernacular. No longer would the first question asked during introductions center...reactions4comments
Mom Life and Narcolepsy: Elementary SchoolWelcome to part 4 of my series on "Mom Life and Narcolepsy." As we discuss the elementary years, I want to share a little about myself. My oldest was in...reactionscomments
The Queen of FidgetingHave you ever had someone think you were being rude because you couldn't sit still or because you were constantly fidgeting? I know that feeling all too well! For years...reactions12comments
Narcolepsy Forced Me to Address My Mental HealthI have been living with depression and anxiety for as long as I can remember. Old journals written by my 8-year-old self reveal everything from suicide ideation to frequent panic...reactionscomments
What Narcolepsy StoleMy world is different from yours. When I wake up in the morning, my first thoughts are never about what I’ll be doing that day, or rehashing some likely dramas...reactions12comments
Vaccines and Narcolepsy: What We Learned Since the H1N1 VaccineWe first started to understand the connection between narcolepsy and our immune system after the 2009 H1N1 pandemic. Doctors saw a surge of new narcolepsy cases after people recovered from...reactionscomments
If My Diagnosis Journey Would Have Gone DifferentlyMy diagnosis journey was a long 20 years full of misdiagnoses and misunderstandings. When I was young and until I was diagnosed, I always felt like something was off but...reactions4comments
