My Advice to People Newly Diagnosed With NarcolepsyWhen I was first diagnosed with narcolepsy type 2, I was not sure what to expect and thought I was alone since...reactions11comments
Living With Narcolepsy in a Developing Country and Its ImplicationsHaving grown up for most of my life in the United Kingdom, where the common colour of the sky is grey and...reactions4comments
What Calls People With NarcolepsyI haven't been sleeping well. Just because my body tells me I am exhausted, doesn't mean I will fall asleep well or...reactions1comment
Long-Term Benefits of Treating NarcolepsyUntreated narcolepsy places a huge burden on the lives of people living with the condition. Problems at school and work are common...reactions1comment
Dear StrangerDear Stranger, I see you eyeing me from across the room. Your table is in the other corner of the restaurant and...reactions3comments
Finally...My Sleep StudyIt may sound weird, but once I had everything approved through insurance and had my sleep study booked, I was oddly excited...reactions5comments
Narcolepsy Coaxed Me Out of the Closet“I just really like boobs,” I cried to my college roommates once. “You know, sometimes we really wonder about you!” they giggled...reactionscomments
Same Conversation, Different DayHave you ever found out important information and it was something you had to explain to basically everyone anytime you meet someone?...reactions1comment
What Are the Long-Term Effects of Narcolepsy?Disease burden is a term doctors use to talk about how much an illness impacts a person’s life. It will come as...reactionscomments
Caring for Pets as a Person with NarcolepsyI am in bed, my sheets tangled around my limbs. My hair is sticking out in sections of tangled curls. I’ve taken...reactions5comments
Managing Guilt and Privilege as a Narcolepsy AdvocateFor anyone who has read my work in the past, you may be aware that I’ve been taking a new medication for...reactions4comments
What Not to Say to a Narcoleptic“You must have needed it.” This is the phrase I have heard for most of my life when I have awakened from...reactions16comments
Narcolepsy - Vocations and Occupations“What do you do?” If I were granted control of conversational dialogue, I would remove this question from the vernacular. No longer...reactions4comments
Mom Life and Narcolepsy: Elementary SchoolWelcome to part 4 of my series on "Mom Life and Narcolepsy." As we discuss the elementary years, I want to share...reactionscomments
The Queen of FidgetingHave you ever had someone think you were being rude because you couldn't sit still or because you were constantly fidgeting? I...reactions12comments
Narcolepsy Forced Me to Address My Mental HealthI have been living with depression and anxiety for as long as I can remember. Old journals written by my 8-year-old self...reactionscomments
What Narcolepsy StoleMy world is different from yours. When I wake up in the morning, my first thoughts are never about what I’ll be...reactions12comments
Vaccines and Narcolepsy: What We Learned Since the H1N1 VaccineWe first started to understand the connection between narcolepsy and our immune system after the 2009 H1N1 pandemic. Doctors saw a surge...reactionscomments
If My Diagnosis Journey Would Have Gone DifferentlyMy diagnosis journey was a long 20 years full of misdiagnoses and misunderstandings. When I was young and until I was diagnosed...reactions4comments
Anti-Binge OatsAs a person with type 1 narcolepsy, I often struggle to feel gratified from the food that I eat. A 2016 study...reactions4comments
