Lonely NightsOne of the most difficult side effects of living with narcolepsy is the inability to stay up late. People don’t wake up early to party, they stay up late. So...Reactions0reactionsComments4 comments
Mom Life and Narcolepsy: ToddlersBeing a mom with toddlers is an adventure. Being a mom with toddlers and narcolepsy is straight up bonkers. If you have been following along with my Mom Life and...Reactions0reactionsComments4 comments
5 Narcolepsy Service Dog BasicsThere are a few basics that make a narcolepsy service dog workable in public. This video introduces these basics one by one. These are each demonstrated by my narcolepsy service...Reactions0reactionsComments8 comments
Approaching Workplace Accommodations (Part 2): When Good Accommodations Go BadIt’s important to stay vigilant when assessing an accommodations request. Are the accommodations providing support and opportunities for success? Is the employer honoring the requests while maintaining confidentiality? Accommodations require...Reactions0reactionsComments5 comments
When Sleep Becomes Scary: Narcolepsy and NightmaresNightmares, as anyone knows, can be pretty scary. Luckily, they tend to occur mostly in childhood and only happen on rare occasions in adulthood. However, nightmares are one of the...Reactions0reactionsComments26 comments
The Reality of Life With Narcolepsy: Results From the Inaugural Sleep Disorders In America SurveyNarcolepsy is more than being tired all the time. It is a rare neurological condition that affects nearly all aspects of life. Taking more naps or getting more sleep does...Reactions0reactionsComments1 comments
Household Tips Part 2: Daily Routines and PlanningIf you find yourself struggling to get things done around the house, here are some things I do to help myself so I do not feel overwhelmed. Start with making...Reactions0reactionsComments1 comments
Narcolepsy Runs in the FamilyI’m pretty sure we all have those strange family stories that get passed down from generation to generation, but I often entertained people with the stories of my grandfather. My...Reactions0reactionsComments9 comments
Online Support GroupsI have recently connected with some amazing people through different narcolepsy organizations. There are several social media groups on Facebook, Instagram, and Twitter that I have found. There is one...Reactions0reactionsComments5 comments
Eating Healthy When You Are So Tired You Can't Get off the CouchEver have a day or month or even a year where you are so tired it seems impossible to eat healthy? Yeah, me too. Then when you go to eat, you...Reactions0reactionsComments1 comments
Advantages of NarcolepsyDuring this pandemic, I have learned the importance of positive thinking. When you think positively, positive things happen in your life; however, whenever thinking of narcolepsy, the first thing that...Reactions0reactionsComments7 comments
When “How Did You Sleep?” Becomes a Loaded QuestionSuch a simple question that we all ask our loved ones regularly. "How did you sleep?" Each morning when my partner wakes up, we will always ask each other this...Reactions0reactionsComments2 comments
Approaching Workplace Accommodations – Part One How to approach my employer was one of the hardest decisions I faced after my diagnosis. Accommodations are required to meet the demands of my job descriptions. This is an...Reactions0reactionsComments3 comments
Small Steps Towards HealthyIt’s hard knowing you used to be healthy, and now you’re not. It’s hard to look at pictures of yourself from a few months ago and feel like a totally...Reactions0reactionsComments1 comments
My Not-So-Normal Realization: Part 1I had always been the sleepy kid. My mom would tell the story about how my first night home from the hospital; I slept for 8 hours. Anyone who has...Reactions0reactionsComments2 comments
Frankincense: A Natural Aid for NarcolepsyThe frankincense tree has been on the planet for a really long time. One of its most notable acknowledgments is that the Wise Men brought it as a gift to...Reactions0reactionsComments0 comments
Sleep Is My SuperpowerLooking back on the last 10 years of my life, there were definitely some red flags that should have led me to seek help for my sleepiness. My friends and...Reactions0reactionsComments3 comments
5 Tips for Parents Dealing With Children With NarcolepsyEvery day I wake up in the middle of the night thanks to good old narcolepsy. Usually, I flip over to take my medicine to go right back to sleep...Reactions0reactionsComments1 comments
Sexual Health and Narcolepsy With Cataplexy: A Male PerspectiveLet’s talk about sex, baby Let’s talk about you and me Let’s talk about all the good things And the bad things that may be In 1990, the duo Salt-N-Pepa...Reactions0reactionsComments0 comments
Help, My Spouse Has Narcolepsy!Narcolepsy hit us like a bus. One day I was healthy, then one day, I was not. Over the course of a year, my husband, Jeremy, watched me go from an...Reactions0reactionsComments0 comments