Mom Life and Narcolepsy: PregnancyNarcolepsy is exhausting. Pregnancy is exhausting. Put them together and a level of exhaustion that is almost paralyzing becomes a reality. My first 3 pregnancies, I did NOT have narcolepsy...Reactions0reactionsComments2 comments
What It's Like Living With a Rare DiseaseLiving with a rare disease is not easy. There are a lot of rare diseases out there. Narcolepsy is the rare disease that I live with. I know zero people...Reactions0reactionsComments0 comments
Fighting the Desire to Sleep ForeverContent Note: This article describes suicidal ideation. If you or a loved one are struggling, consider reading our mental health resources page. Suicide. It’s a hard topic to broach, but...Reactions0reactionsComments2 comments
What Is the Difference Between Narcolepsy Type 2 and Idiopathic Hypersomnia?If you have excessive daytime sleepiness that interferes with how you function, you may wonder if you might have narcolepsy. The sleep disorder occurs equally in men and women and...Reactions0reactionsComments1 comments
The Exhaustion of Just Making It Through the Day: Helping Others to UnderstandLiving with narcolepsy can involve fighting excessive daytime sleepiness and fatigue on a daily basis. Getting through each day and engaging in daily activities can feel like a never-ending battle...Reactions0reactionsComments8 comments
Your Voice, Your Vote: Advocating for ChangeThe goal of this article is to bring about awareness of issues related to people with disabilities and to encourage eligible voters to exercise that right. Anyone looking for my...Reactions0reactionsComments2 comments
One Bad AppleI would like to share an experience I had with a medical provider I had the misfortune of meeting. He was one of a handful of bad apples I have...Reactions0reactionsComments0 comments
4 Reasons to Subscribe to Our Weekly NewsletterDo you want more information about narcolepsy? Are you looking for support? Do you want to talk to other people affected by this condition? If you answered “yes” to any...Reactions0reactionsComments0 comments
Wakix® Becomes First and Only Non-Controlled Drug Approved for Cataplexy Due to NarcolepsyThe U.S. Food and Drug Administration (FDA) has approved Wakix® (pitolisant) for the treatment of cataplexy in adults with narcolepsy. This makes Wakix the first and only non-controlled, FDA-approved treatment...Reactions0reactionsComments0 comments
The Struggle and Stigma of Narcolepsy MedicationsAs people with narcolepsy, most of us take some type of medication every day. They help us to live as close to “normal” as possible. However, acquiring the medications we...Reactions0reactionsComments8 comments
Others May Not “See” It. But I Feel It.During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...Reactions0reactionsComments0 comments
5 Tips to Be Successful in College With NarcolepsyDealing with narcolepsy and the workload of college can be a stressful experience. You could have 4 exams, 7 assignments, a pop quiz, and a 15-page paper all due within...Reactions0reactionsComments0 comments
Where Do I Start? How to Share Your Narcolepsy Story“I want to share my story, but don’t know how to start…” If this sounds like you, you’re not alone. We’ve heard people say this quite often in the narcolepsy...Reactions0reactionsComments0 comments
Narcolepsy, Dreams, and the "Emotional Hangover"Most people with narcolepsy will know what it’s like to experience wild dreams. With our brains hard-wired to lapse into REM at a moment’s notice, we can sometimes feel like...Reactions0reactionsComments35 comments
Concentrating With Narcolepsy Is Harder Than It LooksI started an article last week, and it has taken me 3 sessions and one redo to complete! So I decided my next article would be about how hard it...Reactions0reactionsComments10 comments
World Narcolepsy Day - Take Over the WorldTaking over the world one story at a time.Pinky: “Gee, Brain, what are we going to do tonight?” Brain: “The same thing we do every night, Pinky. Try to take...Reactions0reactionsComments0 comments
Relationships and Narcolepsy: 3 Important ConversationsWhen it comes to relationships, every couple will have their issues - but when one of you has narcolepsy, this can bring up some unique challenges! As a person with...Reactions0reactionsComments0 comments
Take the Connected Health Survey!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to mobile apps, we use connected health technology to track symptoms, monitor...Reactions0reactionsComments0 comments
Narcolepsy and Stress-Induced Sleepiness and CataplexyExcessive daytime sleepiness is a symptom experienced by everyone having narcolepsy type 1 (with cataplexy and hypocretin deficient) and narcolepsy type 2 (without cataplexy and not hypocretin deficient). This profound...Reactions0reactionsComments3 comments
Can Narcolepsy Take a Seat?Imagine you’re on a train on your way home from work. It’s been a long day. Despite taking your regular nap at lunch you can feel yourself fading. The gentle...Reactions0reactionsComments1 comments