Articles

Have you ever found out important information and it was something you had to explain to basically everyone anytime you meet someone? My experience with narcolepsy so far is just...

Disease burden is a term doctors use to talk about how much an illness impacts a person’s life. It will come as no surprise to anyone with it that narcolepsy...

I am in bed, my sheets tangled around my limbs. My hair is sticking out in sections of tangled curls. I’ve taken my medication an hour earlier, but my body...

For anyone who has read my work in the past, you may be aware that I’ve been taking a new medication for about 3.5 years. Xyrem has allowed me to...

“You must have needed it.”  This is the phrase I have heard for most of my life when I have awakened from a nap. I never really paid attention to...

“What do you do?” If I were granted control of conversational dialogue, I would remove this question from the vernacular. No longer would the first question asked during introductions center...

Welcome to part 4 of my series on "Mom Life and Narcolepsy." As we discuss the elementary years, I want to share a little about myself. My oldest was in...

Have you ever had someone think you were being rude because you couldn't sit still or because you were constantly fidgeting? I know that feeling all too well! For years...

I have been living with depression and anxiety for as long as I can remember. Old journals written by my 8-year-old self reveal everything from suicide ideation to frequent panic...

My world is different from yours. When I wake up in the morning, my first thoughts are never about what I’ll be doing that day, or rehashing some likely dramas...

We first started to understand the connection between narcolepsy and our immune system after the 2009 H1N1 pandemic. Doctors saw a surge of new narcolepsy cases after people recovered from...

My diagnosis journey was a long 20 years full of misdiagnoses and misunderstandings. When I was young and until I was diagnosed, I always felt like something was off but...

As a person with type 1 narcolepsy, I often struggle to feel gratified from the food that I eat. A 2016 study found that it is common for people with...

I made one of the most difficult and heartbreaking decisions in my life: I euthanized my cat of almost 17 years. She had a fairly serious infection in her eye...

Matt and the terrible, horrible, no good, very sleepy day. If you live with narcolepsy, chances are you have experienced one of these days. These days are more a matter...

This is the second article in a two-part series. In part 1, Lindsey shares how she came to realize her extreme sleepiness was not normal. Driving home that morning, a...

Sometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...

Since being diagnosed, I have been looking back more and more on my childhood and how I would act. I personally think I have had narcolepsy since I was 2...

There is some debate as to whether narcolepsy is truly an invisible illness. I mean if you look close enough you can see the signs that someone is struggling with...

As a person with narcolepsy, I’ve been sleeping a lot of my life away ever since I was 13. No one who knew me would ever doubt my ability to...