Living

There is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health is available...

Narcolepsy symptoms make life hard. And misunderstandings surrounding narcolepsy symptoms can make life harder! Effectively communicating our narcolepsy-related needs is very important. Effective communication is important for bridging the gap...

Imagine living life constantly on the edge, where a simple joke could cause your knees to buckle, or a surge of anger might send your body into paralysis. This was...

I traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey was smooth, and I managed to stay awake...

I’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed by gluten, and once I stopped eating it...

If you have met me, then you know that I am the biggest nerd possible. Video games, anime, DND, board games, etc.; you name it, I'm more than likely have...

Living with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my menstrual cycle. For many women, that time of...

Navigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and turn brings new encounters, some smooth, others fraught...

Here at Narcolepsy.Sleep-Disorders.net, we often talk about staying awake. However, sleep health and the things that help us get quality sleep are also important. Some may have something that helps...

I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one, it is difficult for me to travel (and...

As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable condition, so it seems only logical to me...

Traveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase your ticket. From that moment you hit preparation...

Have you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour later feeling rushed, misunderstood, and generally awful? This...

Living with narcolepsy type 1 (with cataplexy) has given me a unique relationship with sleep. I’ve become quite adept at handling the complexities of daytime sleepiness and cataplexy, but my...

Some might have noticed my recent name change from “Craine” to “Bhavnani.” As of my writing this, I exited the dating realm and entered the “married and living together” realm...

Stimulants can potentially be helpful for those of us with narcolepsy. When I was first diagnosed with narcolepsy, though, sodium oxybate was the first drug introduced to me as a...

The journey to receiving a narcolepsy diagnosis often resembles a rollercoaster, fraught with misdiagnoses. It can take a long time to get diagnosed correctly. Since initiating my advocacy journey in...

As an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends or people who know me and have an...

Living with narcolepsy as a person of a larger size can bring some added complications. I’d been overweight all my life when my narcolepsy onset, so I was well used...

Editor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a rare disease extends beyond medical hurdles – it...