What’s the Deal With Stimulants?Stimulants can potentially be helpful for those of us with narcolepsy. When I was first diagnosed with narcolepsy, though, sodium oxybate was the first drug introduced to me as a... By Tatiana Corbitt3 min readBookmark for laterReactions0reactionsComments0 comments
Narcolepsy and the Root of MisdiagnosisThe journey to receiving a narcolepsy diagnosis often resembles a rollercoaster, fraught with misdiagnoses. It can take a long time to get diagnosed correctly. Since initiating my advocacy journey in... By Iris Vasconcelos2 min readBookmark for laterReactions0reactionsComments9 comments
Traveling with the Right TribeAs an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends or people who know me and have an... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments4 comments
NOT “Fat and Lazy” – Just NarcolepticLiving with narcolepsy as a person of a larger size can bring some added complications. I’d been overweight all my life when my narcolepsy onset, so I was well used... By Tatiana Corbitt2 min readBookmark for laterReactions0reactionsComments1 comments
Hot Sleepy Girl SummerWhile I do not have a summer break from work like I did in school, a lot of activities still happen during the summer: friends inviting me to hang out... By Lauryn Bhavnani2 min readBookmark for laterReactions0reactionsComments0 comments
Beyond Sleep: Navigating Memory Loss and Aging with NarcolepsyI not long ago had a poignant conversation with a friend who, like me, suffers from narcolepsy. Our discussion centered around the common yet distressing issue of fatigue and, more... By Kerly Joy Bwoga2 min readBookmark for laterReactions0reactionsComments9 comments
Narcolepsy Rest DaysI keep wondering, when will I feel better? I keep waiting for life to get easier with narcolepsy. So far it hasn’t. Something that helps me recover from the worst... By Tatiana Corbitt3 min readBookmark for laterReactions0reactionsComments2 comments
How NOT to React to a Cataplexy AttackCataplexy is a sudden, brief loss of muscle tone often triggered by strong emotions. If you have never witnessed a cataplexy attack, it can be difficult to describe. Despite suffering... By Iris Vasconcelos3 min readBookmark for laterReactions0reactionsComments0 comments
When You’re ALWAYS Tired…A typical day with a sleep disorder like narcolepsy can look like this… Wake up. Lay in bed. Bask in the morning sun. Wish you could have one morning feeling... By Tatiana Corbitt2 min readBookmark for laterReactions0reactionsComments6 comments
Narcolepsy Letter to My 21-Year-Old SelfI went for lunch recently with a dear friend, someone I've known since I was 11. As we sat reminiscing, she posed an intriguing question: "What would you say to... By Kerly Joy Bwoga3 min readBookmark for laterReactions0reactionsComments0 comments
Reading With NarcolepsyI love everything about books. Always have. From the crisp smell of their pages, to the buttery-soft feel of their words beneath my fingers, to the worlds they allow me... By Tatiana Corbitt3 min readBookmark for laterReactions0reactionsComments0 comments
Explaining Narcolepsy to OthersSharing a chronic diagnosis with others often feels scary. A narcolepsy diagnosis brings added challenges. Many people do not understand narcolepsy. Others have wrong ideas about the disease. Sometimes, it... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments5 comments
Fighting for Narcolepsy Medication CoverageHave you ever had to prove to insurance that your narcolepsy medication is worth covering? This is unfortunately a common issue that many people in our community end up having... By Tatiana Corbitt2 min readBookmark for laterReactions0reactionsComments0 comments
Worrying About Graduate School and Accommodations for Idiopathic HypersomniaIn December 2023 I graduated with my Bachelor's degree in English. It wasn't easy being a college student with idiopathic hypersomnia. I struggled at maintaining a busy schedule since I... By Lauryn Bhavnani3 min readBookmark for laterReactions0reactionsComments0 comments
How It Feels To Experience A MicrosleepLiving with narcolepsy is like living with an extra, constant shadow by your feet, not just as a medical condition, but as a relentless companion in my life. It's more... By Iris Vasconcelos2 min readBookmark for laterReactions0reactionsComments5 comments
I'm Proud of You“I’m proud of you,” my friend said, smiling. And my stomach dropped. I’d taken extra stimulants, four caffeine pills, and two cups of coffee to get through this day of... By Tatiana Corbitt2 min readBookmark for laterReactions0reactionsComments7 comments
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask – or even where to begin – when you have questions about a new diagnosis. Many community members on this site... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
A Journey Navigating Life Without MedicationI don't even remember how long I've been without medication. I remember thinking about how important it was to me and how important medication is to my life and my... By Tre Burge3 min readBookmark for laterReactions0reactionsComments1 comments
International Narcolepsy OutreachAs a person living with narcolepsy, I often feel the pressure of loneliness that comes along with living with a rare disease. Some days it feels like no one understands... By Tatiana Corbitt3 min readBookmark for laterReactions0reactionsComments0 comments
How TED Talks Helped Me Cope With NarcolepsyIn my journey with narcolepsy, TED Talks have been a beacon of inspiration, not just as a source of information but as a vital tool in managing my mental health... By Iris Vasconcelos2 min readBookmark for laterReactions0reactionsComments0 comments