Understanding Sleep-Related Hallucinations in Children With NarcolepsyImagine seeing a giant spider crawling on your wall. You reach out to swat it, but your hand goes right through. The...reactionscomments
My Narcolepsy Does Not Make Me A BurdenI not long ago read a journal article discussing the “challenges” of parenting a child with narcolepsy. At first, I could hardly...reactionscomments
The Hidden Power of Sunflower Lanyards: My Journey Through an Accessibility RevolutionAs someone living with narcolepsy, a hidden disability that most people can’t immediately identify, the sunflower lanyard has become an essential part...reactionscomments
How Severe Is Your Child’s Narcolepsy?Narcolepsy is a sleep disorder that can affect adults and children alike. Doctors need a way to measure how severe a person’s...reactionscomments
How Nutrition and Exercise Can Help Manage Narcolepsy Symptoms in KidsNarcolepsy can make daily life challenging for kids. It can cause symptoms like excessive daytime sleepiness (EDS), cataplexy (sudden muscle weakness), sleep...reactionscomments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Pediatric Narcolepsy Treatment: What Parents Should KnowNarcolepsy is a chronic condition that can make life challenging for kids. But several treatments can help. Sleep specialists who diagnose and...reactionscomments
Communicating Narcolepsy NeedsNarcolepsy symptoms make life hard. And misunderstandings surrounding narcolepsy symptoms can make life harder! Effectively communicating our narcolepsy-related needs is very important...reactions5comments
Life With and Without CataplexyImagine living life constantly on the edge, where a simple joke could cause your knees to buckle, or a surge of anger...reactions2comments
Personal Experience with Jet Lag and Narcolepsy ManagementI traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey...reactionscomments
I Don’t Want Your Medical AdviceI’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed...reactions7comments
Attending Conventions, With a Sleep DisorderIf you have met me, then you know that I am the biggest nerd possible. Video games, anime, DND, movies, board games...reactionscomments
Narcolepsy and the Menstrual CycleLiving with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my...reactions4comments
Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and...reactionscomments
Successful First Narcolepsy Conference I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one...reactions2comments
Does Narcolepsy Make Me Unreliable?As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable...reactions5comments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase...reactionscomments
Medically MisunderstoodHave you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour...reactionscomments
Narcolepsy in Children and Teens Versus AdultsNarcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000...reactionscomments
