Articles

The journey to receiving a narcolepsy diagnosis often resembles a rollercoaster, fraught with misdiagnoses. It can take a long time to get diagnosed correctly. Since initiating my advocacy journey in...

A timely narcolepsy diagnosis can make a huge difference in the lives of people living with this chronic sleep condition. But diagnosing narcolepsy can be challenging, especially in children who...

As an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends or people who know me and have an...

Narcolepsy is a chronic sleep-wake disorder that can affect children. It causes excessive daytime sleepiness and episodes where they suddenly fall asleep (sleep attacks). This can put a child at...

Living with narcolepsy as a person of a larger size can bring some added complications. I’d been overweight all my life when my narcolepsy onset, so I was well used...

Editor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a rare disease extends beyond medical hurdles – it...

While I do not have a summer break from work like I did in school, a lot of activities still happen during the summer: friends inviting me to hang out...

Editor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. When I became a mother at 26 years old and my husband a...

I not long ago had a poignant conversation with a friend who, like me, suffers from narcolepsy. Our discussion centered around the common yet distressing issue of fatigue and, more...

I keep wondering, when will I feel better? I keep waiting for life to get easier with narcolepsy. So far it hasn’t. Something that helps me recover from the worst...

Young people living with a rare disease are living longer than ever. That’s the good news. The less-good news is that not many places exist for teens and caregivers to...

Cataplexy is a sudden, brief loss of muscle tone often triggered by strong emotions. If you have never witnessed a cataplexy attack, it can be difficult to describe. Despite suffering...

Narcolepsy is often associated with adults. But narcolepsy can also affect children, although it is quite rare. Narcolepsy often impacts children differently than it impacts adults. This can cause unique...

A typical day with a sleep disorder like narcolepsy can look like this… Wake up. Lay in bed. Bask in the morning sun. Wish you could have one morning feeling...

I went for lunch recently with a dear friend, someone I've known since I was 11. As we sat reminiscing, she posed an intriguing question: "What would you say to...

I love everything about books. Always have. From the crisp smell of their pages, to the buttery-soft feel of their words beneath my fingers, to the worlds they allow me...

Sharing a chronic diagnosis with others often feels scary. A narcolepsy diagnosis brings added challenges. Many people do not understand narcolepsy. Others have wrong ideas about the disease. Sometimes, it...

Have you ever had to prove to insurance that your narcolepsy medication is worth covering? This is unfortunately a common issue that many people in our community end up having...

In December 2023 I graduated with my Bachelor's degree in English. It wasn't easy being a college student with idiopathic hypersomnia. I struggled at maintaining a busy schedule since I...

Living with narcolepsy is like living with an extra, constant shadow by your feet, not just as a medical condition, but as a relentless companion in my life. It's more...