How Severe Is Your Child’s Narcolepsy?Narcolepsy is a sleep disorder that can affect adults and children alike. Doctors need a way to measure how severe a person’s narcolepsy is so they can track the condition...reactionscomments
How Nutrition and Exercise Can Help Manage Narcolepsy Symptoms in KidsNarcolepsy can make daily life challenging for kids. It can cause symptoms like excessive daytime sleepiness (EDS), cataplexy (sudden muscle weakness), sleep paralysis (being unable to move while waking up...reactionscomments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health is available...reactionscomments
Pediatric Narcolepsy Treatment: What Parents Should KnowNarcolepsy is a chronic condition that can make life challenging for kids. But several treatments can help. Sleep specialists who diagnose and treat pediatric narcolepsy can help you find the...reactionscomments
Communicating Narcolepsy NeedsNarcolepsy symptoms make life hard. And misunderstandings surrounding narcolepsy symptoms can make life harder! Effectively communicating our narcolepsy-related needs is very important. Effective communication is important for bridging the gap...reactions5comments
Life With and Without CataplexyImagine living life constantly on the edge, where a simple joke could cause your knees to buckle, or a surge of anger might send your body into paralysis. This was...reactions2comments
Personal Experience with Jet Lag and Narcolepsy ManagementI traveled from London, departing on a Friday evening and arriving at my destination Australia, Queensland, at 7:00 AM Sunday. The journey was smooth, and I managed to stay awake...reactionscomments
I Don’t Want Your Medical AdviceI’ve had so many people give unwelcome medical advice about my narcolepsy symptoms. “Try going gluten-free! My gut flora was being destroyed by gluten, and once I stopped eating it...reactions7comments
Attending Conventions, With a Sleep DisorderIf you have met me, then you know that I am the biggest nerd possible. Video games, anime, DND, movies, board games, etc.; you name it, I'm more than likely...reactionscomments
Narcolepsy and the Menstrual CycleLiving with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my menstrual cycle. For many women, that time of...reactions4comments
Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and turn brings new encounters, some smooth, others fraught...reactionscomments
Successful First Narcolepsy Conference I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one, it is difficult for me to travel (and...reactions2comments
Does Narcolepsy Make Me Unreliable?As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable condition, so it seems only logical to me...reactions5comments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase your ticket. From that moment you hit preparation...reactionscomments
Medically MisunderstoodHave you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour later feeling rushed, misunderstood, and generally awful? This...reactionscomments
Narcolepsy in Children and Teens Versus AdultsNarcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both adults and children, but it may look different...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000 to 8,000 different rare diseases that all present...reactionscomments
The Subtle Differences Between Nightmares and Night Terrors: A Personal PerspectiveLiving with narcolepsy type 1 (with cataplexy) has given me a unique relationship with sleep. I’ve become quite adept at handling the complexities of daytime sleepiness and cataplexy, but my...reactionscomments
Putting a Ring On It: Getting Married While Managing a Sleep DisorderSome might have noticed my recent name change from “Craine” to “Bhavnani.” As of my writing this, I exited the dating realm and entered the “married and living together” realm...reactions1comment
What’s the Deal With Stimulants?Stimulants can potentially be helpful for those of us with narcolepsy. When I was first diagnosed with narcolepsy, though, sodium oxybate was the first drug introduced to me as a...reactions8comments
