Tips for Safely Napping in Your Car With Narcolepsy or Idiopathic Hypersomnia (IH)When you live with narcolepsy or idiopathic hypersomnia (IH), you often cannot predict the onset of fatigue. Overwhelming exhaustion may strike at any...reactions3comments
Living With Idiopathic Hypersomnia: Tips for Managing Excessive Daytime SleepinessThe main symptom of idiopathic hypersomnia (IH) is excessive daytime sleepiness (EDS). This can make it hard to carry out basic tasks...reactionscomments
Idiopathic Hypersomnia, Drowsy Driving, and the Diagnosis HopI must trace back decades to recall when I first realized daytime sleepiness wasn’t normal. Only after several hops from one diagnosis...reactions2comments
Summer Sleep: Overheated and ExhaustedAs I was growing up, I always had a bit of a weird chip on my shoulder about living in Australia. My...reactions7comments
5 Ways I Am Improving My Life With Narcolepsy This YearAll over my social media in recent months, I saw quotes like "new year, new me," or "out with the old, in...reactions5comments
Narcolepsy Is Not "Just Falling Asleep"So many people don't know what narcolepsy is. Those who do have limited knowledge and understanding. Thanks to its portrayal in the...reactions12comments
The Choices We Make: Not Everything Is a ChoiceI made one of the most difficult and heartbreaking decisions in my life: I euthanized my cat of almost 17 years. She...reactions4comments
School and Narcolepsy: Tips for Parents of Young StudentsHaving a young child diagnosed with narcolepsy can be overwhelming, particularly when faced with managing narcolepsy and school. Fortunately, there are ways...reactionscomments
New Narcolepsy, New LifeIt is possible to be "born with" narcolepsy and never experience life without it. However, I was not born with narcolepsy. My...reactions1comment
In Sickness and in Health: Why Unconditional Love Matters with Chronic IllnessI did not receive my narcolepsy diagnosis until about year after I took my vows with my husband. We, like many other...reactions3comments
I Have Idiopathic Hypersomnia. And Yes, I Can Drive!People automatically assume a lot of things when I first tell them I have idiopathic hypersomnia (IH). It causes them to jump...reactions10comments
Help, My Spouse Has Narcolepsy!Narcolepsy hit us like a bus. One day I was healthy, then one day, I was not. Over the course of a year...reactionscomments
Loving a Narcoleptic: A Letter to My Future LoveI am a narcoleptic. I am not like anyone you have ever known. Life with me will be different and can be...reactions15comments
The Importance of Awareness and AdvocacyWhen I first received my diagnosis, I had so many thoughts swirling in my head: “How will this affect me?”, “What will...reactionscomments
The Detriments of ExpectationsEveryone has the tendency to expect things from others. In my case, I am often expected to live the life of a...reactions5comments
Narcolepsy Medication & Weight ChangesWhen I was diagnosed with narcolepsy at 28 years old, there were many things I worried about... but my weight was certainly...reactionscomments
Navigating the Shadows of Narcolepsy StigmaLiving with narcolepsy is a unique and often misunderstood journey, marked by the ever-present stigma that infiltrates various aspects of our lives...reactions3comments
3 Typical Reactions to NarcolepsyWhen I was first diagnosed with narcolepsy in 2018, I would have never pictured myself talking openly about it to anyone, let...reactions4comments
The Curious Link Between Narcolepsy and ADHDI’ve realised that since I was diagnosed with narcolepsy, I’ve learned so much about myself, and I continue to do so the...reactions40comments
Narcolepsy and the Root of MisdiagnosisThe journey to receiving a narcolepsy diagnosis often resembles a rollercoaster, fraught with misdiagnoses. It can take a long time to get...reactions14comments
