Narcolepsy and the Menstrual CycleLiving with narcolepsy type 1 has made me extremely aware of how this condition impacts every part of my life, even my menstrual cycle. For many women, that time of...reactions4comments
Enhancing Patient Safety: Addressing Communication Breakdowns in HealthcareNavigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and turn brings new encounters, some smooth, others fraught...reactionscomments
Enter Our Giveaway: A Heated Stuffed Animal for Sleep ComfortHere at Narcolepsy.Sleep-Disorders.net, we often talk about staying awake. However, sleep health and the things that help us get quality sleep are also important. Some may have something that helps...reactions4comments
Successful First Narcolepsy Conference I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one, it is difficult for me to travel (and...reactions2comments
Does Narcolepsy Make Me Unreliable?As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable condition, so it seems only logical to me...reactions5comments
International Travel: When Preparations Fall ApartTraveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase your ticket. From that moment you hit preparation...reactionscomments
Medically MisunderstoodHave you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour later feeling rushed, misunderstood, and generally awful? This...reactionscomments
Narcolepsy in Children and Teens Versus AdultsNarcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both adults and children, but it may look different...reactionscomments
Caring for a Child With a Rare DiseaseRaising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000 to 8,000 different rare diseases that all present...reactionscomments
The Subtle Differences Between Nightmares and Night Terrors: A Personal PerspectiveLiving with narcolepsy type 1 (with cataplexy) has given me a unique relationship with sleep. I’ve become quite adept at handling the complexities of daytime sleepiness and cataplexy, but my...reactionscomments
Putting a Ring On It: Getting Married While Managing a Sleep DisorderSome might have noticed my recent name change from “Craine” to “Bhavnani.” As of my writing this, I exited the dating realm and entered the “married and living together” realm...reactions1comment
What’s the Deal With Stimulants?Stimulants can potentially be helpful for those of us with narcolepsy. When I was first diagnosed with narcolepsy, though, sodium oxybate was the first drug introduced to me as a...reactions8comments
Narcolepsy and the Root of MisdiagnosisThe journey to receiving a narcolepsy diagnosis often resembles a rollercoaster, fraught with misdiagnoses. It can take a long time to get diagnosed correctly. Since initiating my advocacy journey in...reactions14comments
At What Age Were You Diagnosed With Narcolepsy?A timely narcolepsy diagnosis can make a huge difference in the lives of people living with this chronic sleep condition. But diagnosing narcolepsy can be challenging, especially in children who...reactions8comments
Traveling with the Right TribeAs an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends or people who know me and have an...reactions4comments
Ways to Support Your Child With NarcolepsyNarcolepsy is a chronic sleep-wake disorder that can affect children. It causes excessive daytime sleepiness and episodes where they suddenly fall asleep (sleep attacks). This can put a child at...reactionscomments
NOT “Fat and Lazy” – Just NarcolepticLiving with narcolepsy as a person of a larger size can bring some added complications. I’d been overweight all my life when my narcolepsy onset, so I was well used...reactions1comment
Keeping Your Family Connected When Raising a Child With a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a rare disease extends beyond medical hurdles – it...reactionscomments
Hot Sleepy Girl SummerWhile I do not have a summer break from work like I did in school, a lot of activities still happen during the summer: friends inviting me to hang out...reactionscomments
Parental Partnership: Supporting Families With a Child Affected by a Rare DiseaseEditor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. When I became a mother at 26 years old and my husband a...reactionscomments
