Articles

Navigating the corridors of healthcare systems can sometimes feel like a journey through a dense forest with no map. Each twist and turn brings new encounters, some smooth, others fraught...

Here at Narcolepsy.Sleep-Disorders.net, we often talk about staying awake. However, sleep health and the things that help us get quality sleep are also important. Some may have something that helps...

I had the privilege of attending a national narcolepsy conference, something I never thought I would be able to do! For one, it is difficult for me to travel (and...

As someone living with narcolepsy, I have often wondered if my condition makes me an unreliable person. Narcolepsy is an incredibly unpredictable condition, so it seems only logical to me...

Traveling doesn't start the day you get on the plane, train, or bus; I think traveling starts from the day you purchase your ticket. From that moment you hit preparation...

Have you ever walked into a doctor’s office hopeful that you will receive the help you need, only to leave an hour later feeling rushed, misunderstood, and generally awful? This...

Narcolepsy is a neurological condition that affects the sleep-wake cycle. A hallmark symptom can be excessive daytime sleepiness (EDS). Narcolepsy affects both adults and children, but it may look different...

Raising a child is never easy, but it can be especially challenging if your child has a rare disease. There are 5,000 to 8,000 different rare diseases that all present...

Living with narcolepsy type 1 (with cataplexy) has given me a unique relationship with sleep. I’ve become quite adept at handling the complexities of daytime sleepiness and cataplexy, but my...

Some might have noticed my recent name change from “Craine” to “Bhavnani.” As of my writing this, I exited the dating realm and entered the “married and living together” realm...

Stimulants can potentially be helpful for those of us with narcolepsy. When I was first diagnosed with narcolepsy, though, sodium oxybate was the first drug introduced to me as a...

The journey to receiving a narcolepsy diagnosis often resembles a rollercoaster, fraught with misdiagnoses. It can take a long time to get diagnosed correctly. Since initiating my advocacy journey in...

A timely narcolepsy diagnosis can make a huge difference in the lives of people living with this chronic sleep condition. But diagnosing narcolepsy can be challenging, especially in children who...

As an avid traveler living with narcolepsy, I have had a wide variety of travel experiences. Often times I travel with friends or people who know me and have an...

Narcolepsy is a chronic sleep-wake disorder that can affect children. It causes excessive daytime sleepiness and episodes where they suddenly fall asleep (sleep attacks). This can put a child at...

Living with narcolepsy as a person of a larger size can bring some added complications. I’d been overweight all my life when my narcolepsy onset, so I was well used...

Editor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. Raising a child with a rare disease extends beyond medical hurdles – it...

While I do not have a summer break from work like I did in school, a lot of activities still happen during the summer: friends inviting me to hang out...

Editor's Note: This article was written by Elle Cole and originally appeared on our partner site RareDisease.net. When I became a mother at 26 years old and my husband a...

I not long ago had a poignant conversation with a friend who, like me, suffers from narcolepsy. Our discussion centered around the common yet distressing issue of fatigue and, more...