If I Had the Perfect Support SystemIf I had the perfect support system, it would be almost a completely different world. No more explaining. No more apologizing. Everyone would understand and accept me for how I...Reactions0reactionsComments6 comments
Acknowledging Sleep Attack AlertsA pile of fur, my service dog sulks on our couch. A pair of bright eyes peer dolefully behind shaded lashes. Her face rests on her paws, giving her cheeks...Reactions0reactionsComments2 comments
Is Narcolepsy Slowing My Metabolism?Narcolepsy is a nervous system disease that affects 1 out of every 2,000 people. People with narcolepsy cannot control when they fall asleep. Sudden sleep episodes can last a few...Reactions0reactionsComments5 comments
Meet Our Advocate - Rebecca NoyesAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...Reactions0reactionsComments1 comments
Meet Our Advocate - Elle WalesAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...Reactions0reactionsComments0 comments
You Describe Air, I'll Describe NarcolepsyWriting is my saving grace. It teaches me to structure my thoughts and enables me to effectively express myself in order to truly be seen through means of the written...Reactions0reactionsComments9 comments
Exploring New Hobbies With Narcolepsy: Baking, Photography, and Tattoo ArtNarcolepsy type 1 is a combination of constant exhaustion, fading into sleep at a moment’s notice, and cataplexy. These symptoms have impeded many areas of my life. Some days it...Reactions0reactionsComments4 comments
Idiopathic Hypersomnia, Drowsy Driving, and the Diagnosis HopI must trace back decades to recall when I first realized daytime sleepiness wasn’t normal. Only after several hops from one diagnosis to the next did I understand the roots...Reactions0reactionsComments2 comments
My Journey of Becoming a FirefighterI have been an EMT for 3 and a half years now, and I am now finishing up classes to become a firefighter. I’ve been in this class for almost...Reactions0reactionsComments1 comments
Take Your Best Guess: Narcolepsy In America StatisticsIn our 2020 Sleep Disorders In America survey, we wanted to know how people cope with their narcolepsy. Questions covered everything from how community members manage symptoms to treatment experiences...Reactions0reactionsComments0 comments
Meet Our Advocate - Christina ChristensenAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...Reactions0reactionsComments0 comments
Exploring New Hobbies With Narcolepsy: Painting, Hiking, and Bird-WatchingIt can be difficult to participate in life when I am constantly fighting sleep. Cataplexy can also interfere with my ability to enjoy certain activities. For example, when my cataplexy...Reactions0reactionsComments0 comments
Meet Our Advocate - Alyssa WalkerAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...Reactions0reactionsComments0 comments
What My Insomnia Looks LikeHaving both narcolepsy and insomnia can be a bit of a challenge when it comes to getting a good night's sleep for me. Unless I am overly exhausted at night...Reactions0reactionsComments12 comments
Tips for Safely Napping in Your CarWhen you live with narcolepsy or idiopathic hypersomnia (IH), you often cannot predict the onset of fatigue. Overwhelming exhaustion may strike at any time. While always inconvenient, this can be dangerous...Reactions0reactionsComments3 comments
Creating a Sleep Paralysis DemonEvil (2019) is a television show that depicts many psychological and medical incidents in supernatural ways. Produced by CBS Studios and King Size Productions, the show includes depictions of sleep...Reactions0reactionsComments4 comments
Narcolepsy From a Different PerspectiveAs a narcolepsy patient, I struggle with my condition every day. It’s a fact I can’t change, and one I still struggle to accept. As patients, the obstacles we face...Reactions0reactionsComments4 comments
Deep Pressure Therapy: How My Service Dog Shortens My Sleep AttacksIt is 10:00 in the morning and I’m having my first sleep attack of the day. My vision blurs and the room sways in a rhythmic dance between consciousness and...Reactions0reactionsComments2 comments
Positive Relationships and Support NetworksThe love of a partner, supportive friend, or family member can make a profound difference in life. Relationships can lean either positive or negative, potentially wreaking havoc on brain fog...Reactions0reactionsComments1 comments
Following Your GutFor a while, I was going back and forth thinking to myself, Are these really my only options to manage my condition? Since I was diagnosed in June 2019, I...Reactions0reactionsComments7 comments