To Disclose or Not to Disclose?“You have a brilliant mind,” my professor whispered. Her words tore through the soft tissue of my chest. I felt like a kite whose string had been cut. The agony...reactions2comments
Narcolepsy and CreativityEarlier in my life, if someone had asked me if I considered myself to be a creative person, I would've quickly said no. I was the science and maths nerd...reactions1comment
Telling Your Story May Be Good for Your Health“While writing about my health issues has not cured them, it has helped me develop better coping skills and even contributed to better management of my symptoms (and I could...reactions4comments
Meet Our Advocate - Gabrielle KeithAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...reactions2comments
Meet Our Advocate – Tara O'ConnorAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...reactionscomments
Exploring New Hobbies with Narcolepsy: Sewing and Support GroupsI was diagnosed with narcolepsy type 1 in 2017. That means that I’ve had less than 4 years to acclimate to my new condition. Many of the hobbies that I...reactions3comments
Anesthesia, Idiopathic Hypersomnia, and NarcolepsyIdiopathic hypersomnia (IH) and narcolepsy are both hypersomnolence disorders. Those living with these disorders experience excessive sleepiness during the day that is not related to the amount of sleep they...reactions5comments
Meet Our Advocate - NessieAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...reactions2comments
Thriving During DowntimeEver since I was young, the summers have always been the most difficult time of year for me. Before my diagnosis, I used to think I wasn’t “doing enough” during...reactions3comments
Book Review: Wide Awake and Dreaming by Julie FlygareA little over a year after I was diagnosed with narcolepsy, I kept seeing other people talk about Julie Flygare’s book Wide Awake and Dreaming. People were saying how helpful...reactions4comments
Meet Our Advocate – Judy FergusonAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...reactions4comments
Tomorrow Is a New Day!As I lay here in twilight, I think to myself, tomorrow is the day! I am going to wake up, put my hair back and clean my oven! If I...reactions4comments
If I Had the Perfect Support SystemIf I had the perfect support system, it would be almost a completely different world. No more explaining. No more apologizing. Everyone would understand and accept me for how I...reactions6comments
Acknowledging Sleep Attack AlertsA pile of fur, my service dog sulks on our couch. A pair of bright eyes peer dolefully behind shaded lashes. Her face rests on her paws, giving her cheeks...reactions2comments
Is Narcolepsy Slowing My Metabolism?Narcolepsy is a nervous system disease that affects 1 out of every 2,000 people. People with narcolepsy cannot control when they fall asleep. Sudden sleep episodes can last a few...reactions5comments
Meet Our Advocate - Rebecca NoyesAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...reactions1comment
Meet Our Advocate - Elle WalesAt Narcolepsy.Sleep-Disorders.net, we are thankful for our amazing advocates who share their experiences of living with narcolepsy. In our advocate spotlight interview series, we get to know our advocates better...reactionscomments
You Describe Air, I'll Describe NarcolepsyWriting is my saving grace. It teaches me to structure my thoughts and enables me to effectively express myself in order to truly be seen through means of the written...reactions9comments
Exploring New Hobbies With Narcolepsy: Baking, Photography, and Tattoo ArtNarcolepsy type 1 is a combination of constant exhaustion, fading into sleep at a moment’s notice, and cataplexy. These symptoms have impeded many areas of my life. Some days it...reactions4comments
Idiopathic Hypersomnia, Drowsy Driving, and the Diagnosis HopI must trace back decades to recall when I first realized daytime sleepiness wasn’t normal. Only after several hops from one diagnosis to the next did I understand the roots...reactions2comments
