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Read conversations, start a discussion, and connect with others about narcolepsy.

was diagnosed and managed for 2 years then

I moved. I just got a new sleep disorder specialist. She stated that I do not have the marker (gene) there, for it is highly unlikely I have Narcolepsy. Two...

Does your daily schedule affect narcolepsy symptoms?

I have an initial consult booked with a sleep specialist in a couple months because I think I could have narcolepsy type 2...Two months is a lot of time to...

Narcolepsy and PTSD

Has anybody dealt with or know somebody who has Narcolepsy and PTSD? Im 21 as of now, i was diagnosed with narcolepsy at 16, and was just diagnosed with chronic...

Diagnosis of Hypersomnia

Hi all, (I wanted to post this as a different discussion, but this is really a follow-up/update on my initial question found here: https://narcolepsy.sleep-disorders.net/forums/does-your-daily-schedule-affect-narcolepsy-symptoms#reply-164293.) My sleep study has been completed...

Cannabis and Narcolepsy?

First off, I don't have an official narcolepsy diagnosis. I have been suffering from sleep problems on and off for about 20 years now, though. When it's bad, it's really...

Severe Sleep Apnoea & tests for other sleep issues

I thought I was coming to the end of my 2-3 year journey of testing etc. thinking I had ME/CFS, although now I'm being referred for other neuro/Sleep tests. Could...

Featured

What do you think you're life would have been like if you didn't have narcolepsy?

I often find myself daydreaming about what my life would have been like if I had never been diagnosed and I wondered if anyone else thought about this too? I...

Suspected Narcolepsy

Hello everyone! I have been suspecting I have narcolepsy for a couple of years now and finally began seeking help as falling asleep at my desk is no way to...

Diagnosis

I was born premature 1 pound 9 oz thank God for bringing me thus far. Fast-forward to 2014: Got diagnosed with Narcolepsy without cataplexy but my disorder began with sleep...

Now what?

Hello. I was just diagnosed with IH and Narcolepsy II at 41 years old. I have been misdiagnosed so many times, the most recent being ADHD 2 years ago. I...

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