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Read conversations, start a discussion, and connect with others about narcolepsy.

Narcolepsy mislabeled

Some people are misdiagnosed with other health conditions before they finally learn those symptoms are actually due to narcolepsy. With the correct diagnosis and treatment, they find their other diagnoses...

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Have you ever been diagnosed with idiopathic hypersomnia?

Have you been diagnosed with idiopathic hypersomnia (IH)? Idiopathic hypersomnia (IH) is a chronic sleep disorder that causes excessive daytime sleepiness. You can find more information about this condition on...

troble with getting diagnosis

The following youtube video is my experience with seeking a diagnosis for the symptoms I have For over 12 years I was back and forth to doctors begging for help...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...

was diagnosed and managed for 2 years then

I moved. I just got a new sleep disorder specialist. She stated that I do not have the marker (gene) there, for it is highly unlikely I have Narcolepsy. Two...

Does your daily schedule affect narcolepsy symptoms?

I have an initial consult booked with a sleep specialist in a couple months because I think I could have narcolepsy type 2...Two months is a lot of time to...

Narcolepsy and PTSD

Has anybody dealt with or know somebody who has Narcolepsy and PTSD? Im 21 as of now, i was diagnosed with narcolepsy at 16, and was just diagnosed with chronic...

Diagnosis of Hypersomnia

Hi all, (I wanted to post this as a different discussion, but this is really a follow-up/update on my initial question found here: https://narcolepsy.sleep-disorders.net/forums/does-your-daily-schedule-affect-narcolepsy-symptoms#reply-164293.) My sleep study has been completed...

Cannabis and Narcolepsy?

First off, I don't have an official narcolepsy diagnosis. I have been suffering from sleep problems on and off for about 20 years now, though. When it's bad, it's really...

Severe Sleep Apnoea & tests for other sleep issues

I thought I was coming to the end of my 2-3 year journey of testing etc. thinking I had ME/CFS, although now I'm being referred for other neuro/Sleep tests. Could...

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