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Read conversations, start a discussion, and connect with others about narcolepsy.

How to manage

I was diagnosed at 65 years of age. The symptoms have worsened not at 70. I find it strand when Dr. Google says the disease is not progressive. Sometimes I...

Does anyone else feel helpless?

For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling to stay awake, and trying to have the...

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Pre-Diagnosis

Hello everyone, I am suspected to have narcolepsy. I've been to doctors and a neurologist who all agree with this assumption. Currently I'm waiting to be transferred into a sleep...

Dexamphetamine UK ??

Hi I'm from Wales UK and diagnosed 6 years ago with narcolepsy with cataplexy and idiopathic hypersomnia after misdiagnoses for 34 years initially I was given dexamphetamine but I was...

Diagnosis of Hypersomnia

Hi all, (I wanted to post this as a different discussion, but this is really a follow-up/update on my initial question found here: https://narcolepsy.sleep-disorders.net/forums/does-your-daily-schedule-affect-narcolepsy-symptoms#reply-164293.) My sleep study has been completed...

Narcolepsy Flares Around Hormone Cycles

It's been almost a year since I was diagnosed with Narcolepsy and Cataplexy and over the past 6 months, every month, I have really debilitating symptoms and my meds stop...

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