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Read conversations, start a discussion, and connect with others about narcolepsy.

Do you go to a narcolepsy meet up?

Aside from big conferences like the National Narcolepsy Conference, there are lot's of meet up groups that exist! Let's make them known. What meet up groups have you attended? What...

What Do You Wish People Knew About Narcolepsy?

Diagnosed with Narcolepsy with Cataplexy in 1977. I started on Provigil after participating in the drug trial study. Would like contact from members who have been on Provigil or Nuvigil(Armodafinil...

Would like to talk with Narcoleptics in their 60's, 70's, and 80's who have taken Provigil or NUVIGIL. WANT TO KNOW HOW THEY ARE DOING. HAVE THEY CONTINUED ON NUVIGIL...

Have been easily using the same Dr for five or six years in Florida.…..

and suddenly this doctor is no longer accepting patients and is retiring. His name is Dr Garcia or icareviphealth.org and it was absolutely the easiest thing in the world. I...

Featured

Explaining Narcolepsy to Others

How do you explain narcolepsy to others in your life? Did you share your diagnosis right away or wait?...

Telling people you have narcolepsy

I’m not embarrassed about having narcolepsy and have come to terms with it. But I also don’t want it to hold me back in my career and other areas of...

Repeating

I'm in a large circle of people introducing myself and answering a question, everyone has the same response however, mine is opposite. By the time they get to me, I'm...

Will you take our In America survey to share the truth about life with narcolepsy?

Thank you for participating. This survey has closed. From daytime sleepiness to cataplexy and brain fog, narcolepsy can impact all aspects of life. To better understand the patient experience and realities...

World Narcolepsy Day 2022! How did you celebrate?

Yesterday was an awesome day of spreading awareness for the Narcolepsy and Sleep Disorder community. I got to see genuine love spread throughout the day as well as connection and...

Will you take our In America survey to share the truth about life with narcolepsy?

From sleep attacks to cataplexy, there’s so much more to life with narcolepsy than most people know. Help contribute to a better understanding of living with narcolepsy by taking our...

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