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Read conversations, start a discussion, and connect with others about narcolepsy.

Fill in the blank: The hardest thing about living with narcolepsy is ___________.

What is the hardest thing about living with narcolepsy? Share your answers below!...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was normal, and the sleep latency test showed normal...

Being able to clean one room at a time.

I'm wondering if many of you deal with this issue... I can't stay focused on one room. I begin to clean up kitchen, but before I can start, I have...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so I haven't had them in over 30 days...

Narcolepsy and Pregnancy

Has anyone else found that their symptoms are exacerbated while pregnant? Usually, my paralysis/hallucinating state only last for 10 seconds to a minute at most. Lately i have been stuck...

Falling asleep and falling down

Every night no matter how I try to stay awake while heading to the bathroom or sitting on the toilet, I fall asleep. I have put a hole in my...

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Pre-Diagnosis

Hello everyone, I am suspected to have narcolepsy. I've been to doctors and a neurologist who all agree with this assumption. Currently I'm waiting to be transferred into a sleep...

How to manage narcolepsy in college

Managing school, social life and narcolepsy in college....

Repeating

I'm in a large circle of people introducing myself and answering a question, everyone has the same response however, mine is opposite. By the time they get to me, I'm...

My first cataplexy injury and my friends didn't show me any comfort

I was at an event on the weekend and my cataplexy got me a few times. The last one was particularly bad and I crumpled on the grass right in...

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